Chloe's Dream
Donation protected
My little sister Chloe is 7 years old and has a twin brother called Jack. My parents began to foster them both in May 2011 with the plan that ours will be their ‘forever home’.
They were just 3 years old at the time and had already faced and overcame so many challenges. Chloe and Jack both have cerebral palsy, but need different levels of support.
Jack attends a school for children with special needs, uses limited vocabulary and cannot walk or self-care but still lives life to the full. Chloe cannot walk or stand unaided, but is at a mainstream school in Gloucester that takes all of her needs on board, and ensures she is treated just like all the other children.
2015 was a hard year for us as a family. My beautiful 21 year old sister Sarah-Jane passed away, having lived with Cerebral palsy and complex health needs for years, longer than doctors gave her. Jack is also, sadly, life-limited.
Chloe was given hope in the same year though, having been told she’d be able to have a life-changing operation to help her walk on the NHS. Chloe had gone through a three year-long process before being chosen as a suitable candidate but that didn’t matter anymore – her treatment was given the go-ahead. It was happening.
Everything we take for granted – going to the toilet, getting dressed and even playing in the playground with friends – was about to change for the better for Chloe.
And this is where it gets hard to write this.
Just a few short months later, towards the end of 2015, the carpet was pulled from under our feet. The operation could no longer be funded and my little sister, having already gone through so much, was told she wouldn’t be given the treatment after all.
We were floored.
Chloe is the most amazingly brave young girl. She became the first disabled child in the country to take and pass her pre-primary ballet award, using her walking frame and with the amazing support she receives at Linda Virgoe’s dance school. The Royal Ballet asked to meet with her, to meet the little girl who just wants to dance with other children her age. Who just wants to be normal.
Who was given the glimmer of hope of a life we take for granted – and then had it taken away just as quickly. What makes it harder is the way she takes everything in her stride – she’s been through more in her short life than most, but she never complains and is always positive. Even after Sarah-Jane’s passing for instance, Chloe asked if she could take her ‘Sarahbear’ – a bear made from one of Sarah-Jane’s dresses – into theatre with her when we all believed the operation was still going ahead, so she could ‘be with her’. It’d be heart-breaking if it wasn’t so precious. Maybe it’s both.
And this is where you come in.
There is an operation available privately that can give Chloe the chance to walk. With the operation cost, and twelve months of necessary rehabilitation treatment, we need to raise £50,000.
We have many plans to fundraise, and won’t shy away from hard work as a family, but it’s time to give her the chance she deserves.
Anything you can donate will help us on our massive journey. We appreciate anything you can give or do and we will keep you updated on fundraising events we have planned. Please share as much as you can and ask any questions you need.
Please help us give Chloe another chance.
UPDATE 03.06.16
Chloe had SDR today at BCH, UK. She is doing incredibly well and managing her pain so bravely. Mr Pople her surgeon is very pleased and we are all looking forward to her progress.
This is almost like the begining again for Chloe, she will have to relearn how to use her legs and control muscles. On average it takes around 2 years of post op rehab/physio which costs around £15,000 a year. So lets keep going!
Follow our journey of facebook:
https://www.facebook.com/chloesdreamcometrue/
They were just 3 years old at the time and had already faced and overcame so many challenges. Chloe and Jack both have cerebral palsy, but need different levels of support.
Jack attends a school for children with special needs, uses limited vocabulary and cannot walk or self-care but still lives life to the full. Chloe cannot walk or stand unaided, but is at a mainstream school in Gloucester that takes all of her needs on board, and ensures she is treated just like all the other children.
2015 was a hard year for us as a family. My beautiful 21 year old sister Sarah-Jane passed away, having lived with Cerebral palsy and complex health needs for years, longer than doctors gave her. Jack is also, sadly, life-limited.
Chloe was given hope in the same year though, having been told she’d be able to have a life-changing operation to help her walk on the NHS. Chloe had gone through a three year-long process before being chosen as a suitable candidate but that didn’t matter anymore – her treatment was given the go-ahead. It was happening.
Everything we take for granted – going to the toilet, getting dressed and even playing in the playground with friends – was about to change for the better for Chloe.
And this is where it gets hard to write this.
Just a few short months later, towards the end of 2015, the carpet was pulled from under our feet. The operation could no longer be funded and my little sister, having already gone through so much, was told she wouldn’t be given the treatment after all.
We were floored.
Chloe is the most amazingly brave young girl. She became the first disabled child in the country to take and pass her pre-primary ballet award, using her walking frame and with the amazing support she receives at Linda Virgoe’s dance school. The Royal Ballet asked to meet with her, to meet the little girl who just wants to dance with other children her age. Who just wants to be normal.
Who was given the glimmer of hope of a life we take for granted – and then had it taken away just as quickly. What makes it harder is the way she takes everything in her stride – she’s been through more in her short life than most, but she never complains and is always positive. Even after Sarah-Jane’s passing for instance, Chloe asked if she could take her ‘Sarahbear’ – a bear made from one of Sarah-Jane’s dresses – into theatre with her when we all believed the operation was still going ahead, so she could ‘be with her’. It’d be heart-breaking if it wasn’t so precious. Maybe it’s both.
And this is where you come in.
There is an operation available privately that can give Chloe the chance to walk. With the operation cost, and twelve months of necessary rehabilitation treatment, we need to raise £50,000.
We have many plans to fundraise, and won’t shy away from hard work as a family, but it’s time to give her the chance she deserves.
Anything you can donate will help us on our massive journey. We appreciate anything you can give or do and we will keep you updated on fundraising events we have planned. Please share as much as you can and ask any questions you need.
Please help us give Chloe another chance.
UPDATE 03.06.16
Chloe had SDR today at BCH, UK. She is doing incredibly well and managing her pain so bravely. Mr Pople her surgeon is very pleased and we are all looking forward to her progress.
This is almost like the begining again for Chloe, she will have to relearn how to use her legs and control muscles. On average it takes around 2 years of post op rehab/physio which costs around £15,000 a year. So lets keep going!
Follow our journey of facebook:
https://www.facebook.com/chloesdreamcometrue/
Organizer
Hana Eluned
Organizer
