Updated posted by Fallon Mirsky 4 days ago
March 5, 2014 Hey- Just wanted to update you...
March 5, 2014
Just wanted to update you briefly!
It is March 5th and from the looks of the weather outside… you would never know it. When is this weather going to end? Not only is it unbearably cold, but also it is wreaking havoc on my body. I really need some warm weather so desperately.
This weather has to let up soon or it is really honestly going to kill me. When we went to the vascular surgeon today, the doctor told me that since the winter has been so relentlessly cold with no real “warm-ups,” it really has affected me. He had confirmed that the cold has caused my circulation to really shut down and that is why my foot and left leg is blacker than ever. This winter has been like no other winter that we have had. It has been so cold and it has basically had no “breaks.” Therefore, my body is really reacting to it.
So the circulation worsening is contributing to the weather, but it is also because of my over all disease worsening as well. My body is deteriorating and my organs are shutting down. It was confirmed also that my organs are shutting down worse than we thought and therefore my circulation is also being affected. In addition, the added stress of all that is occurring with my illness and because of being so worried about what is going to happen with Mexico and worried about the medical expenses isn’t helping either. Everything is just causing me to deteriorate further and causing my circulation to worsen. However, I really have to be careful because it is at the point now where the circulation is so bad now that not only am I discoloring, but also unlike before where I would just change colors and sometimes resume somewhat normal coloration at rare times, I am darker than ever and it is remaining black no matter what I do. This is definitely not good because dark/black means no oxygen and tissue dying. It is when body parts remain black that the doctors are extremely worried and amputation becomes a real concern and possibility.
Therefore, the doctor really wants to start putting me on a new medication called POT. You might also know if it as Marijuana. I couldn’t believe that the doctor actually suggested this to me. He said, “The disease has gotten so severe that I think that the only thing that can possibly help is marijuana. At least it will help with the pain to some extent. It has helped in certain situations where people have had the most horrendous pain from Cancer and other diseases and nothing else has worked. Even though it won’t help per se ‘cure’ your illness, at least it will make you more comfortable.” I have really been on everything under the sun and I already take over 50 pills daily. However, I continue to suffer and I am being tortured 24/7 with absolutely no relief whatsoever.
There are only 2 problems that stand in my way. One problem that stands in my way is that I of course don’t have the funds to pay for it. Of course this is not going to be covered by insurance and therefore, it will have to come all out-of-pocket, which is something we definitely can’t afford. The bills are skyrocketing and snowballing all out of control here that we can’t even pay the mortgage, electric and heating bill, put food on the table, or even pay for my other medical expenses. Not to mention that I desperately need to go to Mexico, which is less than 2 months away and I need to come up with over $100,000. That is why I so desperately need the help of others. If you know any fundraising ideas or possibly can share my website for donations, I would really appreciate it.
Another huge problem that stands in my way is that it is illegal in New York. Even though I need it for medical reasons, it is still illegal. The doctor told me to go to a state such as California to get it, which it is legal in, but that doesn’t really solve the problem because I live in New York and still can’t bring it back. Why can’t New York legalize Marijuana already for medical use? So many states have already done so. Even Jersey has. So I don’t know what to do. The doctor really thinks that this is what it has come down to because I have gone beyond traditional medications. Even though I am rapidly deteriorating, the doctor wants me to at least be ‘feeling’ better!
In addition, the doctor also noticed that I have a plantar wart on my left foot. Never a dull moment! The problems just keep adding up!
This is definitely not good because my left foot is where the illness is the worst and I can’t afford for anything to touch this foot. I am so hypersensitive that I can’t be touched anywhere in my body… let alone my left leg and foot. The slightest touch will literally send me up the wall. So for anyone to even touch my left foot to treat the plantar wart will literally be impossible.
In addition, the skin on my body because of my illness is extremely thin. It is even thinner on my left foot because of the nature of the illness being worse there. Therefore, if anything happens to even bump my body, especially my left foot and leg, my skin will instantly open up. This is not a good sign because not only will it cause me excruciating pain, but also I can’t heal like a normal person. I risk the chance of getting infection so much and they are so fearful that it won’t heal at all. The doctors are especially fearful of any cuts happening in my left foot because that is where the circulation is the worst and if anything happens there, it is quite possible that it can lead to an infection, which would lead to gangrene and then result in amputation. So we really don’t know what to do because we really don’t want to risk getting an infection and having my foot amputated.
