I would like to take this opportunity to thank everyone who donated and helped me to get the treatment. Thanks to Colorado passing a law to protect healthcare providers for trying experimental treatments for terminal patients, I was able to find a provider to administer it here, under the condition of anonymity. The side effects were really brutal and I'm still recovering, but some big things are already improving, and the things that were threatening my life are definitely better. I should continue to improve over the next couple of months, and I am indescribably grateful for all of your help and support.
We have finally heard back from a doctor in Florence, and the Day Hospital is equipped to do the procedure! This is a huge step forward, so please keep sharing the link and, let's get this viral so that we are ready to go when the details are all confirmed. Thank you all for your incredible support!
Otis just spent several hours contacting more health providers in Italy. Hopefully we'll have more information soon about where the treatment will take place and will be able to start travel arrangements!
Hey Everyone - Don't forget Otis still needs your help! He is at 34% of his goal, which is just amazing. When you donate, please remember to make it private so no one can spam you with details of their campaigns. http://www.gofundme.com/Otis-Quest-For-Life
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A message to those soliciting from others - please refer to can-spam guidelines when doing so. You may not be aware that your email account can be suspended, and charges brought against you if several people report you as a spammer. So, just don't do it.
All the generous donations have made a cure a real possibility, and you are all amazing! The Quest has now moved into phase 2 - purchasing a flight, and shopping for hospitals in Italy! Next week is going to be spent calling health professionals in Italy and speaking with the consulate, so please, if anyone has friends or relatives; connections of any kind, please get in touch with either Otis or myself through here or Facebook. Any leads are appreciated! Thanks again -
In Otis's words: "In 1996, I got a crippling nerve disease called RSD in my right leg following a routine knee surgery to repair a torn ligament. I was misdiagnosed for about four years until I lucked out and a doctor familiar with this obscure and difficult diagnosis joined my surgeon's practice. He observed me in the office one day in 2000 and suggested my doctor order a tri-phasic bone scan that came back positive for RSD. It has steadily and consistently gotten worse and spread throughout my body. Now it has spread to my abdomen and I constantly feel like I'm having a heart attack and struggle with eating. It has also had the unpleasant effect of giving me mini strokes. I am fortunate to have a caring doctor who is compassionate and listens to me, but she has done all she can. The nurse practitioner who manages my pain control medications is amazing but out of other options. This disease will kill me if something doesn't change in the near future. My best hope is a drug made by a small Italian pharmaceutical company and is unavailable as of yet in the US. It has been 100% successful for three years with one treatment series. I have to find a pracritioner and clinic, and raise enough money to get to and stay in Italy for two to three weeks."
I hope like hell you get there soon brother. After 13 yrs-coming on 14yrs., the amount of research devoted to this monster has been dismal--in the U.S. Other countries are becoming more progressive, and this treatment sounds like the best results of any treatment ever! How very exciting for "US"!
I hope the U.S. gets on board with this treatment option that is covered by insurance!!!
Peace, Love, and Happiness
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