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Pediatric CVA Stroke Survivor

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My name is Emmanuel and I'm 2 years old.  When I was 4 months old I came to live with my Nana.  We spent the entire summer together and had so much fun! After four months with at my Nana's, I was sent back home in October to my Momma.  After I was home, between the age of 8 - 11 months old, I fell ill and the hospital misdiagnosed my symptoms as a severe flu.

Right before my 1st Birthday, I came back to live with my Nana - She's one smart cookie!  Right away she noticed some issues with me that didn't seem right and took me to the doctors.  My left hand doesn't function properly and my leg doesn't always work right and gives me balance issues.  I walk into walls and fall down a lot for no reason, I also cannot talk.

After months of going through tests to find out why my motor functions where not working properly my neurologist issued a MRI.  We went down to the Phoenix Children's Hospital and I had my MRI, afterwards those nice nurses gave me this awesome plush Dog!  We went home and the following morning my doctor called my Nana right away.

The neurologist informed my Nana that I suffered a CVA Stroke that damaged 20% of my right brain and which has caused the left side of my body to have cerebral palsy, hemiplegic & hemiparesis.  Since January I have been in and out of doctors and therapist. I have a speech therapist, a physical & occupational therapist and a food therapist.

My Nana has a LOT on her hands and is working only a part-time job of 20 - 25 hours a week, so she can take me to all my doctors and therapist so they can help me get better!

My speech therapist informed my Nana that I need to learn to communicate prior to starting school in a few months and stated that we need to learn sign language so I can learn to communicate with everyone.  It will help my visual/audio skill as well as my motor skills by having to use my hands.  There are a lot of therapeutic equipment and learning disability programs I need as well that is not covered under my insurance.

Our Goals:  To be able to obtain the technology equipment & programs and therapeutic equipment that is currently necessary

Emmanuel will have to undergo a lifetime of speech, physical & occupational therapy.  The damage that occurred to his right brain and left side of the body is irreversible.  He may never be able to speak properly and with the lack of communication & abilities, Emmanuel has a lot of frustration which has caused behavioral issues.

Due to his age we cannot determine the extent of the damage has caused to his learning abilities, so early intervention has placed him on a waiting list to start school.  Please help save Emmanuel so he can be the little boy that will one day pick up that baseball bat and soar a home run!

Thank you

Organiser

Alicia Weishaar
Organiser
New Castle, IN

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