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Carter & Friends Foundation

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This gofundme page is here to donate to the Carter & Friends foundation who is working with CS Mott Children's Hospital pediatric neurosurgical department; specifically for children with Spina Bifida for all fundraising events. 

If you cannot attend our events throughout the year you can donate right here!! 

Our family has started a foundation to help families, like us,  who have a child with Spina Bifida, as well as the amazing hospital that helped us every step of the way, and who continue to help other families with children who are diagnosed.

This gofundme page was created to bring awareness to Carter's story (see below), and all of the other untold stories of children who are diagnosed with Spina Bifida. It is also to show that children, and families of children with Spina Bifida are "Embracing the Bif" and the strength that comes from these children each and every day.

Please donate to help make our fundraisers and foundation a success so it can continue throughout the years, bring awareness to people about Spina Bifida, and help support other families in anyway possible.

For more information please see the following website:
http://www.carterandfriends.org 

http://www.babyhiltonspine.blogspot.com 

http://www.spinabifidaassociation.org  

Thank you for your support and donation!

Carter's Story:

At just 19 weeks pregnant I found out that my son, Carter was diagnosed with Spina Bifida; "Spina Bifida literally means “split spine.” Spina Bifida happens when a baby is in the womb and the spinal column does not close all of the way. Every day, about eight babies born in the United States have Spina Bifida or a similar birth defect of the brain and spine." Although many may not know, Spina Bifida is the most common permanently disabling birth defect in the United States.

At only 23 1/2 weeks into the pregnancy Carter underwent an in-utero surgery to repair what damage had already been done to his spine. (Spina Bifida is not "curable") This surgery is usually done once the baby is born.  Although done in other areas of the country, this was the first procedure in Michigan, at the VonVoighlander Women's Hospital.

At 34 weeks Carter was born. He spent 21 days in the NICU before getting the okay from doctors that he could come home but would need to be monitored by his neurosurgeon, urologist, plastic surgeon, and orthopedics. It was the beginning of a long journey in Carter's life. 

In December Carter had to undergo another surgery for a VP shunt, which was placed under the skin on his head to transfer the excess fluid from his ventricles; this is called hydrocephalus and is common with many Spina Bifida cases. 

Carter's journey continues and although he is making great strides he has a long road ahead of him. It's possible that he may have problems with walking and bladder control; something that can happen with babies, children, and adults with Spina Bifida. 

We are positive that the great things we see happening with Carter will continue to happen and are thankful to those who have been there to support and help us along the way.
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Donations 

  • JoAnn Miller
    • $50 
    • 8 yrs
  • Anonymous
    • $50 (Offline)
    • 8 yrs
  • Anonymous
    • $100 (Offline)
    • 8 yrs
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Organizer

Kasey Leigh Hilton
Organizer
Northfield Township, MI

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