This…this my friends... is called freedom and gratitude! These past few weeks have been a whirlwind for us. We had the opportunity through a local dealership in Elkhart to purchase a pre-owned 2012 ready- to- go MV-1 that is the first of its kind that is specifically made for people in wheelchairs. They just started making these locally in OUR town! We were able to purchase this with our GoFundMe donations and sell our van. It was a true blessing in disguise to have the opportunity to do this ~~THE DAY BEFORE SCHOOL STARTED! Talking about perfect timing. It was also perfect timing as Royer then travelled out of the country for business and I didn't have that usual sick feeling in my stomach, wondering how I was going to get Tyler to and from school. Or to be able to go anywhere for that matter, as he has regressed so much with Batten disease It's truly incredible how God's timing works. It was great to be able to buy something locally made and not worry about sending our van out for a month or two to be up-fitted with a wheelchair lift. Although this wasn't what we originally had in mind; this definitely made the most sense in many aspects.
I took the kiddos out to the store BY MYSELF for the first time in over a year without worries. It was amazing! Tyler was busy playing with his new toy car to smile, lol. But Ryan's smile shows the look of relief for all of us! We know that someday we will pass this vehicle down to another family in our community that will need it. Paying it forward; just as ALL of you have for us! A HUGE thank you to each and everyone of you who has changed our lives by making our lives a lot less stressful. From kids giving their change from their piggy banks to asking for donations for Tyler instead of birthday presents. We are humbled by how much Tyler has touched other children's lives and knowing how these children will go on touching other children's lives as well. Thank you also to Drive & Shine who put on an amazing car wash fundraiser for us. It was an amazing day filled with TEAM TYLER love and support everywhere! Our friends and family spent the day having a blast! Also to The School City of Mishawaka who did so many fundraisers to help us reach our goal; these kids from Kinder -12th grade have hearts of gold for Tyler! Also to our MBUSA family; you have been such an amazing support of encouragement, love and giving…we love you! And as always ALL of TEAM TYLER~
With love and gratitude,
Royer, Heather, Tyler and Ryan
WOW! Does time ever fly! I cannot believe that we are halfway through summer! But then again, we have had a lot of fun visitors, Royer has been busy traveling and Ryan, Tyler and I have been busy just.... Being! Our days are definitely full as Tyler has regressed and I have been busy trying to get our insurance company to understand that when my surgeon says I cannot lift for anything for 12 weeks, after a much needed tendon and ligament surgery on my arm....that includes not lifting Tyler who is 145 lbs+. It's been tough, but we have been super blessed by your amazing support as our medical bills are starting over and the lift for our van is a necessity. We truly appreciate all of your love, support and prayers! We hope you are all having an amazing summer!!! With love, Royer, Heather, Tyler and Ryan
Live has been "crazy; busy" as things change daily with Tyler. That said, we are so blessed for all of you that are traveling this journey with us. As Tyler said today about people in general, "They count on Tyler Allman".... Yes buddy, yes we
Thank you to EVERYONE for your heartfelt words and generous donations. I am trying to thank everyone from the past few days personally, but it isn't letting me. I will try again tomorrow! So...THANK YOU!!!
Wow!! The kiddos at Hums school (where Tyler goes to school) brought in their change from their piggy banks for ONLY ONE WEEK and raised $1,667.76 for Tyler's wheelchair lift! ðŸ’™ Is that not truly amazing?! These kids see Tyler's daily struggles and most of them have known Tyler back when he would run, play and do homework with them. They want to do everything they can do to help him. God Bless these children and their huge hearts! They are truly Paying It Forward!
WE LOVE YOU HUMS FAMILY!
Royer, Heather, Tyler and Ryan ðŸ’™ðŸ’™ðŸ’™ðŸ’™
We are truly thankful for all of you that have donated and continue to share our story! We are at 50% of our goal, which is AMAZING!!! We had our local news channel track us down this week and do an unexpected story on Tyler. We are so grateful for the media that has been following Tyler's story since he was diagnosed with Batten disease 5 years ago. We are continuing our mission to raise funds and awareness. All Notre Dame Federal Credit Union's are accepting donations under " TEAM TYLER" for those that have asked. Please watch our video to learn more about Batten disease and what a horrible disease this is. Tyler's attitude is what keeps us going. There is always a smile on his face. He is our hero.
Thank you and God Bless.
Love, Royer, Heather, Tyler and Ryan
Oh my gosh! We have reached 10K....so exciting! We are back on our mission after being sick for a week. We thank everyone that continues to share our story on FB and in all the ways that you do. Tyler is gaining weight and becoming a strong young man while I on the other hand am having tough times with my arms and wrists from lifting Tyler...he's almost too heavy for me. This wheelchair lift will be such an amazing blessing to us in so many ways. Here are a few pictures of Royer picking Tyler up in a cradled position when he transfers him wherever we go. It's very hard on him as well, as Tyler is growing like a weed and weighs about 145 lbs and cannot assist us. Please share our GoFundMe campaign on your pages if you would like and also help spread the word about Batten disease! Thank you!
Love and Hugs,
Royer, Heather, Tyler and Ryan
Tyler once was just like any other child. He loved playing baseball, swimming in a pool and doing just about anything. Then at age 9 Tyler was diagnosed with the cruel and terminal Juvenile Batten disease. Tyler is now blind, suffers from seizures and has lost most of his fine and gross motor skills. He is now wheelchair bound. It has become increasingly difficult to lift him in and out of our van and usually takes two people. Much of the time I am the only one helping him as my husband travels frequently. One slip could be catastrophic for any of us. We need to convert our current van into a wheelchair accessible one. Tyler is rapidly growing and at 5'9" and 140lbs he unfortunately is of no assistance in transferring him which adds even more weight for us to lift. Tyler is almost 13 and at the stage in this disease where we need a lot of medical equipment to assist him with everything including his ADLS, as well as a Hoyer Lift, new wheelchair, a stander, etc. We need to convert our van and make it handicap accessible to transport him. The basic/standard conversion quote we received was $25,790. The expenses are starting to incur but we will do everything we can to make sure Tyler has the best quality of what he has left of his life. We want to be able to take him wherever we go! First and for most we need to ensure Tyler's safety; as well as not doing any further damages to our own bodies, as Tyler relies on us for many more physical daily tasks. We thank you for your consideration and your support as we try to make all of our lives as safe as possible for Tyler. They WILL NOT start converting our van until it is paid in full; which could take awhile. Unfortunately time is NOT on Tyler' side. Please share with whomever you can. Learn more about Batten disease athttp://www.teamtylerallman.com Thank you, God Bless and go TEAM TYLER!
Glad to help this young man! :) We are from Houston and know the Herndon family but just happen to be vacationing in Culver, IN right now while our oldest daughter attends the Military Academy Camp. We were just in South Bend a few days ago! Such a small world. Please be blessed and know people care about what you are going through....