Jenna and Mary Margaret's Special Needs.

 
Raised: $33,127.00
Goal: $25,000.00
 
 
 

Created by

Mike Sullivan

565 Friends

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We are BLESSED with three beautiful children. The oldest is Jenna, who is ten years old. Our middle child is Mary Margaret, who is six years old. And our youngest is Michael, who is four... more

 
 
 
 
 
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Updated posted by Mike Sullivan 2 months ago

01-30-2014 UPDATE: Blessings are coming!!! We haven't been able to make much construction progress since December due to the very cold and very wet weather. No worries, we are positive and patient. Our faith and hope is in the LORD. Every good thing comes from GOD. Every perfect gift is from HIM. Our blessings seem to only multiply the longer we wait on the LORD! Soon HE will bring beautiful weather to bless our project! GOD is so good + + +

Thank all y'all for the prayers, the shares, and the support!!!

LOVE, The Sullivan Family.

 

BLESSED + + +

 
 

Updated posted by Mike Sullivan 4 months ago

Merry Christmas to all!!! Our family has been so blessed by everyone's gifts. We are very thankful for the overwhelming kindness and love! We love all y'all!!!

 

MERRY CHRISTMAS FROM THE SULLIVAN FAMILY

 
 

Updated posted by Mike Sullivan 4 months ago

PRINCESS ROOM UPDATE 12-04-2013. We have repaired the foundation and finished the demolition. The dirt work has begun for the new slab. We are so excited!!! Our family has been blessed by so many people and we are so very thankful!!! We LOVE everyone!!! GOD IS GOOD!!!

LOVE, Mike, Kelly, Jenna, Mary Margaret and Michael.

 

MAKING PROGRESS!!!

 
 
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Created by Mike Sullivan on January 20, 2013

We are BLESSED with three beautiful children. The oldest is Jenna, who is ten years old. Our middle child is Mary Margaret, who is six years old. And our youngest is Michael, who is four. God has been so good to us. Our son Michael is a healthy little boy but both Jenna and Mary Margaret have very serious medical conditions.
At three years old Jenna was diagnosed with a tumor in her left eye. The medical name for it is a Hamartoma. It’s a benign tumor. The doctors told us that she would not have any sight in her left eye because the tumor had caused too much damage to her retina and optic nerve. They said it would be too risky to remove it but that it shouldn’t get any bigger or cause her any future problems other than her not being able to see from the eye. Well, it did cause future problems. Recently  we noticed that her left eye, which was blue, was turning green and that her pupil was extremely dilated and not centered. We took her to the eye doctor and discovered that blood vessels growing off of the tumor had done more major damage to her eye. Her retina was totally detached and her eye was under extreme pressure. They stuck two needles in her eye that day, one to relieve the pressure and the other to administer medicine. She was so brave. A week later she had vitrectomy surgery to try to save the eye. It’s been three months and hundreds of eye drops later and her eye still looks rough. Now the doctors have prepared us for the possibility that she may not only lose the sight in her eye, but that she may lose her eye completely and have to get a prosthetic one. They have told us that it is more than likely she will need more surgeries in the future.
A short time after first learning about the tumor in Jenna’s eye, we learned through a neonatal specialist that our unborn daughter, Mary Margaret, would be born with some serious medical complications. While still in the womb, the doctor diagnosed her with a congenital anomaly called a Dandy Walker Malformation on her brain. He also said that she had Agenesis of the Corpus Callosum (the absence of the center part of her brain that connects the left and right hemispheres). We were devastated. We prayed to God, and put all of our faith and trust in Him to bring the good that only He can out of our situation. And He did just that!!! On June 9th, 2006, after 30 hours of labor, Mary Margaret Sullivan was born. She came into this world fighting for her life and has not stopped since. She has almost died six times in her short life. She has ridden in two Life Flight helicopters and six ambulances. Mary Margaret has spent a tremendous amount of time in hospitals in three different states and in many, many doctor’s offices. In addition to her other conditions, she also has been diagnosed with septo-optic dysplasia (deMorsier’s Syndrome); she is blind and has paralysis of the vocal cord. Her other health impairments include: Diabetes Insipidus, Pituitary Insufficiency, Hypothyroidism, Low Cortisol, Asthma, and Seizures. She is in a wheelchair and has limited strength as well as physical movement. She is totally unable to do anything for herself. Her health is very delicate - her presence such a blessing – and yet it’s only by the grace of God that she is still with us today.
We’ve heard it said, “God gives special children to special parents.” When we tell others about our daughters’ medical issues most of the time the response we get from people is, “I had no idea your family had these problems,” or “I’m so sorry to hear that.” Our response has always been that it’s not a problem because God has always been in control. We tell folks, “Don’t feel sorry for us…..God has blessed us with circumstances in our lives that draw us closer to Him.” Our children are such a blessing! God has taught us through their health, as well as through their illnesses and conditions, so much about HIS GREAT LOVE. God doesn’t make mistakes!
Jenna and Mary Margaret share a very small bedroom. There is medical equipment in every room of our house. Our dream is to build Mary Margaret her very own special needs room with the door openings, the bath tub, the countertops, the windows and everything else in it designed just for her. This would also allow sweet Jenna to have her own princess room! At this time, with all of our medical bills and medical needs our dream seems so far off. Sometimes it seems impossible…….But, WE BELIEVE WITH GOD ALL THINGS ARE POSSIBLE.
Thank you for all of your prayers and support, and thank you for reading our story.
God bless you!
 
