Well! The time has come for my new health insurance deductible to be paid. I have a High Deductible Health Plan. Which means I pay a 4,000.00 dollar deductible at the beginning of the year BUT, after that deductible is paid everything is FREE. That means no more co-pays at the doctors offices. I don't have to pay for my outrageously priced prescriptions anymore. I don't have to worry when I go to the ER or if I need a hospital stay. If a surgery or something is needed its covered! All I need to do is get the money for the 4,000.00 deductible and I will be able to continue treatment. The only way it would cost more is if I go out of network then the max deductible would be 8,000.00. I am really good at staying in-network. After that all I need to worry about is paying the premium of 400.00 per month for the policy. If anyone could help me get this money together I would greatly appreciate it!! If you can't. No worries I understand. I just want to be healed from this disease and be able to go back to California! OR maybe somewhere new. I just want to be healed so I have that option. I know I can beat this disease!! I just need help financially getting there. I hope you all are having a very happy new year!!
Hello All!! I hope you have been well. I have been living in Maine for the past two months and I have grown to love it here. Thankfully, almost every doctor I go to knows what Lyme Disease is!! I am hopeful this is where I will be able to get all the treatment that I need. My seizures have stopped. Thank goodness for that. I am able to walk but lately I feel like I am going backwards again. My legs are feeling numb again. I'm scared to death I could end up in a wheelchair again. I am going to a doctor here in Maine to get B-12 shots in my butt 3 times a week. I'm hopeful it wll bring my nerves back again. I am going to a neurologist and he will be doing another
EMG/NCV to see what is going on. This doctor suspects I might have CIPD http://swedal.hubpages.com/hub/CIPD-A-Rare-Immune-System-Disorder
I'll give more updates when I have them. I feel a bit stressed but! what doesn't kill you makes you stronger!
I am no longer living in Wisconsin. I'm homeless at the moment. Me and the dogs have been sleeping in the car while we've made our way to Maine to stay with a friend as long as we possibly can. I'm still taking MitoSynergy. I'm getting better but this drive has been exhausting and I've felt very sick on this journey. Can't wait to get there today! Took three days.
Julie. I posted about that a long time ago on this weboage. I knew you could find on iTunes for 1.99. season five episode two "the chauvinist and the playboy" but I did not know you could watch for free on hulu. Thank you! That was done a year and a half ago. I've been sick for five years but December 2011 is when I ended up in a wheelchair and am currently unable to work still. I AM walking again though! Not in heels of course. It's very painful to walk but I'm up to about two hours a day of standing and walking
Hey guys! So I'm currently living in Wisconsin with a friend. I don't have to pay Rent here so that's been A huge burden off my shoulders. I still however have insane medical bills I need to pay off before it hurts my credit. I'm still not able to work so im struggling to pay the current bills I have. Any donations would be appreciated! You can also donate through paypal my account. My account is email@example.com I hope everyone is doing well.
Hey guys! So I'm currently living in Wisconsin with a friend. I don't have to pay Rey here so that's been nice. I still however have insane medical bills I need to pay off before it hurts my credit. I'm still not able to work so im struggling to pay the current bills i have. Any donations would be appreciated! You can also donate through paypal my account. My account is firstname.lastname@example.org I hope everyone is doing well.
Well! I've not posted in a while. I apologize! I was busy moving temporarily from LA to Wisconsin. I said earlier this week "I've had many bumps in the road but, many blessings have come because if it. I wouldn't change it for anything."
An amazing woman and her family and friends have taken me in here so kindly so I can heal. I tell you what. For our community to get better we should do a pay it forward program (Marge's Idea). We're weak when we're sick and need someone who understands. I'm hearing of so many Lymies with horrible stories. We all have to stick together! Either way. Since I moved here I started a Supplement called MitoSynergy. (buy at www.MitoSynergy.com
). It's changed my life. Here's the one catch. It scared the hell out of me! For it to work you can't be on any opiate based medicines. The narcotics have to go. I was terrified and thinking "I still hurt with meds! And you want me to quit them after years of taking them?! Oh hell no!" Detoxing off it was INSANE. I was on oxy and dilaudid. Yes, there were times for a week I wanted to punch a wall. Now I don't. My changes with two weeks of medicine with are insane!
