Please help Tina and her Family
Donation protected
Tina was born with a very rare disorder called Situs Inversus (mirrored organ placement) which also includes a reversed heart, and a missing heart chamber. At age 4, she developed Kartagener Syndrome (do to her situs inversus), which has killed all the cilia in her body and is now attacking her body much like Cystic Fibrosis, which has caused her to have life threatening lung and sinus infections (including pseudomonas!), immune disorders, ovarian cancer (surgery was a success!) COPD (she’s never smoked a day in her life), severe bronchiectasis, and several other serious health conditions as a result. She uses an airway clearance vest and breathing treatments daily and also frequent hospitalizations with very powerful antibiotics fed through a PICC line to keep the infections under control.
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Tina is the mother of 3 beautiful babies, one of which was born with Spina Bifida and is both mentally and physically disabled, and another son who is Autistic. She’s such a great Mommy, and tries hard to stay healthy so she can be around for her babies. This past year, her condition has taken a very scary turn for the worse. Her lung functions are very low, and if she was a Cystic Fibrosis patient, she’d be put on a lung donor recipients list soon, but because of her reversed organ placement, her doctor isn’t hopeful that this will even be an option for Tina…But she’s recently been given a tiny bit of hope, but that hope came with a hefty price tag…this is why I created a Go Fund Me account for Tina!
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I’m asking you today to PLEASE help my best friend. She isn’t the type of person to ask for help…ever! She’s kind and loving, and her and her husband are always the first to give to others who are in need, but now she’s very sick and desperately needs help. She’s the most positive person I know, but lately I’ve seen fear take over and dull that spark in her eyes. She’s scared of losing her life…we all are! Please help Tina today! No donation is too small, and every donation is GREATLY APPRECIATED!! If you can’t give, please at least say a prayer for Tina and her family. Prayers are free, and soooo very much needed and appreciated! If you’d like to follow Tina’s story, I encourage you please like her facebook page… https://www.facebook.com/PrayersForTina.Bryson
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If you would like to learn more about Tina’s story and why her family needs your help, please continue reading:
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National Jewish, (a highly rated infections disease research center, with specialists who know about Tina’s disease!) accepted her to come to their center for testing, which will include a more in depth biopsy than her specialist in Idaho was able to do. This was AMAZING news…until they learned that her insurance will only pay for the medical staff and testing, but they were on their own to pay for travel, hotel costs, food, etc. I immediately created this Go Fund Me account in hopes that I could find a few caring people to help them out, and within 24 hours, thanks to the help of some amazing friends and complete strangers, Tina and Brandon were able to purchase their airfare, hotel reservations and rental car which totaled a whopping $2,300!!!….YES, THEY ARE GOING TO DENVER!!! We can’t thank you all enough for this amazing gift!!
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So they’ve raised enough money…why am I keeping this funding page open, and asking for the help to keep flowing.
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Tina’s had the Kartagener Syndrome since the age of 4, but was never hospitalized for infections or complications until they moved to Idaho almost 4 years ago, and it’s growing rapidly. This disease is very rare, and the only specialist here in Idaho, just can’t figure out why she’s progressing so quickly! Her lung capacity is at 46%, and her doctor has come straight out and said “I don’t know what else to do for you Tina, nothing is working!” Tina has been advised by her doctor to move out of Idaho and move to Arizona ASAP where it’s warmer and drier, and seek the help from a highly recommended specialist in Tucson. They also found some amazing info about the hospital in Tucson, and recourses for Tina, as well as recourses for their disabled children they didn’t even know existed! Tina’s doc has confirmed that Arizona would definitely be a great move for them, so they took a trip there to check things out. For 3 days straight, Tina felt relief! We are all convinced that this is going to be the best move for Tina and her family, and her boys will get the care and resources they need as well! They’ve even secured a home there where their son can move around freely in his wheelchair (believe it or not, that’s not easy to find!), and they’ve already been in contact with doctors who are getting the paperwork started!
