Isla and Jude Donnell are brother and sister (age 6 & 4), both diagnosed with Sanfilippo Syndrome. Sanfilippo Syndrome is a rare, fatal condition with no cure. It affects about 2,000 babies born each year around the world. The condition is an enzyme deficiency which means that waste cannot process from its cells. They are born healthy, but as the waste builds up over time, it causes damage to their brain and central nervous system. Children with the condition usually do not reach adulthood. Average life expectancy is 12-20 years.Isla and Jude are raising money for a clinical trial in the US in 2015, which only has 15 spots available. These trials cost 10's of millions of dollars. Time is not on their side and they need as much as possible to try and secure a spot. Please donate! Anything will help. 100% of donations will benefit the Sanfilippo Children's Foundation (Isla and Jude's charity). #hopeforislaandjude
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