Eli Scott was born on January 8th, 2013, after 5 weeks of staying in the womb without amniotic fluid and with a very rare lung disease called Pulmonary Interstitial Glycogenisis (P.I.G.).
Eli entered the world at 3lbs 15oz, gasping for air so desperately his ribs caved in and he turned blue. The hospital staff immediately intubated him and put him on a ventilator. Eli at 2 months
(click the hyperlink to the left to view video)
After 23 months in the NICU, filled with constant struggles and uncertainty, Eli is still fully dependant on a ventilator that is set at the highest settings, higher than Texas Children's has ever had the ventilator set. Despite these massive pressures, Eli has been able to make it this far.
How to Follow Along Our Journey
We have created a blog page and social media pages dedicated to updating everyone on Eli's progress and the amazing moments of Eli spending every day with his Mommy.
Website/Blog Posts: www.savingeli.wordpress.com
Facebook Page: www.facebook.com/
Email Address: email@example.comHow We Are Going to Save Eli's Life
We are moving Eli from the NICU to the PCU (progressive care unit) in January. Eli will have his own hospital room in the PCU that will have a private bathroom/shower and fold out bed for Mom.
Once we are settled into the PCU, we are going to work to slowly wean Eli's ventilator pressures, over the course of a year.
Eli will be able to handle vent changes better because he feels safer with his Mom and I will be watching him so closely that I can see warnings signs before he starts to spiral. I will also be able to prevent any uneccessary episodes from happening because of disconnections.
In addition to helping Eli's lungs heal, I can help him with all of his developments, working with him on Occupational, Physical, Speech and Music Therapies. Having a consistant person that he trusts will allow him to learn more easily.If we are successful...
Eli will wean his vent pressures and be able to transfer to a home ventilator, and then he can come home. Over time, he will get stronger and require less and less support, eventually coming off of all equipment and living a normal life!