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Help me fund Lyme treatment

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Hi, my name is Karen and I have Late Stage Neurological Lyme Disease. I am hoping to raise much needed funds for treatment costs, survival, and bills.
I am very ill and homeless at the moment. I am staying at a friend's home until I can get treatment and get better so I can stand on my own two feet.  I was abandoned by my husband over a year ago when I became deathly ill and was fighting for my life. The doctors believed I had MS, Parkinson's Disease, or Leukemia because of all my symptoms. (Blurred vision, moments of blindness, tremors, paralysis, extreme fatigue -"walking under water", muscles seizing up "turning to stone", confusion, excruciating pain: lightning bolts shooting through my spine, head and limbs, feeling like my feet were doused with gasoline and set on fire, extreme Migraines, and balance problems. On top of all that I was having heart and lung problems - fluid was constantly building up around my heart and constant lung infections.) I was deathly ill. After many tests: Spinal tap, MRIs, CT Scan, ultra sounds, and blood work - I was told I have 8 lesions in my brain matter and four on my spine - including an infection in the lining around my brain...  and was told I have Late Stage Neurological Lyme Disease... Chronic. I was devestated to say the least. Lyme has done so much damage to my organs because I was misdiagnosed with Fibromyalgia for so many years and was never given proper treatment. Lyme and all it's coinfections have attacked my body something fierce. THEN after being told this diagnoses I was told by my doctors that they were not going to help me. (Doctors can lose their licenses if they help Lyme sufferers with any more than 4 weeks of Doxycycline because that is all the CDC will allow them to do. Crazy, I know. What disease that you know of causes a doctor to get in trouble for helping his patient??)  My doctors would not go beyond what the IDSA and CDC allows so I never got any treatment and now I have more damage because of it.  All treatments for Lyme and its coinfections are out of pocket. The doctors that will help you only do it out of pocket so insurance does not get involved and they are not noticed by the CDC for going beyond their told limits of medical treatment to help us? Every doctor I see turns me away saying they can not help me, so I wait indefinitely for treatment because of lack of funds to get the proper things I need to get better, so the damage to my body continues.  I need to figure out how to pay for my own treatments so I can save my Life and get healthy. I can not work to get enough funds for treatment because I am too ill! I lack money to pay my bills at the moment, and like I said, am homeless. Thank God my friends took me in so I wouldn't be living in my car. I have no family that will help me - my parents are no longer living and I have no means of survival if I do not get treatment as soon as possible... I wait in limbo just allowing Lyme to destroy more and more of my body.  I need treatment so I can get better and hopefully work again and take care of myself. I basically need a miracle and the compassion of others to help me. I so long to get better so I can get on with my Life. I ask you humbly for any amount of help. I will be forever grateful.
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Donations 

  • Suzette Lucich
    • $100 
    • 6 yrs
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Organizer

Karen Huckeba
Organizer
Ridgecrest, CA

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