Anyone who has met Sam, age 5, his twin sister Ava, Cassie or Matt you know this is a special family. They are truly the most loving, selfless, giving, kind, and amazing family you will meet. We have watched them and their heroic strength over the past months and have wondered many times how we could help them just a bit in this chapter of their lives. This can be a simple way. In January, Sam and his Mom will take their journey to Jacksonville, Florida for proton cancer treatment. Along with being apart from each other over the next 30 days or so they will be incurring costs for flights, food, and everyday living expenses during this difficult time.
Here is a bit about Super Sam's journey:
This summer Sam developed a bump on his nose, at first the family thought if was a tick bite from blackberry picking. Upon seeing a doctor they figured it would be something very simple but further tests revealed something much worse. Sam was diagnosed with Rhabdomyoscarmas, which is a very rare cancer. In the Unites States there are only around 350 diagnosis' per year and almost always in children aged 1-5 years old. Over the past few months Sam has battled countless surgeries and rounds of chemotherapy.
Sam will be traveling to Florida in order to receive the newest radiation Proton therapy which will decrease the amount of radiation his little brain will have to be subjected to. Considering the cancer is in the nasopharynx, only separated from his brain by a thin lining between the two a normal x-ray radiation therapy would greatly effect his brain and risks of severe side effects greatly increase. Therefore since only a few institutes have this technology it's necessary for them to travel.
Only about 350 kids a year are diagnosed with rhabdomyosarcoma and less than a handful of documented cases in the world are like Sam's (location) therefore treatment (especially radio therapy) is vital to help Sam suffer fewer side effects with so many years ahead of him.
Sam is a true inspiration to everyone around him and many of us know that his strength was learned from his amazing parents who have raised him with a strong faith in god, in himself, and the goodness of others.
Since the first second Cassie and Matt received the news, they dropped everything to be there for Sam. Cassie has taken a personal leave from her job as a District Manager with Aldi along with Matt taking many unpaid days off from work to be there by Sam's bedside for the many doctors appointments and surgeries. Along with their decreased family income they have accumulated very large medical expenses. During this season of giving, we hope you can help make the Santhuff's 2014 a bit easier by giving anything you can.
Sam's journey is moving along, and we all pray for his strength during this chapter in his little life. He still has months of treatments left, and we will be here supporting him and his family the entire way through! We can't imagine a harder struggle then watching a child endure cancer, but Sam sure is "kicking cancers butt!" as he says! You can read more details about Sam's journey on his Caringbridge page. The link is below or you can search Sam Santhuff. Any other questions about this website or separate donations can be forwarded to Jennie Buss at firstname.lastname@example.org or at 636.699.8629
Many of us have so much to be grateful for, please, please pass your goodness, prayers, and love onto Super Sam and the entire Santhuff Family. Thank you!!
Link to Caringbridge: http://www.caringbridge.org/visit/samsanthuff