First. I'm not on pain medications! I use Epsom salt and peppermint oil for pain. Natural stuff.
My migraines are gone. I used to wear sunglasses in the house and now I can walk outside without Sunglasses and not get sick. I went from a daily constant migraine to a minor headache once a week.
My night sweats are gone.
My brain fog is lifting. I can read a magazine again!
Most importantly. I don't feel like I'm dying anymore.... I feel so alive. I am thinking about leaving the house... I actually want to leave the house! I need a little more energy though before I leave the house. Maybe in a few days. I want to go get some Dairy Queen! Yum. It's so missed!
I hope to meet some awesome Wisconsin Lymies while I'm here! message me if you have any questions!
We need more peace and love. No more fighting and angry people. It's to much energy. I'd rather be happy!
I would like to thank all of those who have donated to me monetarily AND I'd also like to thank those who have supported me with kind words that bring my spirits up!! It all means so much to me!! Xoxo
I would like to thank all of those who have donated to me monetarily AND i' like to thank those who have supported me with kind words that bring my spirits up!! It all means so much to me!! Xoxo
Vic Nichols thank you for your support!!
Marilynn Jackier-Summers and Diana thank you for your donation!!
Colleen Seiter I'd like to learn more!
Great news for everyone!! Friday, May 4th a woman named Kimberly from KTLA will be coming to my home. She said she'd love to do a feature and documentary on LYME.
Moshe Ariyeh. No worries on the multiple posts. I do it all the time. ;). The brain fog is terrible! Thank you for sticking up for me and all the others with LYME disease!
I hurt so much I can't sleep but I'm exhausted!
I found out...We lymies set the record on dr phil. Message board. They have never had that much conversation on the message board in the history of Dr. Phil. This shows how many LYME patients are sick and suffering. So sad. Remember! Talk about Lyme! Educate everyone you can! Knowledge is power! Let's change some stuff!
I'd like to apologize for my outburst of anger earlier. I've been sick five years now. Lost 45lbs from this disease. I'm disgustingly skinny. I'm not anorexic. Don't tell me to eat I eat more than you. Yes. I used to model. Are we shocked? No, I said it on doctor phil. I acted too. I also can sing and song write. Did I want fame. Yes, I am in Hollywood isn't that why you move here? Lol. Who doesn't want attention? To be called pretty? to be recognized for your skill sets? Recognized for talent? Unfortunately I went to long with the disease in my body and it took my walking ability from me. For those who want to call me lazy. I apologize for having neuropathy and all the nerves in my legs are dead hence I CAN'T WALK NOW I'm in a wheelchair if you didn't know or notice. I'm learning to walk again now. I still can't feel my legs and get daily b-12 shots. I was told I'd never walk again but I don't accept that. My family disowned 8 years ago over religion. I believe they are in a cult we'll leave it at that. Having no blood family and being in a wheelchair has brought me to ask for donations. I am an advocate of Lyme. I refuse to let this happen to others when all I had to do was talk about it. I got on Dr. Phil because a friend approached them for me because I have been given 2-3 years more to live unless I start treatment. I you want to talk crap about LYME patients do it anywhere but to me or near me. Watch the documentary called "under our skin". LYME is deadly like cancer or aids. Research the disease before you insult a cripple. Lastly. We're sick not stupid. We're sick not lazy. Live one day in my body and you probably would find a bridge to jump off of. Have a three hour seizure your conscious through. What goes around comes around. Pray you never get our disease. Use bug spray. Also, I was on millionaire matchmaker. I went to Canada. It was fun. It was about a year ago. You can DL on iTunes for 1.99. Season 5 episode 2 "the chauvinist and the playboy". My music is online if you want to hear it. I make no money off it. I just love to sing and songwrite. I did not get paid to be on dr phil. My disease is not a special treat that got me on TV. I did it to educate the ignorant, teach those who don't know and support my lyme family. You'll see more of me. I'm not lazy. Just sick.
