Someone just asked me how much I actually spend on alternative medical care. It's a fair question, and I've posted itemized statements on my blog.
To summarize, I spent more than $6,800 in 2012 and have documented more than $5,200 in 2013, or $12,000 in the last two years. There are some expenses I have failed to keep track of.
Oh, and I just found out that I'm expected to pay for the first $2,850 worth of darunavir this year, despite paying for a drug plan and being eligible for assistance from the Ryan White AIDS program.
This GoFundMe goal doesn't come close to paying what I've spent, and is not even a year's worth of expected expenses.
Thanks for caring!
I've recently posted an update about my latest labs and current strategy on my blog: http://tinyurl.com/darunavir.
I have updated a lot of medical labs and summaries, as well as financial accounting summaries, and those can be found by clicking on the "attachments" tab at the top of every blog page. My total out-of-pocket expenses were more than $7,000 last year, and have already exceeded $5,000 this year.
After a summer break from blogging, I intend to catch up on a lot of reporting the next few weeks and months.
Thanks for all the love and support!
Even people who question my sanity are showing their support!
I love it. You can read the whole story at my blog: resistanceisfruitful.com.
A big thank you to everyone who has contributed so far. Not just financial support, but words of encouragement, too!
I am continuing to have testing and analyses done this week. The Riordan Clinic is performing tests on nutritional levels, amino acid panel, redox and inflammation. I'll be having blood drawn for standard "HIV/AIDS" markers this week, peeing into a cup for Organic Acid Tests, and trying to find someone to draw and centrifuge blood for a specialty lab to determine nagalase levels.
It is only because of supporters like you that I have been able to have some of these important tests done.
I hope to have all the various test results back, and at least a strong sense of treatment options by the end of May. I hope to be able to make a decision regarding quitting the ARV drugs in a couple of weeks.
Be sure to subscribe to my blog, resistanceisfruitful.com, for more updated information, including all test results.
Happy Valentines Day, everyone.
I will be spending today, and possibly tomorrow, at the Riordan Clinic, discussing a plan of action for the rest of the year, including getting off of the ARV drugs again.
I am taking with me a thick stack of research documents from medical centers in Germany, describing a therapy being used there that fits very closely with what we have been doing the last few years, but adds some new pieces.
It's called Cell Symbiosis Therapy, and deals primarily with supporting and repairing cellular mitochondrial damage, caused by antibiotics and antiretrovirals, as well as environmental toxins and other factors, and rebalancing what is called the Th1/Th2 switch of my immune system.
First step will be ordering a bunch of tests. I am committing to getting started... TODAY!
As a person who is Affected with both a positive HIV-antibody test result, and serious health issues, I have spent more than five years exploring less toxic and less invasive ways to be healthy, and to reduce my dependency on our Pharmaceutical-driven medical system. These alternative tests and protocols are not covered by any insurance, and even though they are typically less expensive than traditional medicine, the simple fact is: I cannot afford them on my fixed income.
We spend thousands of dollars every year for insurance premiums to cover the costs of traditional medical care and hospitalizations for me. Some have referred to this American system as "disease management", but I am seeking "health care", and that usually means I have to go outside of the mainstream medical system.
My partner, Michael, who is 63-years-old, continues to work, so that we can make ends meet. We are not destitute and we do not starve, but we do not live lavishly, either, and we have been drawing heavily on retirement reserves the last several years. At the rate we are going, we will be broke before either of us reaches old age.
Please consider helping me as I embark on yet another phase of my journey: successfully quitting the pharmaceutical AIDS drugs for the third time since 1998. Is it possible that this could be the last time?
There is new research and options that make me hopeful. There are nutritional, oxidative and other non-traditional markers that need to be monitored. I would also like to be able to resume some of the interventional care and specialized supplementation that have proven helpful in the past. Very few of these expenses are covered by my medical insurance.
I do not know how much all of this will actually cost, and the goal I have listed above is admittedly a conservative one, based on past experience. In addition to actual medical expenses, I must also pay for travel expenses. The orthomolecular clinic I attend is a four hour drive from home, and sometimes it makes more sense to pay for overnight lodging, than to make multiple trips.
This is not the first time that I have asked for financial assistance, and it will probably not be the last. The past generosity of friends, and even strangers, encourages me to put my need in the public domain.
Whether you can contribute financially or not, I encourage you to follow my journey at my blog
, where I will continue to document the results of these experiments and experiences so others might also benefit from them.
[Note: For those who would prefer to make a tax-deductible, major donation of $1,000 or more, designated for my care, please contact me for more details.]