Ausdyn Fighting Ulcerative Colitis

How do you start somthing like this? Well the date was 8/8/2003 my ex wife and I were blessed with the birth of twins a girl (Abigail) and a boy (Ausdyn)! All was fine for 2 days then our world dropped out. 5 days with both twins in the NICU, at 2 different Hospitals Abigail could not fight she was taken from us due to group b strep infection. I still remember the final moments for Teresa and I. We felt It  was in a nightmare but had to become strong our newborn and other 3 children at home.The tragic loss of Abigail took its toll on us and my wife and I divorced when Ausdyn was a year old. Ausdyn remained on breathing treatments till he was 2. All seemed fine with him till about 3 yrs ago we noticed his was'nt gainig weight and his bowel movements seemed different. More bad news Ausdyn was diagnosed with Ulcerative Colitis and liver diease. We tried all medications even the newest. The Doctor said that he will need his large intestinse removed and have a colostomy bag. The liver we will look at later (great right) probably need a  transplant when he is between 16-18 years old. Ausdyn is such a great kid like any other enjoys all sports, video games, swimming and school....ok lol not school as much. He will have this colostomy bag so alot will change in his daily routine. Ausdyn at age 11 said if he could save all his Birthday money could we go to Disney? I don't have the means to make this happen.  Mostly what my family needs is prayers for Ausdyn thank you.