Ryans wheelchair/smart drive fund
Donation protected
my fiance ryan suffers from a rare neuromuscular skeletal wasting disease
Ryan is in a wheelchair full time as he can no longer walk, but this chair is heavy and poorly fitted.
Ryan needs a lighter and better fitting chair that meets his needs so he can be more independent and comfortable as he is in it for upto 18 hrs straight.
Due to Ryans disease he also need a little help getting around as his condition affects all the muscles and joints in his body some of his muscles in his arms have wasted away and now no longer work and some of his joints Have restricted moventment making it hard for Ryan to propel himself around. Hills and slight gradients are mostly impossible for Ryan and to do the things that most of us take for granted like going to the shop or taking your child to and from school these things are currently impossible for Ryan to do too.
through countless hrs of Internet searching wanting to make his life better Ryan found a machine that will help him get around with minimal effort so he can regain his independence and take part in family life that machine is called a Smart Drive
A Smart Drive is a motor that connects to the axel of a wheelchair and aids the user to negotiate hills gradients and cambers with minimal effort .
A few weeks ago Ryan had the opportunity thanks to Draft Wheelchairs to try out a Smart Drive for a few days. Over the few days he had it Ryan tested it out on various types of ground (grass concrete etc) hills gradients and any other way he could find to see if this would help him . The difference it made to his life was amazing for the first time ever Ryan was able to take his daughter to school, go with family to the local park and be completely independent, he was no longer restricted by the weakness of his condition which was amazing to see, without the Smart Drive Ryans only able to go out once a week to hydrotherapy. Without these new pieces of equipment Ryan is left totally dependant on others and is unable to take part in a normal family life .
Our local wheelchair services have agreed to give Ryan a voucher towards the basic cost of a new lighter wheelchair which is a Quickie helium but we need to raise the rest of the money to make the chair meet all of Ryans needs.
A Smart Drive costs around £4000 we have been able to get partial funding for for it but we need help with raising the rest of the money our total target is £2000 please donate what u can to help us give Ryan his independence back xx
From Ryan
Hi I'm Ryan I was born with what we now know to be a progressive neuromuscular skeletal wasting disease it's under the umbrella of muscular dystrophy but is genetically connected and truly unique. This has caused many hurdles, obstacles and lack of help over the years due to my condition having no official name lead to lengthy battles, discussions and decision making not favouring me but now ive got to the point where I desperately need help to get my desired outcome before its too late for me to live as independently as I can with my family as I know I can for the next 5-10yrs. The answer to my problems is to get one of the lightest everyday heavy use Wheelchairs with the lightest components to help me get in and out of my car more easily and independently. This is the Quickie Helium lightweight wheelchair. This chair will aid me to propel easier it will have brakes out of the way which will prevent injury to my thumbs, helping me to have a longer push which along with better lighter wheels and hand rims will iradicate/reduce my nerve damage caused by my ill fitting chair at the moment. This would mean I wouldn't be house bound for 6 days a week only being able to go to hydrotherapy once a week because my chair is too heavy and painful to transfer into my car. Also with the added aid of the Smart Drive which would really change my life and that of my family. It would mean I can once again move further than 50 yards without discomfort or weakness meaning I can go almost anywhere on any gradient following my family where ever we decide and at last having the ability to pick my daughter up from school or take her to the park or for walks or even keeping up with her on a push bike ! I could get back to enjoying things I did for myself like play wheelchair sport again It would open up a whole bunch of exciting possibilities for me ! This isnt a whim or desperate decision I know after demos and a couple of years of research into these products that they will certainly meet my needs and requirements. In truth I ruled a Helium and smart drive out until the misery I've had over the last 18 months, it's been truly rotten and sole destroying to sit wasting away because of inadequate equipment at the age of 34. It's not right being unable to to the most normal of things it's amazing what staring down an abyss will do to you which is why I'm willing to fight one last time to try to do everything I can to make this happen fixing and creating a much more healthier lifestyle. A power chair may seem a better idea to some but it's amazing what further changes to my life and that of my families would have to follow from finding a new home to being unable to independently get out or drive a car .....so no for as long as I can wheel ill keep wheeling !
My neuromuscular skeletal wasting disease involves u guessed it my brain, muscles and bones well specifically joints. Most muscles in my body especially around the skeletal system are compromised in some way, I've many muscles that are dormant to the point they look like they are missing I have some that are underdeveloped and some that are over developed and all of them are receiving mixed messages from my brain and are progressively wasting. On the bones side many if not all of my joints Have varying contractures due to too much collagen which is effectively cartledge and bone filly up my joints restricting movement. For instance my most noticable ones are my arms they've been locked at a 45 degree angle since I was a baby leaving me u able to straighten them over the last ten years my legs started to follow suit along with other areas of my body meaning I'm no longer able to walk. On top of all this my brain sends mixed signals causing spasms tightness cramps and nerve damage.
My condition is that rare and unique there's no prognosis treatments or cure so while I know my future is uncertain and a little scary I want to live my life as free and independently while I can
Thank you for taking the time to read this on behalf of all of my family I thank u
Ryan
Ryan is in a wheelchair full time as he can no longer walk, but this chair is heavy and poorly fitted.