 
 
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If anyone can help my friend Mike Sullivan and his brave family reach there goal it woould be greatly appreciated. Please read there families story and journey through lifes challenges, anything to support Jenna and Mary Margaret's dream of having there own rooms would be great!

posted by Erik Schuchard 12 months ago

Hi Mike I want you to know that I am thinking of all of you I have two special needs little girls in my care whom I foster thru a medically fradgile program. Any support I can give to you both I am ready to do.

posted by Theresa Morris 12 months ago

Dear Mike, Please let Jenny and Mary know that we are dedicating our game tomorrow against Magnolia High School to the both of them. Please share with them that they are both inspire me to be a better coach and a better person! I will send a signed team ball and I will send a signed jersey early next week! Tell them and your son that they are in our hearts and our minds and the team were really moved by your story! Jenny and Mary better be my number one fans, because I'm there biggest fan!! With all the love in the world, Coach Maltby Head Varsity Baseball Coach Los Amigos High School

posted by Arthur Maltby 13 months ago

Kelly, you know your sweet sweet family is always in my heart and in my prayers!! Much Love

posted by Mandi Yates 14 months ago

Praying for you and your family Mike

posted by Clark McCully 14 months ago

God Bless your BEAUTIFUL famliy Mike

posted by Terese Duesberg Larson 14 months ago

posted by Kurt Trujillo 14 months ago

GOD IS SO GOOD!!! THROUGH HIM WE HAVE BEEN BLESSED BY EVERYONE'S LOVE, PRAYERS, AND SUPPORT. WE ARE SO GRATEFUL.......WE LOVE ALL OF Y'ALL

posted by Mike Sullivan 14 months ago

I love your spirit and your faith!! I too am a believer that God doesn't make mistakes and your children are Blessings as all children are. I will do what I can to spread your story. Thanks for sharing!!

posted by Julie Sosa-Spencer 14 months ago

GOD BLESS YOUR FAMILY , YOU ARE IN OUR PRAYERS. GOD HAS A PLAN FOR THIS FAMILY. OUR LIFE IS JUST A BLINK OF AN EYE IN HEAVENS TIME. GOD IS IN CHARGE HE HAS HIS OWN PLANS NOT FOR US TO UNDERSTAND. GOD BLESS YOU GUYS !

posted by Marcello Vercelli 14 months ago

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Recent Donations (220)

$33,127 raised by 220 people in 15 months.

$200.00

Anonymous

4 months ago

 

$50.00

Anonymous

4 months ago

 

$250.00

Varooge Yerganian

6 months ago

 
 

A little extra for your "minor speed bump..." We love your immense FAITH in GOD!! He WILL make this possible!! GOD bless y'all!

 

$100.00

Jason Keith

6 months ago

 
 

keeping you and your family in our thoughts and prayers

 

$40.00

The Kelley Family.

6 months ago (Offline Donation)

 
 

We are all Brothers and Sisters in God's forever family!

 

$50.00

Anonymous

7 months ago

 

$100.00

Anonymous

7 months ago

 

$500.00

Varooge Yerganian

7 months ago

 
 

God bless!

 

$250.00

Varooge Yerganian

7 months ago

 
 

God Bless you and your family!!

 

$200.00

Sunday Goldman Messina

7 months ago

 
 

Many blessings to you and your family Mike.

 

1-10 of 220 donations

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