Jamie's Appeal
Donation protected
Myself and my partner will be running the Cardiff 10K on Sunday 7th September 2014 in aid of a very special little man who needs your help.
Jamie is an 18 month old baby who has a spinal condition called Scoliosis which means his spine is curved, and needs straightening. As his body grows his spine will continue to curve so time really is of the essence. If he can receive specialist treatment from Consultants at Great Ormond Street Hospital sooner rather than later, his condition could see a vast improvement and his family hope he will be able to lead a normal life.
All donations will be greatly appreciated by Jamie's family, as well as myself and my partner.
Jamie's Appeal from his family is below:
'In 2013, when Jamie was a few months old, we were told Jamie had what the NHS Spinal Consultant called the 'cuddle syndrome '. Following this, Jamie had a stint of physiotherapy. The physiotherapists at the time stated that the issue with his back was not skeletal, not to worry and to continue carrying out the exercises at home.
We then found out this was not the case and when Jamie’s mum re-visited the GP at the beginning of 2014 with Jamie to discuss her concerns of Jamie’s ever increasing curvature of the spine. The GP referred back through his notes and informed her that they had received a letter in June 2013, almost six months before, saying Jamie has suspected scoliosis.
Jamie’s mum and dad had no prior knowledge of this and were not informed in any way. Jamie has now had an initial consultation with his NHS consultant who has confirmed his condition and he is now waiting to have much needed MRI and CT scans to further assess his spine.
Cardiff and the Vale NHS Trust do not specialize in scoliosis in children, the tendency is to opt for intrusive radical spinal surgery involving the insertion of metal rods into the back area. This procedure may be carried out a number of times as a child continues to grow. Following our own research, we now understand that there is there is a more specialized treatment known as Metha Casting which we have been told has an 80% success rate of permanent recovery of the spine. However for this to be successful it is imperative that the child is treated before they are two years old, whilst their bones are still soft. The procedure for this type of casting is not carried out by the NHS, as far as we know, but we do know that this procedure is carried out by scoliosis specialists at Great Ormond Street Hospital. Our intent is to arrange for Jamie to have a private consultation for his condition at Great Ormond Street Hospital, therefore, our appeal is to raise funds through different means to sponsor this consultation and any ensuing treatment.
Jamie is now 18 months old and if he is suitable to have Metha Casting then time is now of the essence. We have already experienced the grinding slowness of the local NHS which has exacerbated Jamie`s prognosis, we do not want any further delays to affect Jamie`s future health and happiness. Hence the urgency with our appeal, consequently your support for our little man will be very very much appreciated'.
Jamie is an 18 month old baby who has a spinal condition called Scoliosis which means his spine is curved, and needs straightening. As his body grows his spine will continue to curve so time really is of the essence. If he can receive specialist treatment from Consultants at Great Ormond Street Hospital sooner rather than later, his condition could see a vast improvement and his family hope he will be able to lead a normal life.
All donations will be greatly appreciated by Jamie's family, as well as myself and my partner.
Jamie's Appeal from his family is below:
'In 2013, when Jamie was a few months old, we were told Jamie had what the NHS Spinal Consultant called the 'cuddle syndrome '. Following this, Jamie had a stint of physiotherapy. The physiotherapists at the time stated that the issue with his back was not skeletal, not to worry and to continue carrying out the exercises at home.
We then found out this was not the case and when Jamie’s mum re-visited the GP at the beginning of 2014 with Jamie to discuss her concerns of Jamie’s ever increasing curvature of the spine. The GP referred back through his notes and informed her that they had received a letter in June 2013, almost six months before, saying Jamie has suspected scoliosis.
Jamie’s mum and dad had no prior knowledge of this and were not informed in any way. Jamie has now had an initial consultation with his NHS consultant who has confirmed his condition and he is now waiting to have much needed MRI and CT scans to further assess his spine.
Cardiff and the Vale NHS Trust do not specialize in scoliosis in children, the tendency is to opt for intrusive radical spinal surgery involving the insertion of metal rods into the back area. This procedure may be carried out a number of times as a child continues to grow. Following our own research, we now understand that there is there is a more specialized treatment known as Metha Casting which we have been told has an 80% success rate of permanent recovery of the spine. However for this to be successful it is imperative that the child is treated before they are two years old, whilst their bones are still soft. The procedure for this type of casting is not carried out by the NHS, as far as we know, but we do know that this procedure is carried out by scoliosis specialists at Great Ormond Street Hospital. Our intent is to arrange for Jamie to have a private consultation for his condition at Great Ormond Street Hospital, therefore, our appeal is to raise funds through different means to sponsor this consultation and any ensuing treatment.
Jamie is now 18 months old and if he is suitable to have Metha Casting then time is now of the essence. We have already experienced the grinding slowness of the local NHS which has exacerbated Jamie`s prognosis, we do not want any further delays to affect Jamie`s future health and happiness. Hence the urgency with our appeal, consequently your support for our little man will be very very much appreciated'.
Organizer
Sarah Stutes
Organizer
