Hope for Hunter Schilling
Donation protected
My name is Hunter Schilling, I am 8 years old and live in Milton, Wisconsin. When I was born, the doctors told my family I had Isodicentric 15 (IDIC 15 or DUP15Q). This means I have extra genetic material in the cells of my body. The first 2 months of my life were spent in the NICU suite the West Allis Women's Pavilion. I had a feeding tube for nearly 18 months.
IDIC 15 affects roughly 1 of 30,000 newborns. My ability to run and walk took me a little longer than most kids, but by the time I was 5 and with the help of a walker and braces, I was able to run and walk! With the help of therapy, my vocabulary, social skills and coordination improve every day. I have lots of friends and I love school but my life is still full of challenges and I could really use your help and support.
Once every 2 years, the DUP15Q Alliance hosts an International Family Conference. This year it is in Orlando, FL on July 30 - August 1. At this conference, my parents and I can learn about the latest research, treatment and therapies with the DUP15Q (IDIC15) syndrome. This is also a chance for my family to meet other families who have children with this rare genetic disorder and know that we are not in this journey alone. The support my family recieves through this alliance is incredibly helpful.
IDIC 15 (DUP15Q) does NOT define me. It is not everything I am, but it IS everything I live with.
Thank you for your love and support!
Love,
Hunter
For more information on Isodicentric 15: click here
.
IDIC 15 affects roughly 1 of 30,000 newborns. My ability to run and walk took me a little longer than most kids, but by the time I was 5 and with the help of a walker and braces, I was able to run and walk! With the help of therapy, my vocabulary, social skills and coordination improve every day. I have lots of friends and I love school but my life is still full of challenges and I could really use your help and support.
Once every 2 years, the DUP15Q Alliance hosts an International Family Conference. This year it is in Orlando, FL on July 30 - August 1. At this conference, my parents and I can learn about the latest research, treatment and therapies with the DUP15Q (IDIC15) syndrome. This is also a chance for my family to meet other families who have children with this rare genetic disorder and know that we are not in this journey alone. The support my family recieves through this alliance is incredibly helpful.
IDIC 15 (DUP15Q) does NOT define me. It is not everything I am, but it IS everything I live with.
Thank you for your love and support!
Love,
Hunter
For more information on Isodicentric 15: click here
.
Organizer and beneficiary
Mike Marquart
Organizer
Milton, WI
Tracy Schilling
Beneficiary
