Help Tyler Get to china
Donazione protetta
As most of our close family and friends have heard my nephew Tyler has a life long illness and has been diagnosed with multiply pituitary hormone deficiences secondary to a mulfunctioning pituitary gland , which accompanies his diagnosis of septo-Optic Dysplasia. Tyler currently has diabetes insipidus, central hypothyroidism and central adrenal insufficiency.
As a result, he requires hormone replacement therapies for the rest of his life.
In particular, hydrocortisone is essential to keep Tyler alive and well and in the event of any stress or trauma he carries an injectable form of hydrocortisone to be given in an emergency.
This is incurable all we can do for Tyler is make sure he gets his medication.
Due to this the septo-optic dysplasia Tyler is blind.
Septo-optic dysplasia (SOD), is a rare congenital malformation syndrome featuring underdevelopment of the optic nerve, pituitary gland dysfunction, and absence of the septum pellucidum (a midline part of the brain).
Septo -optic dysplasia is curable but only in China through various stem cell treatments. Myself and the rest of Tyler’s family are trying to raise the money to Atleast help him for some way in the future by given him his eyesight which can be achieved by going to China to get this treatment so we are hoping that family and friends will help us achieve our goal of €60,000 to cover the cost of the hospital bills It’s a 35 day process with 8 stem cell treatments.
Tyler and his family will be forever greatful please help a little boy get his eye sight.
As a result, he requires hormone replacement therapies for the rest of his life.
In particular, hydrocortisone is essential to keep Tyler alive and well and in the event of any stress or trauma he carries an injectable form of hydrocortisone to be given in an emergency.
This is incurable all we can do for Tyler is make sure he gets his medication.
Due to this the septo-optic dysplasia Tyler is blind.
Septo-optic dysplasia (SOD), is a rare congenital malformation syndrome featuring underdevelopment of the optic nerve, pituitary gland dysfunction, and absence of the septum pellucidum (a midline part of the brain).
Septo -optic dysplasia is curable but only in China through various stem cell treatments. Myself and the rest of Tyler’s family are trying to raise the money to Atleast help him for some way in the future by given him his eyesight which can be achieved by going to China to get this treatment so we are hoping that family and friends will help us achieve our goal of €60,000 to cover the cost of the hospital bills It’s a 35 day process with 8 stem cell treatments.
Tyler and his family will be forever greatful please help a little boy get his eye sight.
Organizzatore
Susie Monaghan
Organizzatore