Help Luis and Kian's wish come true
Donation protected
My twin son's age 7 were diagnosed with a genetic condition called Krabbe Disease (also known as globoid cell leukodystrophy or galactosycermide lipidosis). It is a rare and often fatel degenerative disorder that effects the myelin sheath of the nervous system.
My sons are currently waiting to have a stem cell transplant that we hope will delay progression but cannot cure.
We have been advised to make memories to treasure and have a family holiday before their treatment starts,
We hope to make many memories in the time we have
Luis and Kian have a wish list you can follow them on
www.facebook.com/krabbeTwins
Thank you so very much xx
My sons are currently waiting to have a stem cell transplant that we hope will delay progression but cannot cure.
We have been advised to make memories to treasure and have a family holiday before their treatment starts,
We hope to make many memories in the time we have
Luis and Kian have a wish list you can follow them on
www.facebook.com/krabbeTwins
Thank you so very much xx
Organizer
Laura Jane
Organizer