Tyler's Journey Through Epilepsy

 
Raised: $40,959.00
Goal: $50,000.00
 
 
 

Created by

Tina Martin

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Tyler's journey with epilepsy began 1 year ago (March 2012) when he had a series of grand mal seizures (unknowing at that time what these episodes were) on morning while getting ready fo... more

 
 
 
 
 
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Updated posted by Tina Martin 8 months ago

Good Morning All, I am happy to report that Tyler has had another awesome 5 days....we have been seizure free these last 5 days (tics are still prevalent, but no seizures). I know it is a combination of the doctor's plans and the prayers of all of you around the country. I must say I could not have done this alone. I know we have a long way to go, but I am enjoying and reaping the benefits of baby steps at this point. We are gearing up for another hurdle - school! I am excited and nervous about 5th grade, but I am grateful to all of the staff at Tyler's school because we have been in contact about a plan for the upcoming year. More to come.

Have a great week.

Tina

 
 
 

Updated posted by Tina Martin 9 months ago

I am so happy to report the fundraising efforts of our hometown (Johns Creek, GA) community. A total of $13251.90 was collectively raised in a variety of fundraising efforts.

Since this Team Tyler event was publicized (and I am eternally grateful for the group that was a part of this), the online contributions increased by $6,269.

I am very happy to report that with this $40,000+ raised online (and offline) AND with the $30,000 my family has paid out of pocket, we have successfully reached and exceeded anything that I every imagined this to be when I started this effort back in March.

To all of you, we are very grateful, and words can't express my appreciation to the monetary AND time sacrifice all of you have made. Although, the final bill has not been paid (and there are many more to come with upcoming treatments), I know that we will have excess (because that is what God has laid ahead for me - more to come on that later). I would like to announce the initial planning stages of the "Tyler Lillard Epilepsy FOUNDATION." This will be a non-profit foundation that will assist families in financial need of certain expenses during their hospital stay. I will tell you more in the near future as this project is in the initial planning stages.

We love you and continue to solicit your prayers, kind words, and all that you have offered to Tyler and my family.

Tina

 
 
 

Updated posted by Tina Martin 9 months ago

Good Morning, All - I am sorry I have not been on here in the last week. I have been working and trying to prepare for the upcoming school year. A quick update on Tyler: he has had an awesome week! He has been seizure free (still has tics, but I'll take them) this week. Also, he has been very happy and NOT TIRED at all. I am so pleased that this bout of medicine may be working and balancing out (fingers crossed). The doctors have even decided not to change the medicine for next week. That is phenomenal news (I'll take baby steps).

Also, we have the final numbers from the Team Tyler fundraiser (thankfully donations were still coming in after the fundraiser). I will be posting those numbers later today. Have a great week.

 
 
 
1 - 3 of 23 Updates
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Created by Tina Martin on February 28, 2013

Tyler's journey with epilepsy began 1 year ago (March 2012) when he had a series of grand mal seizures (unknowing at that time what these episodes were) on morning while getting ready for school. After many doctor/specialist appointments, emergency room visits, hospitalizations, medicine trials, misdiagnoses, tears, and lots of prayers, we found out Tyler has a brain tumor. We also found out that Tyler has 5 of the 6 types of seizures: grand mal, absence, myoclonic, clonic, and tonic.
At this point, the neurologists have treated the most severe type (grand mal) with medication. However, there is currently no medication that treats all 5 types of seizures at the same time. The doctors also do not want to give him medication that may counteract his current seizure medication AND his ADHD/autism medication (another story).
Tyler's condition is growing progressively worse (except for grand mal seizures), and he is beginning to show signs of brain deterioration (per the doctors).
We are in the process of trying to become seizure free - or get as close as possible. We were put on a waiting list at the Mayo Clinic 9 months ago, and I am happy to report that we have been taken off of this list and in the process of scheduling an appointment in the next couple of weeks/months. Tyler's neurologist, neurosurgeon, and neuropsychologist are confident that this is a step in the right direction to a boy who wants to continue in sports (see pictures), especially the sports he has been restricted from: bike riding, swimming, and football (his favorite).
With the grace and mercy of God and the help of all of our family and friends, we are requesting a donation to aid in the expenses of becoming patients at the Mayo Clinic. Your donation will help alleviate the burden of medical expenses (not covered by insurance), travel, lodging, etc. during this time.
I am truly a believer in more people helping a little to reach a goal than less people helping a lot. Tyler and I appreciate any donation that you can and will give at this time.
Finally, if you would prefer to make a donation by check, please make check out to:
Tyler Lillard Epilepsy Fundraiser and mail check to:
Tyler Lillard Epilepsy Fundraiser
Attn: Virgil E. Martin
PO Box 184
Colp, IL 62921-0184

*Tyler is a resident of Johns Creek, GA, and he is a 4th grader in the North Fulton County school district.
 
 
 
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Tyler you are such a funny and loving young man, you can't help but instantly love him. Tina you are a wonderful and strong woman and mother. I pray for Tyler's speedy recovery, full restoration of his body, and NO MORE SEIZURES In the NAME of Jesus!

posted by Edith Koine 13 months ago

This little soldier is one of my wrestlers and like a little brother to me. His sweet mother has treated me as her own and they are a great family! He is an inspiration to be around and fills surrounding faces with nothing but smiles.... Tyler deserves nothing but the best and a wonderful journey through life post surgery... This is a cause VERY MUCH worthy of your support!!!

posted by Brent Culbreth 13 months ago

Tyler is a GREAT kid! We have watched him grow up from an awesome kid to a handsome respectful young Man these past few years. Our families have spent many of long days together at wrestling matches exchanges life stories. Tyler really is a wonderful person.

posted by Brian Corday 13 months ago

1 - 3 of 3 Comments
 

Recent Donations (152)

$40,959 raised by 152 people in 13 months.

$50.00

Anonymous

8 months ago

 

$50.00

Cynthia Robinson

9 months ago

 
 

God bless; He has the answer. Blessings delayed are not blessings denied.

 

$13,251

Johns Creek Team Tyler Fundraiser (various community fundraisers)

9 months ago (Offline Donation)

 
 

This was a joint effort of a group of people from Tyler's school community (with the enlisted help of other people that have been in Tyler's life), including several swim teams, private donors, lemonade stands, and others donations collectively.

 

$36.00

Anonymous

9 months ago

 

$25.00

Anonymous

9 months ago

 

$25.00

Sidney Constien

9 months ago

 
 

$100.00

Charles Haywood

9 months ago

 
 

Best of luck on your journey.

 

$100.00

Jan Starnes

10 months ago

 
 

$100.00

Brian Clark

10 months ago

 
 

Good luck with everything - I found out your challenge in the Forsyth Herald article. We are praying for Tyler and your family and I have you on the prayer list at Johns Creek Baptist Church. God Bless, BC

 

$25.00

Anonymous

10 months ago

 

1-10 of 152 donations

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