It appears that the plantar wart in my foot is extremely deep and big. The roots go really deep and it really should be removed. However, the surgeon said that in my case, he doesn’t know what to do. He said that he doesn’t really want to remove it because of the fact that it is not only going to be excruciating painful for me, but because it entails scraping and such, it will easily open up my skin for a possibly infection, which is extremely likely in my case. However, it is a huge problem because not only is a plantar wart an infection of the skin and a benign growth, but also they are also painful. So it only adds to the pain that I am already experiencing, as people who get plantar warts may feel as if they have a stone in their shoe.
So we don’t know what to do in this aspect. I guess we are just going to have to figure this out!
Updated posted by Fallon Mirsky 4 days ago
Well… in a few hours (since it is the middle of...
Well… in a few hours (since it is the middle of the night and I am like the only one awake because normal people are usually sleeping at this hour) I am going to be on my vacation from life. I will be undergoing a ketamine infusion/coma for the day and at least I will be away from my life for the day. This is the only time I can get relief and I look forward to it so much.
If only the ketamine would last. Unfortunately I need a dose that is way too high and it isn’t FDA approved. That is why I need to go to Mexico to have the ketamine coma performed there because the amount I need can only be given there. When I undergo the Ketamine in New York, it barely lasts longer than when I wake up. People might wonder why I put myself under the risk and go for it at all if it doesn’t even last beyond waking up. I go for it because at least while I am under, I am at least at peace and away from this torturous illness. I am out of my Hell for the time I am under the ketamine, which is for quite a few hours. When you are suffering like I am, you will take any relief that you can get… even if it is a split second. Also, even though the suffering comes back basically immediately, we are still hoping that it is slowing down the progression of the illness and “buying” me time.
So dad will be taking me in a few hours to get the ketamine. Thank goodness for my dad because I don’t know what I would do without him. He is so amazing. I only wish I didn’t put him through all this because he doesn’t deserve this. He is 60 years old and deserves to be enjoying his life. But instead, he is working harder than ever and he can’t even enjoy his life. He barely can rest, can’t go on vacation, can’t buy himself anything, can’t go out to dinner, or anything else that a normal person would take pleasure in.
My dad is really something else! He is not only my dad, but he is my best friend, confidant, someone I admire, and my Superman. But I only wish I could get better because I am so afraid that he is going to have a heart attack from all that he is doing. After all, he is no youngster and he is so overworked… not to mention how stressed out he is. But there is nothing that he wouldn’t do for me to try to get me well. He wants to get me well so badly and it kills him so much that he can’t get. He constantly tells me how he wishes that he could take the disease away from me or that he wishes he could ‘switch places’ with me. I tell him though that even if he did, he would never be able to handle this. He may be Superman but he wouldn’t be able to handle this for more than a second. He would gladly give this back to me immediately.
But I only wish I can get better so that I can not only enjoy my life and get back all that was robbed from me by this illness, but I want my dad to be able to enjoy his life as well. I want to do so much with my dad and I want to be able to even have him around to see me become a doctor, walk me down the aisle, etc., which I know is probably only going to happen when I get well.
So we will be off to Ketamine together in a few hours. Going for ketamine doesn’t just help me, but in a way it helps dad too because dad is able to finally ‘rest’ when he takes me. After all, I am there for basically the entire day and therefore he ends up resting and sleeping. What else is there to do while I sleep? I pack him a snack bag, he brings the paper, and he is all set! Even though my dad is Superman, even Superman needs to rest at times. Since he works so very hard and so many hours of the day, at least he gets this time to rest. In fact, when we went to the vascular surgeon today, he fell asleep waiting for the doctor because he was so tired. He was so tired that he even was snoring. I videotaped him to show him because I knew he wouldn’t believe me. This way I didn’t just have the proof that he was sleeping, but that he was ‘snoring’ too.
I also got an amazing gift today from a dear friend. I received some little knickknacks that someone made me from scratch. You know those rainbow looms? Well, I was fortunate for her to make me quite a few things such as a panda, bracelet, peace sign, etc. I am so incredibly thankful for the lovely things she made. I'm decorating my IV poles and going to bring then to Mexico with me. This way I have a little touch of home to bring with me for luck!! I remember reading a book that entailed a girl who had cancer and she built 1000 paper cranes for luck. Well, I was thinking of doing the same thing but I was going to make 1000 rainbow loom critters. I was going to then bring them to the hospital with me. However, not only does it looks very complicated, but it is also expensive, and I don’t have the money to waste on rubber bands. But it would have been a nice idea to do because not only would it have been nice to bring to the hospital and decorate the IV poles and room, but also it would have given me something to do.
