Save The Future Doctor
Donation protected
My name is Orkhan, and I am the younger brother of Ilaha, my only other sibling. Ilaha suffers from Beta Thalassemia Intermedia. For years, my parents have done the best they could to preserve Ilaha’s health, to manage Ilaha’s medical needs on our own. Sadly, the recent deterioration of her condition has compelled us to reach out to the world for help because the medical care my sister needs now is beyond my family’s means and my country’s medical capabilities. She has had several blood transfusions and she has been having medications and supplements since she was 6 years old. Now, the only hope is the last option – Bone Marrow Transplant. Considering all possible scenarios, we need 250,000 Euros for her surgery and treatments (before and after).
Ilaha is only one step away from her childhood dream of being a hematologist, but for the transplant to happen, our family needs the help of amazing people like you. Please join us in this journey—act today. Any help makes a difference. On behalf of my whole family, I thank every person who is willing to donate, so Ilaha can live a full life.
Ilaha Hasanli’s story:
When Ilaha was 3 years old, she became irritable and lethargic. Blood tests revealed that her blood level was low; however, no specific diagnosis was made. Her undiagnosed condition continued until she was 6 years old (1998) when my parents noticed that her belly was extended. On June 18th of that year, thanks to the Research Institute of Haematology, she was finally diagnosed. We were informed that Ilaha was suffering from Hepatosplenomegaly (HSM), which is the enlargement of the liver and the spleen, precipitated by a genetic condition called Beta Thalassemia Intermedia. This also explained the bone deformation in her young body. In less than three months after this diagnosis, Ilaha’s spleen had extended so greatly that on October 9, 1998, she had a Splenectomy, the surgical removal of the spleen. Since the surgery, she has been having treatments to maintain her hemoglobin levels at the normal level.
Everything was under control until last year, 2013, when her blood pressure dropped frequently to dangerously low levels
In 2014, 13th of March, she had a Cholecystectomy , the surgical removal of the gall bladder. Since that surgery, her health has been declining rapidly. Currently, her platelet (thrombocytes) level is very high, and her leucocytes (white blood cells) level is increasing. She has very bad blood flow and there are several swellings (thrombosis) in her legs due to the high platelet count; this can result in trophic wounds in the future. For now, she is being treated to avoid these kinds of potential effects. Sadly, her heart is pumping with difficulty lately because of the above issues. For a person with Thalassemia, Ilaha’s current condition is very dangerous. In fact, she cannot even have blood transfusion very often because the transfused blood is haemolysed (destroyed) very soon after transfusion.
According to doctors, my sister’s Thalassemia is the source of all her health issues. Therefore, in order to save Ilaha, she needs a Bone Marrow Transplant (BMT) as a first step. After the BMT, she will need treatments and care to ensure her body does not reject the transplanted marrow.
Ilaha’s Dream:
My dear sister Ilaha is not her disease. Since Ilaha was 7 years old, she has aspired to becoming a medical doctor – a hematologist – as a trained specialist, in addition to her firsthand knowledge of this genetic disease, she would know how to best take care of children with Thalassemia, saving as many of them as possible. Although she has been struggling with her illness for 22 years, to achieve her dream of being a hematologist, she has managed to be one of the most successful medical students among her peers. I am so proud to say that Ilaha is a 5th year student at the Medical University of the Republic of Azerbaijan. Until her recent debilitating state, she spent most of her time at the Thalassemia Centre (a special hospital for people with Thalassemia) and she was doing her best to help children with the same illness. Until now, every holiday, she would organize events and small parties for those children in order to make them happy. Currently, she is unable to attend school due to low blood pressure and low blood level.
For more details about Ilaha's Story, see http://helpilaha.com/en/
With sincerest thanks,
Orkhan Hasanli
Ilaha is only one step away from her childhood dream of being a hematologist, but for the transplant to happen, our family needs the help of amazing people like you. Please join us in this journey—act today. Any help makes a difference. On behalf of my whole family, I thank every person who is willing to donate, so Ilaha can live a full life.
Ilaha Hasanli’s story:
When Ilaha was 3 years old, she became irritable and lethargic. Blood tests revealed that her blood level was low; however, no specific diagnosis was made. Her undiagnosed condition continued until she was 6 years old (1998) when my parents noticed that her belly was extended. On June 18th of that year, thanks to the Research Institute of Haematology, she was finally diagnosed. We were informed that Ilaha was suffering from Hepatosplenomegaly (HSM), which is the enlargement of the liver and the spleen, precipitated by a genetic condition called Beta Thalassemia Intermedia. This also explained the bone deformation in her young body. In less than three months after this diagnosis, Ilaha’s spleen had extended so greatly that on October 9, 1998, she had a Splenectomy, the surgical removal of the spleen. Since the surgery, she has been having treatments to maintain her hemoglobin levels at the normal level.
Everything was under control until last year, 2013, when her blood pressure dropped frequently to dangerously low levels
In 2014, 13th of March, she had a Cholecystectomy , the surgical removal of the gall bladder. Since that surgery, her health has been declining rapidly. Currently, her platelet (thrombocytes) level is very high, and her leucocytes (white blood cells) level is increasing. She has very bad blood flow and there are several swellings (thrombosis) in her legs due to the high platelet count; this can result in trophic wounds in the future. For now, she is being treated to avoid these kinds of potential effects. Sadly, her heart is pumping with difficulty lately because of the above issues. For a person with Thalassemia, Ilaha’s current condition is very dangerous. In fact, she cannot even have blood transfusion very often because the transfused blood is haemolysed (destroyed) very soon after transfusion.
According to doctors, my sister’s Thalassemia is the source of all her health issues. Therefore, in order to save Ilaha, she needs a Bone Marrow Transplant (BMT) as a first step. After the BMT, she will need treatments and care to ensure her body does not reject the transplanted marrow.
Ilaha’s Dream:
My dear sister Ilaha is not her disease. Since Ilaha was 7 years old, she has aspired to becoming a medical doctor – a hematologist – as a trained specialist, in addition to her firsthand knowledge of this genetic disease, she would know how to best take care of children with Thalassemia, saving as many of them as possible. Although she has been struggling with her illness for 22 years, to achieve her dream of being a hematologist, she has managed to be one of the most successful medical students among her peers. I am so proud to say that Ilaha is a 5th year student at the Medical University of the Republic of Azerbaijan. Until her recent debilitating state, she spent most of her time at the Thalassemia Centre (a special hospital for people with Thalassemia) and she was doing her best to help children with the same illness. Until now, every holiday, she would organize events and small parties for those children in order to make them happy. Currently, she is unable to attend school due to low blood pressure and low blood level.
For more details about Ilaha's Story, see http://helpilaha.com/en/
With sincerest thanks,
Orkhan Hasanli
Organizer
Orkhan Hasanli
Organizer
