Bryce Thomas Heckendorf

 
Raised: $16,090.00
Goal: $50,000.00
 
 
 

Created by

Mia Mauer Heckendorf

1286 Friends

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Bryce Thomas Heckendorf, at age 6 and a half months, was diagnosed with Krabbe Disease, a rare and incurable genetic disorder that falls under the umbrella of leukodystrohpy. The average... more

 
 
 
 
 
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Updated posted by Mia Mauer Heckendorf 1 month ago

Such amazing support - thank you, thank you, thank you! For all the friends and family that will be able to attend the March 1st "Sky is Blue" Benefit in Lancaster, WI - we look forward to seeing you!! You can find out more on the benefit here: http://thebstrongfund.org/fundraisers/sky-is-blue-benefit/

 
 
 

Updated posted by Mia Mauer Heckendorf 3 months ago

Words cannot express the gratitude the Heckendorf and Kuenster families have to all you wonderful friends and family that have supported Bryce, Kyle and Jenna throughout this trying time. Please feel free to follow Bryce's story at www.thebstrongfund.org. Kyle, Jenna, Bryce and Jenna's mom travelled to Pittsburgh this week to meet with Krabbe specialist Dr. Maria Escolar. It has been a very informative trip and our little B-man has been a trooper! Aunt Jamie Martin (Kuenster) will keep everyone updated on Bryce's progress on thebstrongfund.com webpage.

 
 
 

Created by Mia Mauer Heckendorf on December 18, 2013

Bryce Thomas Heckendorf, at age 6 and a half months, was diagnosed with Krabbe Disease, a rare and incurable genetic disorder that falls under the umbrella of leukodystrohpy. The average life expectancy of a child diagnosed with the early infantile form is 13 months, though with proactive care, many children are living up to 5 years. This fund will help Bryce's parents, Kyle and Jenna, two public school teachers in Dodgeville, WI, with the financial support needed to be proactive about Bryce's care. This will allow them to work with a functional medicine doctor and travel to Pittsburgh to meet with a doctor who specializes in Krabbe. We want them to have every resource at their fingertips without concerns about the price tag or related expense.

Please visit thebstrongfund.org for more information on Bryce's story.

 
 
 
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Thank you Jamie, I see a few families on her that donated that were invited, but if it says Anonymous I can't tell. All I know is I hope that any amount donated helps in every way we can! God Bless little Bryce!

posted by Kristine Springer 3 months ago

@Kristine Springer: Thank you for your thoughtfulness it means more than you'll ever know.

posted by Jamie Martin 3 months ago

I am having my twins, Blaine and Brandon Springer's, birthday party on Sunday and have invited several kids. Instead of gifts, I've asked that anyone put forth a monetary donation to help your family out. Just wanted to let you know. God Bless and Happy New Year. We are praying for you all.

posted by Kristine Springer 3 months ago

1 - 3 of 3 Comments
 

Recent Donations (186)

$16,090 raised by 186 people in 4 months.

$40.00

Charlye Jenkins

2 days ago

 
 

Praying for your family

 

$20.00

Anonymous

3 days ago

 

$20.00

Anonymous

6 days ago

 

$100.00

Kevin Stankiewicz

8 days ago

 
 

I read about your family in Bison Illustrated. You guys are a team, keep supporting each other. Stay Bryce Strong!

 

$200.00

Anonymous

13 days ago

 

$50.00

Anonymous

13 days ago

 

$50.00

Stacey Boyle

15 days ago

 
 

I am proud to support Bryce and his family. Stay strong!!

 

$20.00

Anonymous

21 days ago

 

$100.00

Anonymous

29 days ago

 

$50.00

Kari and Mike Coulthard

1 month ago

 
 

We are close friends of Krista and Lonnie. You are in our continued prayers. Keep up the fight sweet Bryce!

 

1-10 of 186 donations

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