Well… I am going to get going. I will write more when I know more. Just a tidbit reminder like always that “Help Fallon Fight” Bracelets are still continuing to be sold. They are $5 and come in pink or blue. Contact me through Facebook or by emailing Femirsky@gmail.com, if interested. All money goes towards my medical expenses! Please also email me if you have any further fundraising ideas.
Thanks again for all your support and encouragement.
Updated posted by Fallon Mirsky 5 days ago
The radical Ketamine Coma in Mexico is my only...
The radical Ketamine Coma in Mexico is my only chance of living. There really isn’t much else that I can do to combat this illness, as I have tried every other treatment modality. I desperately need that radical ketamine coma in Mexico as soon as possible because it will actually “reset” my entire nervous system and hopefully cure me. It is like my only hope! However, we cannot afford it alone, as it will cost over $100,000. That is why I am so desperate for the help of others. I know that without this coma, I am not going to make it much longer and I really don’t want to die. I have too much to live for and I really want to get better so badly. I really want to get better so that I can make a difference in society and get back all that I have been robbed of by having this illness.
But I know I need this help as soon as possible because I am really deteriorating and deteriorating fast. My body is shutting down and I desperately need this lifesaving treatment. I also need help in paying for my medical expenses, as we can’t afford even the current treatment and medications and appointments that I am receiving in the United States. I desperately need this treatment to help keep me alive, to keep my as comfortable as possible, as well as to “buy” time until I am able to get to Mexico. I am supposed to be undergoing the Ketamine Coma May 1st, but if I don’t have the funds, I won’t be able to do it. Therefore, I am praying that all will work out. If you have any fundraiser ideas, please don’t hesitate to email me at Femirsky@gmail.com and let me know. If you can please spread the word about donations needed to save my life, I would appreciate it.
In the meantime, I am progressively getting worse. I am going in the morning to a vascular surgeon because my left leg is completely black. We are not sure why it is remaining so black, and we are scared because black means that no oxygen is getting to the tissues and it is dying. I recently went for Hyperbaric Oxygen treatment in hopes that oxygen can be restored and blood flow could be resumed, but nothing was accomplished. In fact, I took a before and after picture and there was absolutely no change. When I actually showed my dad the picture after the treatment, my dad didn’t even realize that it was the “after” picture because there was absolutely no change. Usually the coloration gets better because the chamber causes more oxygenation into my tissues. So when I still saw the blackness and that there was absolutely “no change”, I was really scared.
We really need to have it checked out because I don’t want to lose my foot. Turning black could also mean that it is going “gangrene” and it needs amputation. This would not be good because you can’t just cut off my leg or anything because this disease is a disease of the central nervous system and therefore, it encompasses the brain, spinal column, and entire nervous system. So typically if you even amputate the limb or anything… it will continue to spread and even spread even worse.
In addition, I am also scared that the blackness means that there is something wrong with my heart. I already know that my heart does have problems and is weak. I did receive my bloods back today and it came back abnormal. My bloods have gotten worse and one value that worsened as well was the carbon dioxide level, which means that I am not getting enough oxygenation. So I am scared that this blackness could mean something more seriously wrong with my heart is occurring.
So I guess I will find out in a few hours hopefully what is going on because I have an appointment with the vascular surgeon. I am really nervous because I really don’t know what to make of the blackness. I am used to changing colors and for my body to even go to black at times, but this is remaining black at all times. It never has done this before.
I have also been getting sicker in other ways as well and I don’t know if it could mean anything. I have been extremely weak lately and barely able to even stand up. I don’t know if it is because of my illness or because maybe because I have lost weight, which is a major problem because any weight being lost when you only weigh in the 60s is a major problem. It is really a matter of life and death when you lose even an ounce. I definitely can’t afford for that to happen. I just can’t keep my weight on. I also am having a hard time going to the bathroom, as I think my kidneys might also be failing me. They have had problems in the past and I was on medications for them, but it has gotten a lot worse. I am going to have to make an appointment with the kidney doctor now because of all that is occurring.
