Lexie’s ONH Treatment

Lexie was born with Optic Nerve Hypoplasia, a random birth defect characterized by underdevelopment of the optic nerves, the nerves responsible for transmission between the eye and the brain.

Lexie is a legally blind 37-year-old single mother of four boys. Unable to hold a driver’s license, she walks several miles per week, navigating as a pedestrian to transport herself. She struggles with everything from recognizing people to reading, and uses a magnifying glass to aid with documents and books. Playing cards and reading signage are especially difficult, as well as using computers, phones, TVs, and other devices.

Lexie has been approved to participate in a clinical treatment study called SCOTS2 (Stem Cell Ophthalmology Treatment Study II), located in Fort Lauderdale, Florida. She will undergo a surgery consisting of extracting bone marrow from the back of the hip then injecting the collected stem cells directly into the eye area in hopes of regenerating the optic nerves.

We’re asking for your help in funding this endeavor. Our goal is to raise $25,000 by September 15th. Any contribution is helpful, meaningful, and gratefully received.