Aeidan's quest for a safe, therapeutic p...

Aeidan’s first seizure was when he was 3 years old. One year later he was diagnosed with Lennox-Gastaut Syndrome, the most rare form of Epilepsy that plagues the body with countless seizures, progressive degeneration of the body, along with other serious problems. Our sweet boy is now 8 years old. As of now, his IQ is at that of an 18 mo old, has limited mobility and vocabulary, and has a list of other medical concerns which contribute to his list of 16 medications. Aeidan can go from laughing and playing with his puzzles to being unresponsive and barely breathing in a matter of seconds. Out of all these issues, the problem that plagues him most is not being able to go outside or play with other children—let alone his 2 sisters. His severe sensory issues prevent him from being able to go outside unless it is cloudy. In order for him to remain somewhat stable, we limit visitors and keep his home environment cool, dark and quiet.  Studies show this disorder advances quickly, causing life-threatening problems as he grows older. Life expectancy depends on the severity of these issues, which is rarely seen beyond the mid-20’s. At this time, there is no known cure for this debilitating disorder. www.lgsfoundation.org