Gosh... so much is happening… between going to see the vascular surgeon, having to now see the kidney doctor, and I still have to find out what to do about my intestines because I am bleeding and can’t go to the bathroom either. I am just so tired already. I am holding on and pushing forth, but I am weakening. I really need to remain as strong as possible for the Coma, but it is getting harder and harder. That is why I also need to have it ASAP. I can’t afford to put the coma off longer than May 1st. My body won’t make it much longer. So as I said before, any help that you can give in helping me get the necessary funds for the treatment, I would really appreciate.
At least tomorrow, Wednesday, I will be out of pain for the most part. I have a ketamine infusion/coma for the day. Even though it definitely doesn’t last, at least it takes me out of pain for the time that I am “under”. I will take any relief that I can get. We are also hoping that even though it doesn’t last long with the pain relief, we are still hoping that it slows down the progression of the illness. I need a dose that is so much higher and that is not FDA approved. That is why I need to go to Mexico to get that amount! Sometimes I only wish that I could live in a ketamine coma because at least I won’t be in pain! I can’t take the pain anymore.
Well… I am going to get some rest. I will let you know what happens with the vascular surgeon and the other appointments when I know more info. Thanks again for all your help and support. Remember… “Help Fallon Fight” Bracelets are still continuing to be sold. They are $5 and come in pink or blue. Contact me through Facebook or by emailing Femirsky@gmail.com, if interested. All money goes towards my medical expenses!
Created by Fallon Mirsky on December 24, 2011
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posted by Ben Seay 3 months ago
Hi Fallon, As I was awaiting my turn for Sympathetic nerve injections for my RSD I saw your flyer. I want you to know although I am walking again and was never as ill as yourself I understand. I also learned who really cared about me and unless your in a situation as yourself most don't understand. Unfortunately I am not in the financial situation to help, I'd like to help by being your friend. If you'd like you can email me at email@example.com
posted by Heidi Breen 13 months ago
Hi Fallon, I did not know you had a friend like Missy. I have 3 "friends". Papoose, Spanky and Nefertitti. They are my wonderful friends and companions. I don't know if the following would be helpful or a comfort to you, but I thought I would pass it on. I got it from a daily devotional from Joseph Prince Ministries. He is SUPER positive and has LOTS to say about how Jesus heals. You can surely find more about him by googling him. You can ask them their ministry to pray for you if you like. Here is what I received today: "Someone once told me that just because you ask God for something, it does not mean that He will give it to you. Quoting 1 John 5:1415, he said that we first have to ask according to His will before He hears and gives us what we ask of Him. Of course, we do not ask for things that are against Gods will or Word. But what is normally implied in the earlier statement is that we dont always know what Gods will for us is what will be, will be. But didnt Jesus say, He who has seen Me has seen the Father? (John 14:9) This means that if you want to know what the Fathers will, mind, heart or attitude toward you and your family is, just look at Jesus in the Gospel stories. So if your child is sick, is it Gods will to heal him? Well, look at Jesus and see how He ministered to children who were sick the Syro-Phoenicians daughter who was demon-possessed (Mark 7:2430), Jairus daughter who was dead (Mark 5:2224, 3543), and the widow of Nains only son who had died and was about to be buried. (Luke 7:1215) Jesus cast out the demon. He raised the dead. He healed them all! Beloved, dont say, We can never know Gods will. Sometimes He heals, sometimes He doesnt. He may prosper us, but He may also take away our prosperity. The Jesus of the Bible never made anyone sick. He never made anyone poor. He made the little become much with 12 baskets full of leftovers. (Matthew 14:20) He gave a net-breaking, boat-sinking load of fish to fishermen. (Luke 5:67) My friend, the Jesus of the Bible loves to heal, deliver, prosper and save people. This Jesus is the same yesterday, today, and forever. (Hebrews 13:8) And He says to you today, If you had known Me, you would have known My Father also; and from now on you know Him and have seen Him. So you can know Gods will for you. You can see what He will do for you when you know the Jesus of the Bible and what He did. "
posted by Laurie Burke 14 months ago
I have been sick for too long. I have been officially diagnosed since 2001. But, they think I possibly have had it longer than that!!
posted by Fallon Mirsky 15 months ago
how long have you been sick
posted by Patricia Patane 15 months ago
Would like to heal you and advise you immediately to take Aloe Vera Gel from forever living on this id number 910002247475. Aloe Vera from forever has the potential to restore functionality of the intestines and also stop bleeding. I will heal you and stop the bleeding with the techniques bestowed and taught by my Master and my healing teacher. God bless you. Know you are healthy and all is well . Lord be with you . Amen
posted by Nayanika Jayaram 17 months ago
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