Get Ivan Nebolsky treatment

Ivan is a very special 2 year old little boy that has an extremely rare disease called Alllen-Herndon-Dudley Syndrome. (AHDS) this effects his whole body, Ivan's brain is not developing correctly due to it, nor is his muscle/ nervous system. Ivan can't control his movements he is unable to do the simplest things in life like hold his head up. Ivan is the 26th person in the world documented to encounter this horrible condition. Ivan is becoming trapped in his own body. There is a potential treatment for this that has just been found in 2014 they have done one trial so far with great results with a drug called TRIAC. This drug is not available in the USA. It is only available in clinical trials in the Netherlands. The drug must be given early as possible in life to get good results this could possibly give Ivan a chance at a normal life. There is a trial coming soon in 2016 in the Netherlands it's a six year trial for him, our goal is to get Ivan the treatment he needs and deserves! Please be a part of this journey, this is something that we have a chance at treating not only for Ivan but for other families that have been affected if we can get Ivan to this trial and show the rest of the world this can work! Please don't just stand by and watch innocent children suffer when there is stuff we can do to help them we need this trail to be done. Like stated before, this is not just for Ivan but for all sorts of families possibly with the same condition we're in. Help Ivan get the treatment he needs and help get TRIAC approved. Thank you.


GOfundme request I add this information. 
I am Chuck Elliot from Amelia Ohio
I am Ivan's Nebolskys mothers Fiancé
we are raising the money to help Ivan get the medical treatment he needs. Traveling expenses to see specialist, living expenses, medical expenses that are unforeseen, etc. I will give Ivan's mother the funds by handing over the cash after withdrawing it since we see each other daily.