Wow! We are super humbled and thankful for everyone that has donated in such a short time! I set this page up 7 days ago but hadn't posted until last night, so basically our amazing start happened within hours! Thank you!
We never expected that we would have to convert our van so quickly. Tyler has one of the latter stages of Juvenile Batten disease which puts his life span at late teens or early 20's. Most kids with the Juvenile form of Batten disease that Tyler has, are still walking on their own or with assistance even at the age of 18. Tyler who is almost 13 lost his ability to walk a year ago. He is progressing much further than others in many ways.
When we bought our van 2 years ago we never anticipated how quickly he would regress. We appreciate all that everyone is doing by donating, as well as spreading the word on your FB page , via email, with a coworker and/or a friend! Raising awareness of Batten disease is key as well. Only 500 children in the US have this cruel, rare disease; so any kind of funding is limited to none.
Thank you all for hopping on this journey with us. From the bottom of our hearts we are truly grateful! Royer, Heather, Tyler and RyanðŸ’™ðŸ’™ðŸ’™