Dream Vacation, For our Son Jeremy!
Wow! You all are amazing. We are humbled by your generosity. Thank You! We Hit our Goal!!!
In 2012 our 9 year son was brought to the emergency room for lethargy and vomiting. A few hours later we were giving life altering news. Jeremy had mass on the brain that was about the size of a plum and wrapped around his brain stem. Two days later on Christmas Eve he had a 9+ hour brain surgery to remove this malignant tumor. Jeremy was diagnosed with a rare form of cancer called ependymoma. His 2nd surgery was in January 2013 followed by 2 months of daily radiation. Jeremy came through with flying colors, and he was tumor and cancer free for a little over a year. In July of 2014, at a routine scan a lesion was discovered and he underwent a very risky third brain surgery. Much to our delight they thought it was nothing but a cyst. In late October that lesion more than doubled in size and Jeremy underwent his fourth and fifth brain surgeries. This time the tumor had moved to a new location in the brain and is considered to be metastatic. There is No Cure for ependymoma and they know very little about it other than it occurs in both adult and pediatric patients and only in the Central Nervous system. UnfortunatelyJeremy's recurrence of his tumor is not good news and Jeremy's prognosis is fair at best. His mortality rate is roughly 20%. In our doctors words, "this may be the beginning of the end." As you can imagine this is heartbreaking and devastating, but our superhero is not a statistic. We are in the fight of our lives, and Jeremy is in a fight for his life. Though he battles daily with aches and pains and the frustrations of some damage to key areas of the brain, he still has bright beautiful smile. He really is a superhero and our bright shining star. Recently Jeremy was given his dream come true by a wonderful charitable organization and plans are in the works for the ultimate family vacation to Disney World, Universal and Sea World This charity does an awesome job and will provide most of what we need for a fabulous vacation. How ever Jeremy also wants to go to the beach for a few days so we would like to extend our week long trip three or four days and head to Clearwater FL. Expenses we need help with would be Kenneling our three dogs for two weeks, some new summer clothes, shoes and spending money for the extra fun things not covered by the chartitable organization . Due to medical expenses, our entertainment budget has been cut. Please note this is a Personal Fundraiser for Jeremy. This money would allow us to provide Jeremy and his two brothers the the vacaton of a life time. Will please help make a sick young mans dream come true.
Fight to epENDymoma! Grey really does matter. Please Share, tweet etc... as well. Thank You so much and Blessings to all of you. The Kohlberg Family, John, Carol, Jeremy, Charlie and Gabe.
