SIGN A PETITION TO HELP...
Yes, another much needed update. Please, I am getting sicker by the day. I need help desperately. So do many others and my heart breaks everyday that we are being ignored and allowed to die if we are not fortunate enough to have an over abundance of money to pay for life-saving treatment. Even if those of us who had a savings, equity in our homes, credit cards, some assets, retirement plans, and anything else I may be missing because we worked very hard, our entire financial resources have been expended trying to pay for treatment for this disease which insurance companies refuse to pay for based on current Infectious Disease Society of America (IDSA) guidelines. It is completely devastating to watch everything you have worked so hard for to obtain over many years, to diminish down to nothing in a matter of a few months to a few years depending on your financial status. Many lose their homes and now my family is in danger of losing our home.
The reason the disease is so costly to treat in the late stages, is because it may have spread to the brain, nervous system and essentially any other system in the body like the endocrine system, gastrointestinal system, and the cardiovascular system, for example. The disease at this stage requires long-term treatment with the most successful treatment being the combination of traditional medicine and integrative medicine. Unfortunately the reasons why the disease often progresses to these late stages is because many times people are not aware they are bitten, the routine blood test for Lyme Disease is 60% inaccurate and the disease mimics so many other diseases, that it is very difficult for a physician who is not thoroughly educated about Lyme Disease to properly diagnose a patient. So, patients go without a diagnosis for their disease or with a misdiagnosis for many years before discovering he or she has Lyme Disease. In my case, I was misdiagnosed with Fibromyalgia and believed that this was what I had, until my health declined so much that I went on and did further research on my overwhelming symptoms and all correlated to late stage or advanced Lyme Disease. Just to add, about 50% of individuals diagnosed with Fibromyalgia actually have Lyme Disease. All Fibromyalgia refers to is muscle pain which is really a symptom of a disease.
By the time a doctor diagnosed me with late stage Lyme Disease, 2 years had already gone by allowing the disease which is caused by bacteria and in my case several different kinds of bacteria known as co-infections, to ravage my body. When I refer to co-infections, I am referring to other diseases the tick carries that can be transmitted to a human all in 1 single bite. I have all the diseases. The more Tick-Borne Diseases you have, the generally more ill you are and the more difficult it is to treat.
An enormous change needs to happen to save the lives of the many already suffering from the advanced state of this illness and to prevent others from becoming ill from a disease which could be prevented or treated effectively by being caught early. Lyme Disease reached epidemic proportions and is only expected to continue to get worse. Please consider signing this petition to make the Infectious Disease Society of America (IDSA) change their guidelines which are outdated in order to require insurance companies to pay for treatment for Advanced/Chronic Lyme Disease. This change will save the lives of many and allow doctors to make treatment decisions, not insurance companies. It would also put a stop to doctors who are trying to treat this complex disease from getting their licenses to practice suspended or revoked by going against IDSA guidelines in a much needed attempt to put the lives of their patients first. Please sign this petition by February 10, 2013 before more people die...
Thank you and any contributions to my fund are welcomed and appreciated more than any words could describe.
My Warmest Regards,