Alice in Cranioland Fund - skull surgery
Donation protected
Our baby girl was diagnosed with a rare skull birth defect called Craniosynostosis. Craniosynostosis is the premature fusing or closing of an infant's skull. Left untreated it would interfere with normal skull and brain growth and cold cause pressure in the brain. Skull surgery was necessary to correct her condition. The doctor perfromed an endoscopic strip craniectomy to open up the fused side of her skull when she was 5 months old. After surgery she required a helmet to help mold her skull after the suture was released. She is on her second helmet. Without these helmets, Alice would not have had the wonderful results she has today. We have struggled financially with medical bills since her surgery...and we were able to to take care of the hospital bills, finally. However we still owe money to cover the costs of her helmets. These bills are way past due. Anything you can do to help is greatly appreciated...just trying to get some help to put towards her balance at Hanger, no matter how big or small. If you would rather send a check directly to them, I can give you that info also, email me at [email redacted].
For more info......
This is a video I made to raise awareness https://www.youtube.com/watch?v=k6e-4k18zLc
and this is another more recent one https://www.youtube.com/watch?v=B-UWIu5J_5Y.
Also visit our blog for a detailed account of our journey with our baby http://coronalcraniosynostosis.blogspot.com/
or facebook at https://www.facebook.com/AliceinCranioland.
#AliceinCranioland
and this is another more recent one https://www.youtube.com/watch?v=B-UWIu5J_5Y.
Also visit our blog for a detailed account of our journey with our baby http://coronalcraniosynostosis.blogspot.com/
or facebook at https://www.facebook.com/AliceinCranioland.
#AliceinCranioland
Organizer
Cheryl Read
Organizer
Laurel, VA