As we approach the four month post-accident, I am amazed daily at Patrick's stamina, determination and calm demeanor throughout this horrific ordeal. In the past two weeks, Patrick has had many changes and scares.
Patrick came home for the day last weekend. The smile on his face when we pulled up to the house and I wheeled him inside was one that brought tears of joy and thankfulness. His grin was from ear to ear when he was surrounded by his dogs, cats, friends and mother. Below are a couple pictures of Patrick enjoying his day visit. Patrick continues to work diligently in therapy. His speech is coming along slowly. Patrick's recall is very short. He's essentially relearning everything through a process of mimicking as his brain continues to heal, the synapses continue to reconnect and he continues to remember that which he knew before the accident. This is a very grey timetable for which patience, support and positivity are some of the best medicine.
Shortly after the home visit, I learned that Patrick had reached then end of the line at Valley Medical Center and the next move needed to happen.
Patrick was transferred to the Center For Neuro Skills (CNS) in Emeryville, California on September 3rd. This facility is a non-hospital based rehab center wherein the patients are paired into an apartment with a "Neurospecialist", attend 6 hours of therapy a day at the CNS main center and live in an apartment a mile away with another patient and their assigned Neurospecialist. The theory being that you maximize therapy during the first six months post accident while providing an environment wherein Patrick can learn ADLs (activities of daily living) with other patients in his condition during the off hours while not in therapy. While in theory this sounded great, yesterday I received the dreaded call that Patrick had fallen due to admitted lack of monitoring by his "Neurospecialist".
Patrick spent the majority of yesterday at the hospital getting CT scans and pelvic x-rays. Thanks be to God, Patrick sustained no additional injuries as a result of this negligence. Needless to say, I spent the remainder of the day making sure Patrick was safe and would not be left unattended again. I also learned that the term "Neurospecialist" equates to a 22 year old who had two weeks of training. As I continue to navigate these unchartered waters, I'm speechless some days about the extent to which the medical staff has to be constantly monitored, especially in Patrick's case when he can’t communicate.
Patrick and I ended the night with Mom cooking him a spaghetti dinner and having some discussions with the "Neurospecialist". I pray that we have no more scares such as yesterday and that Patrick will get the attention and care he deserves at this most expensive facility that is not covered by insurance.
Haylie is doing great. She is a happy and energetic 3yr old. She loves to walk her Uncle Nick to the bus stop and of course, can't wait for him to get home from school to play. I am working out the logistics of Haylie visiting with her Dad at the new CNS facility.
I have continued faith that we are going to make it through this. I received a text this morning as I do each morning from the TBI (Traumatic Brain Institute) which says it all,
"Not to Spoil the Ending For You, But Everything Is Going To Be OK".
God Bless and thank you for your continued support.
8-30-2014: I'm Heading Home!!!
8-30-2014: Patrick's First Visit Home
8-30-2014: Patrick Heading Out in Style