Show Reese Some Love
Donation protected
Beware, I'm probably going to ramble a little. I have had several people over the past few weeks offer to set up one of these sites for us. I decided to swallow my pride and say yes, but I wanted to do it for myself. I will go into further detail in a minute, but I wanted to take the time to let you know who I am. I am a single mom with three beautiful, amazing kids. My whole world revolves around them and their happiness.
My babies have been through so many difficulties and have always been happy and grateful. I enjoy taking care of them and in the last year we fought our way to happy and stable after a few very bad years. I don't want to dwell on that, I just want to focus on the future. The reason I am asking for help is because I want to be able to continue to take care of my children without too many disruptions in their lives.
On December 1st, our world took a significant hit. Reese has fought and won terrible battle after terrible battle with his health. We thought things were looking up and getting better. He has been loosing weight in the past few months so we went back to the doctor to discuss this and the possibility of a feeding tube.
What we found out is that Reese is suffering from encephalopathy and as a result has some irreparable brain damage that is and will be affecting his mental status, learning ability and IQ. This stems from him being in failure to thrive. There is an underlying concern about organ failure.
Reese is currently going through a battery of neuro-psychological testing. Over the course of the next few months, he will also have genetic testing, inpatient treatment (lasting approximately 5 days) and spend many hours with psychiatrists and psychologists while he is adjusting to this new way of life.
We live in Virginia and most of his treatments and appointments are in Maryland. The out of pocket expenses are already adding up and we are only just beginning. Since December 1 of this year, medical expenses out of pocket are already up to $2500. My insurance only covers around 70% of most of his treatments and some aren't covered at all. We have applied for childhood disability and once that kicks in it will cover most of, if not all of the out of pocket we are enduring now.
Together with loving caring helpful family and friends I was able to get our family to a comfortable spot after years and years of medical debt. I'll do it again, but I figured it didn't hurt to put some of our story out and see if people wanted to help. I am embarrassed, to say the least, to admit we are in need of help. I wish I could say yes to every wonderful option out there to help my baby without having to consider the cost. I have spent the last year trying to rebuild my credit after so much medical debt. I would love it if that wasn't in vain. I will do absolutely anything to make sure all of my children are happy and secure and taken care of. I wish I could focus on getting Reese healthy and well and could stop thinking about finances so much.
I don't have any expectations with this. I just figured I'll put it out there and see what happens. If you read this and aren't in a position to help, I completely understand and simply ask this of you: pray for my little buddy. At 16 years old, 5' 6.5", he should weigh much more than the 84 pounds he is currently weighing in at. He is literally skin and bones. He is constantly in pain and has withdrawn into his own world of anxiety and depression.
Please pray for him to improve and quickly.
Please pray for Lexi and Sean as they are dealing with a whole new version of their brother and as they aren't getting as much of my time as they are used to.
Please pray for me. I am having a difficult time remaining positive and it is a daily battle to remain sensitive and patient. For the most part, Reese doesn't understand what is going on and why he is forgetting things and why he is so confused all the time. It is hard for me to let go of my high expectations from him.
Thank you for reading. Sorry for rambling, but I did warn you.
Love,
Crystal, Reese, Lexi and Sean
My babies have been through so many difficulties and have always been happy and grateful. I enjoy taking care of them and in the last year we fought our way to happy and stable after a few very bad years. I don't want to dwell on that, I just want to focus on the future. The reason I am asking for help is because I want to be able to continue to take care of my children without too many disruptions in their lives.
On December 1st, our world took a significant hit. Reese has fought and won terrible battle after terrible battle with his health. We thought things were looking up and getting better. He has been loosing weight in the past few months so we went back to the doctor to discuss this and the possibility of a feeding tube.
What we found out is that Reese is suffering from encephalopathy and as a result has some irreparable brain damage that is and will be affecting his mental status, learning ability and IQ. This stems from him being in failure to thrive. There is an underlying concern about organ failure.
Reese is currently going through a battery of neuro-psychological testing. Over the course of the next few months, he will also have genetic testing, inpatient treatment (lasting approximately 5 days) and spend many hours with psychiatrists and psychologists while he is adjusting to this new way of life.
We live in Virginia and most of his treatments and appointments are in Maryland. The out of pocket expenses are already adding up and we are only just beginning. Since December 1 of this year, medical expenses out of pocket are already up to $2500. My insurance only covers around 70% of most of his treatments and some aren't covered at all. We have applied for childhood disability and once that kicks in it will cover most of, if not all of the out of pocket we are enduring now.
Together with loving caring helpful family and friends I was able to get our family to a comfortable spot after years and years of medical debt. I'll do it again, but I figured it didn't hurt to put some of our story out and see if people wanted to help. I am embarrassed, to say the least, to admit we are in need of help. I wish I could say yes to every wonderful option out there to help my baby without having to consider the cost. I have spent the last year trying to rebuild my credit after so much medical debt. I would love it if that wasn't in vain. I will do absolutely anything to make sure all of my children are happy and secure and taken care of. I wish I could focus on getting Reese healthy and well and could stop thinking about finances so much.
I don't have any expectations with this. I just figured I'll put it out there and see what happens. If you read this and aren't in a position to help, I completely understand and simply ask this of you: pray for my little buddy. At 16 years old, 5' 6.5", he should weigh much more than the 84 pounds he is currently weighing in at. He is literally skin and bones. He is constantly in pain and has withdrawn into his own world of anxiety and depression.
Please pray for him to improve and quickly.
Please pray for Lexi and Sean as they are dealing with a whole new version of their brother and as they aren't getting as much of my time as they are used to.
Please pray for me. I am having a difficult time remaining positive and it is a daily battle to remain sensitive and patient. For the most part, Reese doesn't understand what is going on and why he is forgetting things and why he is so confused all the time. It is hard for me to let go of my high expectations from him.
Thank you for reading. Sorry for rambling, but I did warn you.
Love,
Crystal, Reese, Lexi and Sean
Organizer
Crystal Deck
Organizer
Leesburg, VA
