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Perfect send off for Leah

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After meeting my partner in 2010 we would spend hours talking about what we thought the future held for us. It was clear from the start that family was important for the both of us. We both agreed that we wanted to give any children we were lucky enough to be blessed with the greatest life possible so we both worked every hour god sent, barely seeing each other but knowing that it was all worth it.
In December 2013 my life came crashing down, my mum (whom I love dearly) was diagnosed with lung cancer, after months of extensive treatment and removal of the right lung it left my mum very feeble, weak and barely able to breath when doing normal things such as climbing the stairs etc which we thought would decrease after adjusting to living life with one functioning lung but it only got worse. We visited the GP where she got a diagnoses of COPD (Chronic obstructive pulmonary disease) and was told there was no cure for. This of course left us devastated but we had to find things to make her life a little easier so I gave up my job to assist my mum, we had a stair lift installed, purchased a wheel chair and have respiratory nurses come in to care for her.

In June 2014 we were thrilled to find out we was expecting! We took my mum with us to have our first scan, a beautiful, healthy baby. As time went by we filled up our home with everything you'd need for a baby. At our second scan something wasn't right - to cut a long story short it turns out our beautiful baby girl had a rare syndrome called 'Edwards syndrome' which is at the top of the Down syndrome spectrum. This meant there was a great chance our baby wouldn't survive past two weeks and if she did it was guaranteed she wouldn't live to see her 5th birthday. We were absolutely devastated but was certain we was going to give her the best possible life until it was time for her to go - we never got that chance.

On January 30th we went for a routine scan to be told our precious baby had no heart beat and I would have to be induced words can't describe the feeling of knowing you'll never get to hear your baby's first cry, first word, see their first steps or plan for their future. I felt lost but knew what I had to do. On Sunday 1st February 2015 at 8.37am we met our beautiful little girl - Leah. She was so perfect.

Meeting with the undertakers was overwhelming. Who ever thinks they have to plan their child's funeral? We have been lucky enough that we've never had to plan a funeral and never realised how expensive it would be. To give our daughter a 'basic' funeral it is going to cost a little under £3000 and we just don't have all the money. Every bit of our savings went on my mothers care and preparing for our baby.

I don't want a big lavish funeral I just want a little ceremony so that we can finally say goodbye to our precious daughter.

Any donation big or small would be greatly appreciated. Thank you all so much xxx

Organizer

Kirsty Storey
Organizer

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