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Jennifer's CRPS treatment fundraiser

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My name is Jennifer, Im 36 years old and have a 12 year old loving son. I also live with my amazing boyfriend and best friend I've known for about 10 years now who both have been taking care of me the best they can the best way they can, they are exhausted!
  I am raising money to help pay for treatments for my Complex Regional Pain syndrome. For more information on this monster of a disease that affects your autonomic and sympathetc nervous systems please visit www.rsds.org 
  In a matter of 6 months my symptoms have left me bedridden. I went from walking with the assistance of a cane to not being able to walk at all or stand. I now have CRPS full body! Not just limited to one limb. I can no longer cook for myself, 12 year old special needs son,or family. I can't get up the stairs to attempt laundry or take a bath or sleep in my own bed or spend time with my son in his room. I have a hand me down 20 year old mattress in our small living room that hurts even more to lay on. I really need a hospital bed but our apartment is too small for this monster of a disease. I have too much medical equipment as it is. Some of which I had no choice to pay out of pocket . 

Each new injury I acquire exasperates my condition, for example I don't have a wheelchair ramp to get in and out of my apartment so going up and down steps injures my back each day. The burden of this disease has flipped my family life upside down because it hit us hard and fast. We had no time to adjust. For my family's sake over my own I need treatment as soon as possible because watching the turmoil they go through is just as painful as the crps pain which is the most painful disease known to mankind (reference the McGill pain scale) it rates a 42 out of 50. 50 hasn't yet been rated yet. I cry for hours every day and sleep whenever I can. Mostly the pain keeps me awake and stressing over the things I can't do for my son like cook him nutrious meals and organize his room or spend quality time with him. He spends most of his time in his room so he doesn't have to watch me cry. He falls asleep in school because my bouts of crying wake him at night. I am asking for help and trying to keep a positive attitude but don't know how much longer I will have one. May God bless you all. My special needs son and my boyfriend have been taking care of all my needs the best they can, I just want to give them something back for all their hard work ...  me. How I was in 2010  and some of 2011 before the symptoms crept up on me.
   Iam unable to even handle a 20 minute car ride ( as they are too painful ), my son has never gone anywhere special and he deserves it! I just want to walk again at best be able to do a load of laundry or cook a meal, brush & wash my hair, take a bath/shower, and stand without falling over and re injuring myself.  These are simple daily tasks that you can and do every day without a second thought.  I haven't beenable to do on my own or at all...  I'll be able to with treatment and much more! MY quality of life which has been a 0 for the past 6 months would go to atleast a 7 and that's good enough for me. Thank you for your consideration on this matter, CRPS is a very common underdiagnosed/misdiagnosed neuro-immflammatory disease that affects 1 in 32 people world wide. There is not enough awareness spread about this disease or knowledgeable doctors. Please if anything educate yourself,
www.rsds.org, www.rsdcrpsdoesntownme.com, www.crpspartnersinpain, and for you facebook users if you haven't found us already visit rsdcrpsdoesntownme for more support! Positivity is important to the process of healing from any ailment, I have seem to fallen away from it and am trying to find my way back. Prayers needed and appreciated.!

  * SEPTEMBER IS NATIONAL PAIN AWARENESS MONTH! 

  ** NOVEMBER IS CRPS AWARENESS MONTH !!**
 If by chance during this month you notice people donning in their daily wardrobe choices, or a flock of orange balloons fly by... It's to raise awareness for Complex Regional Pain Syndrome!

Organizer

Jennifer Groves
Organizer
Mays Landing, NJ

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