Ryan needs a lighter and better fitting chair that meets his needs so he can be more independent and comfortable as he is in it for upto 18 hrs straight.
Due to Ryans disease he also need a little help getting around as his condition affects all the muscles and joints in his body some of his muscles in his arms have wasted away and now no longer work and some of his joints Have restricted moventment making it hard for Ryan to propel himself around. Hills and slight gradients are mostly impossible for Ryan and to do the things that most of us take for granted like going to the shop or taking your child to and from school these things are currently impossible for Ryan to do too.
through countless hrs of Internet searching wanting to make his life better Ryan found a machine that will help him get around with minimal effort so he can regain his independence and take part in family life that machine is called a Smart Drive
A Smart Drive is a motor that connects to the axel of a wheelchair and aids the user to negotiate hills gradients and cambers with minimal effort .
A few weeks ago Ryan had the opportunity thanks to Draft Wheelchairs to try out a Smart Drive for a few days. Over the few days he had it Ryan tested it out on various types of ground (grass concrete etc) hills gradients and any other way he could find to see if this would help him . The difference it made to his life was amazing for the first time ever Ryan was able to take his daughter to school, go with family to the local park and be completely independent, he was no longer restricted by the weakness of his condition which was amazing to see, without the Smart Drive Ryans only able to go out once a week to hydrotherapy. Without these new pieces of equipment Ryan is left totally dependant on others and is unable to take part in a normal family life .
Our local wheelchair services have agreed to give Ryan a voucher towards the basic cost of a new lighter wheelchair which is a Quickie helium but we need to raise the rest of the money to make the chair meet all of Ryans needs.
A Smart Drive costs around £4000 we have been able to get partial funding for for it but we need help with raising the rest of the money our total target is £2000 please donate what u can to help us give Ryan his independence back xx
From Ryan
Hi I'm Ryan I was born with what we now know to be a progressive neuromuscular skeletal wasting disease it's under the umbrella of muscular dystrophy but is genetically connected and truly unique. This has caused many hurdles, obstacles and lack of help over the years due to my condition having no official name lead to lengthy battles, discussions and decision making not favouring me but now ive got to the point where I desperately need help to get my desired outcome before its too late for me to live as independently as I can with my family as I know I can for the next 5-10yrs. The answer to my problems is to get one of the lightest everyday heavy use Wheelchairs with the lightest components to help me get in and out of my car more easily and independently. This is the Quickie Helium lightweight wheelchair. This chair will aid me to propel easier it will have brakes out of the way which will prevent injury to my thumbs, helping me to have a longer push which along with better lighter wheels and hand rims will iradicate/reduce my nerve damage caused by my ill fitting chair at the moment. This would mean I wouldn't be house bound for 6 days a week only being able to go to hydrotherapy once a week because my chair is too heavy and painful to transfer into my car. Also with the added aid of the Smart Drive which would really change my life and that of my family. It would mean I can once again move further than 50 yards without discomfort or weakness meaning I can go almost anywhere on any gradient following my family where ever we decide and at last having the ability to pick my daughter up from school or take her to the park or for walks or even keeping up with her on a push bike ! I could get back to enjoying things I did for myself like play wheelchair sport again It would open up a whole bunch of exciting possibilities for me ! This isnt a whim or desperate decision I know after demos and a couple of years of research into these products that they will certainly meet my needs and requirements. In truth I ruled a Helium and smart drive out until the misery I've had over the last 18 months, it's been truly rotten and sole destroying to sit wasting away because of inadequate equipment at the age of 34. It's not right being unable to to the most normal of things it's amazing what staring down an abyss will do to you which is why I'm willing to fight one last time to try to do everything I can to make this happen fixing and creating a much more healthier lifestyle. A power chair may seem a better idea to some but it's amazing what further changes to my life and that of my families would have to follow from finding a new home to being unable to independently get out or drive a car .....so no for as long as I can wheel ill keep wheeling !
My neuromuscular skeletal wasting disease involves u guessed it my brain, muscles and bones well specifically joints. Most muscles in my body especially around the skeletal system are compromised in some way, I've many muscles that are dormant to the point they look like they are missing I have some that are underdeveloped and some that are over developed and all of them are receiving mixed messages from my brain and are progressively wasting. On the bones side many if not all of my joints Have varying contractures due to too much collagen which is effectively cartledge and bone filly up my joints restricting movement. For instance my most noticable ones are my arms they've been locked at a 45 degree angle since I was a baby leaving me u able to straighten them over the last ten years my legs started to follow suit along with other areas of my body meaning I'm no longer able to walk. On top of all this my brain sends mixed signals causing spasms tightness cramps and nerve damage.
My condition is that rare and unique there's no prognosis treatments or cure so while I know my future is uncertain and a little scary I want to live my life as free and independently while I can
Thank you for taking the time to read this on behalf of all of my family I thank u
Ryan
Organizer
Mia Westparsons
Organizer
