Heather received the gift of a second liver and a hope for new life on April 17, 2014. She woke from her coma on Easter Sunday, and is facing a very long road to recovery. The doctors gave her a 50-50 chance of coming off the table alive, and they hoped more than a 0% chance of recovering. She has a long road ahead of her, but with your help, this road will be one that more easily travelled. My God, we are so very thankful to those who have already helped. How will we ever repay it?
At this time, Heather is not out of the woods by any means. A month post transplant the liver team re-diagnosed her with the same plasma cell hepatitus that played a large role in the death of her last graft; we are once again facing the potential loss of this new graft. They have told us she will not be re-listed and Heather is so very tired... even if they would re-list, I am not so sure that she would choose to do it. It has been a tough and long six year battle.
Her meds levels continue to drastically fluctuate and now to add insult to injury she may be permanently diabetic requiring A LOT of insulin.
To better care for her, her care team would like to see her move closer to their care facilities as our small town medical facility is not well equipped to handle her care due to the complexity of her case. Simply put, her body does not function like most text book cases. Her absorption issues with medication, now taken sublingually, is even proving to be an issue. One day toxic, the next, too low. Currently we live 1.5 hours away, going back and forth with the gas prices is very, very costly. Then there is the whole eating, and lodging issue. We simply cannot afford to provide for two households.
We had such high hopes of this graft being the one that changed her life. Instead, it continues to be a revolving door of hospital admits, and medical testing, and days and days of being too sick to do anything other than rest and sleep.
If you could know Heather, you would know that she is one of the most loving and gentle spirits alive. As her mother she has taught me grace, strength and true beauty. She has endured far more than any young woman should ever have to... but she tries very hard to stay positive in light of it all.
She spends much of her waking time reading books like Harry Potter; Lord of the Rings; Game of Thrones and Star Wars (naming her pomeranian Millenium Falcon ..."Millie" for short). It is her escape to another world. Her life goal is to write a book and make a pilgramage to Harry Potter world with friends and her sister (yes, she is 24 years old). As of right now, that cannot happen due to her health and financial status. It is at the very bottomof the list of needs.
We have begun the arduous process of clearing our home environment of toxic chemicals in order to help her body mend. We have started making all our own cleaning products out of natural ingredients, and have employed the use of essential oils in them. We have sought out Reiki, and Healing Touch to help ease her illness and her body in addition to mainstream medical care. We are hoping this will result in changing how her body works.
Her light is one that was put here to make this world better and brighter. The things we mention are all irrelevant in the grand scheme of it all...but it doesn't stop bill collectors from calling and the weight of it from weighing heavily upon her heart and mind.
Please consider Helping Heather.