Also Kristy Alvarez. Watch the whole show before you open such an ugly mouth.
Hey kristy Alvarez. Go fuck yourself. Im
In the hospital if you'd like to come repeat that to my face. I'm sorry your ugly and not liked. Probably because you have a terrible personality. You think I can fake seizues? Dann I'm
Good at acting! Your laughable. Oh ang Yes!! CONGRATULATIONS to me I was on millionaire matchmaker. Apparently you don't know when things are recorded it takes a while to go on air. There's stuff called editing and processing. You can find all these big words on dictionary.com. I was a Model, actor, singer and songwriter. I've also written, recorded and performed songs with famous people. Also, to get on dr phil You prove everything with medical records and are on the phone for days. I have a walker and know how to use it. So please. Come to the hospital. I'll give you another show!! :)
All my apologies for typing errors. I'm just to tired to go back and fix. I'm doing from my phone so it's easy to overlook with such small letters! Please forgive me and understand the errors
Brenda Schuh. I'd like to chat with you more. Your not crazy but doctors will make you feel that way. The Lyne community is amazing and supportative! I can maybe answer questions you have about Lyne and let you know how to start the process of finding the right doctor to get tested!
I am happy I am an honest person. Some people might same shame on me but hooray for me. I'm telling the truth. I hurt.
I was on Dr. Phil for my journey with my LYME disease. It is most likely online if you missed it!
Apparently I couldn't spell a few minutes ago! My Phone thinks it says what I'm thinking. Lol. Thank you for the donations!
Thank you for the donatios. You have brought tears of toy to me
I just got home from the hospital AGAIN. Yesterday 911 had to be called because my body keeps going into severe muscle spasms, my body feels it keeps electrically shocking me. I shake around and they do look like I'm having a seizure but my mind is clear through all of this and not affected. Then it gets so bad my whole body is so locked up I feel paralyzed until I can get pain medications to loosen my muscles and calm my nerves. It literally feels like someone is electrically shocking me. I felt it coming on again today so I immediately had someone take me to the ER and did the whole thing over again like the night before. It's the most painful thing I've been through yet. Especially when your body is shaking out of control and they aren't giving you medicine to calm down the muscles and nerves. Again, I was asked to leave because I don't have medical insurance I'm a cash patient and need to go home and try to deal with this"¦ I need to raise someone money for a policy. ASAP. If anyone can help I'd appreciate it.
I went to the LYME doctor today. He is the one who will be giving me the injections to make me walk again. I need to go once a week for the next six months. The doctor is in Thousand Oaks and I live in Hollywood. It's a good 40 miles away. If people could help take me to appointments that would be amazing as I CAN'T drive. Help in anyway would be appreciated! Right now I don't feel much progress in the treatments. BUT, I've only had a few so that's probably why! I've had about one month of injections and they are estimating 6 months for the nerves to come alive again, if they ever do. I'm hopeful and the doctors are also I'll push through this. My immune system is very low and weak. My doctor is trying to put fat on me now. My LYME doctor has also decided to stop my LYME treatment at the moment. I am on so many medications to try to make me walk that are very powerful he's afraid I might get overloaded with too much medicine and it could put a hole in my stomach from it. So, once I can walk again we will then start working on the LYME disease treatment again. I am trying to get on temporary disability but it seems to be a slow process. I have no insurance so that is hard now. I need money to pay for the treatments or there is no walking in my future :(
UPDATE ON HEALTH: I just left the hospital again yesterday and found out I have Neuropathy now also. About 14 days in the hospital to get a diagnosis. All the nerves in my legs have died and about half in my arms. They are hoping with b12 injections I might be able to walk again in 3-6 months but no guarantee.
This is you a fundraiser i'm doing for my LYME disease. Please feel to donate whatever you can. Merry Christmas.