Main fundraiser photo

Beths battle with cystic fibrosis

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This is our daughter Bethany Michelle Jones.
She has CYSTIC FIBROSIS. 
We are trying to raise the funds for a PHYSIO VEST for her.


CYSTIC FIBROSIS is an inherited genetic disease  caused by a faulty gene. This gene controls the movement of salt and water in and out of your cells so the lungs and digestive system gets clogged with thick sticky mucus making it hard to breathe and digest foods.

There is currently NO CURE for CYSTIC FIBROSIS.
But there are treatments that can help to manage and prolong or prevent further damage to the organs.

(Bethany getting her bloods taken)

Every week 5 baby's are born with CYSTIC FIBROSIS and 2 people die from it.

The vest consists of an inflatable vest connected by tubes to an air pulse generator. The generator rapidly inflates and deflates the chest walls mimicking mini coughs that dislodge and thin the mucus moving it along into the larger airways where it is easier to cough up.

(Bethany raising awareness for CYSTIC FIBROSIS)

The physio vest costs £7000 and is not funded by the NHS. This is why we are trying to raise the funds for it. 


http://www2.hill-rom.com/Medicraft/TheVest.htm

Here is a little video of the vest working:


http://www.bing.com/videos/search?q=hill+rom+vest+video&FORM=HDRSC3#view=detail&mid=D3C5C2F523CA37FC30B5D3C5C2F523CA37FC30B5



Can you help us get the funds we need? 
Even if it's just a little?
It all helps in the end!! 
And every little thing is greatly appreciated...

Thankyou for reading about our cause

Organizer

Sophie Derbyshire
Organizer

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