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Sounds great!!... BUT the move would cost them between 5 to 7 thousand, plus her husband’s downtime while he secures a steady income! It seems that every time they get amazing news, they also get hit with a HUGE price tag that they just can’t meet….this is where you can help them get the care and hope they desperately need…Tina’s doctor here in Idaho has given up hope…we have not! Thank you!. Here is her facebook page,
http://www.facebook.com/PrayersForTina.Bryson
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Tina is the mother of 3 beautiful babies, one of which was born with Spina Bifida and is both mentally and physically disabled, and another son who is Autistic. She’s such a great Mommy, and tries hard to stay healthy so she can be around for her babies. This past year, her condition has taken a very scary turn for the worse. Her lung functions are very low, and if she was a Cystic Fibrosis patient, she’d be put on a lung donor recipients list soon, but because of her reversed organ placement, her doctor isn’t hopeful that this will even be an option for Tina…But she’s recently been given a tiny bit of hope, but that hope came with a hefty price tag…this is why I created a Go Fund Me account for Tina!
*
I’m asking you today to PLEASE help my best friend. She isn’t the type of person to ask for help…ever! She’s kind and loving, and her and her husband are always the first to give to others who are in need, but now she’s very sick and desperately needs help. She’s the most positive person I know, but lately I’ve seen fear take over and dull that spark in her eyes. She’s scared of losing her life…we all are! Please help Tina today! No donation is too small, and every donation is GREATLY APPRECIATED!! If you can’t give, please at least say a prayer for Tina and her family. Prayers are free, and soooo very much needed and appreciated! If you’d like to follow Tina’s story, I encourage you please like her facebook page… https://www.facebook.com/PrayersForTina.Bryson
*
If you would like to learn more about Tina’s story and why her family needs your help, please continue reading:
*
National Jewish, (a highly rated infections disease research center, with specialists who know about Tina’s disease!) accepted her to come to their center for testing, which will include a more in depth biopsy than her specialist in Idaho was able to do. This was AMAZING news…until they learned that her insurance will only pay for the medical staff and testing, but they were on their own to pay for travel, hotel costs, food, etc. I immediately created this Go Fund Me account in hopes that I could find a few caring people to help them out, and within 24 hours, thanks to the help of some amazing friends and complete strangers, Tina and Brandon were able to purchase their airfare, hotel reservations and rental car which totaled a whopping $2,300!!!….YES, THEY ARE GOING TO DENVER!!! We can’t thank you all enough for this amazing gift!!
*
So they’ve raised enough money…why am I keeping this funding page open, and asking for the help to keep flowing.
*
Tina’s had the Kartagener Syndrome since the age of 4, but was never hospitalized for infections or complications until they moved to Idaho almost 4 years ago, and it’s growing rapidly. This disease is very rare, and the only specialist here in Idaho, just can’t figure out why she’s progressing so quickly! Her lung capacity is at 46%, and her doctor has come straight out and said “I don’t know what else to do for you Tina, nothing is working!” Tina has been advised by her doctor to move out of Idaho and move to Arizona ASAP where it’s warmer and drier, and seek the help from a highly recommended specialist in Tucson. They also found some amazing info about the hospital in Tucson, and recourses for Tina, as well as recourses for their disabled children they didn’t even know existed! Tina’s doc has confirmed that Arizona would definitely be a great move for them, so they took a trip there to check things out. For 3 days straight, Tina felt relief! We are all convinced that this is going to be the best move for Tina and her family, and her boys will get the care and resources they need as well! They’ve even secured a home there where their son can move around freely in his wheelchair (believe it or not, that’s not easy to find!), and they’ve already been in contact with doctors who are getting the paperwork started!
*
Sounds great!!... BUT the move would cost them between 5 to 7 thousand, plus her husband’s downtime while he secures a steady income! It seems that every time they get amazing news, they also get hit with a HUGE price tag that they just can’t meet….this is where you can help them get the care and hope they desperately need…Tina’s doctor here in Idaho has given up hope…we have not! Thank you!. Here is her facebook page,
http://www.facebook.com/PrayersForTina.Bryson
Organizer
Stephanie S Meese
Organizer
Boise, ID
