tyvm everyone!!!!!!! sending all our love and positive vibes to you and yours!!!
still plugging forward!!! matt is graduating on june 8th with the rest of his class!!! i am so proud of my son, he has overcome so much and accomplished leaps and bounds, i am 1 hell of a proud mother!!!
Thank you all for visiting the page and donating!!! Closer to stem cell therapy!!!
Slow and steady they say wins the race....go matt go, you can do it! we all love you soooo much and can't wait for you to beat this! Once a week physical therapy is absolutely ridiculous...insurance sucks!!! health care needs 1 hell of an overhaul!!!
out-patient rehab starts today and maybe we'll make our eye appointment for new glasses, translink didn't bother to show up yesterday ,just blew us off...definately feeling some type of way today!!!!!!!things need to go smoothly today!!!!!
skate park contest set for sept. 8 at 10:00 a.m. be there or be square...lol...all proceeds go to Matt!!!
ent appointment today, hoping they schedule surgery to get this damn trach out!!!!!!!!!!!hoping it all goes well today!
matt can now have smoothies and juice by mouth!!!! on the road to food slowly..thank goodness,wheelchair comes today we'll see how that goes! wish us luck!
little depressing since friday,we failed swallow test as far as thick liquids go...have no problem with water,but still can't eat or drink..:( poor kid just wants to eat and drink already!!! keeping our spirits up regardless!!!
Just got back from seeing his new neurologist here in town and he is impressed with Matt's mentality!!! he also see's good signs for left side returning!!!! woohoo...we are so excited!!!
finally got an appointment for the barium swallow test, next fri...hopefully he will do well so he can eat and drink again!
just got back from wound care and we don't need to see them anymore!!! woohoo i did something right for once. gave myself a pat on the back. hopefully the wound will stay away for good!
wound care center trip this morning. his stage 3 ulcer on his tailbone looks like it has healed nicely,I hope all the undermining is gone , if it is, 1 less nightmare to deal with on a daily basis. Next battle is that damn trach they talked me into getting, by far 1 of the worst decisions I have made yet! Will update when we get home. :)
trach has been our worst nightmare thus far. i can only imagine not being able to eat , drink, or speak since april 06,2012. still waiting on barium swallow test to see if its possible to give this poor kid some food and to drink by mouth instead of through a stomach peg! i just want to hear his voice again!
all donations will go to cost of living expenses such as rent,bills,and anything he needs that i can no longer provide due to him needing 24/7 care by me. keep sending your thoughts and prayers they are greatly appreciated!
speech therapy went well today and getting closer to a date for the medford mayhem skate contest , which is being thrown for matt this year!!! hope to see alot of you here for the event...looking at sept. 01 or 2nd!!!his birthday happens to be on the 7th!!!
matt's left side is still paralyzed but feeling is coming back slowly. he is so upbeat and full of positive thoughts , he makes me so proud to be his mom!!! you'll be skating again, I know it!!!!
15On April 06, 2012 our lives were turned upside down. My son Matt age 16, has been plagued by headaches and migraines since the age of 10. It started as a migraine that night and when I checked on him at 9:06 p.m I found my son stiff as a board and in a seizure. That was the night I found out what an AVM was. He had a massive brain bleed, the AVM had ruptured, sending blood throughout his brain. Emergency surgery was performed to relieve the pressure and the next day we were life flighted to OHSU hospital,where we spent the next 5 weeks wondering what was to come. 3 brain surgeries later and what seemed like an eternity, my son was finally waking up. Mentally my son is the same, what has been affected the most is the physical aspect of things. Left side paralysis and he only has use of the right arm for now.
We are asking for donations to go to "Ability" camp in Ontario Canada. They use hyperbaric therapy as well as conductive therapy started in Hungary. They have shown alot of results working with stroke and TBI patients, even after years of not progressing. We are willing to try just about anything at this point!! Thank you all for donating and visiting our page, all the love to you all!