Help get Tim to Portland specialist

Timothy was born with Micrognathism syndrome which is a underdevolped chin so his tounge is to big for the smaller lower jaw falls back in his throat and hampers his breathing and its part of his  Arthrogryposis Mutiplex Congenita syndrome which is a rare congenital disorder that is characterized by multiple joint contractures and includes muscle weakness and fibrosis. It is a non-progressive disease. Due to his low muscle tone through out his body he is unable to swallow so he is fed by a mickey-button through his abdominal wall into the stomach.
Without being able to swallow makes his acid reflux and any upper body secretions hard for him to handle at times and we have to suction him or he can choke or aspirate into his lungs and cause phenomena. He has physical therapy daily and hwe travel to Portland at least every 6 months for Neurology G in pulmonary appointments Timothy has limited mobility of his legs from his knees to his feet he will be in a kid kart which is a smaller version of a wheelchair as he's too small for a actual wheelchair. everyday is a challenge for him which he defeats in small ways we are very proud of our boy and God bless you all and thank your phone Timothy