This family still needs our Help Please!!! Ashton is going home from rehab today! He continues to recover more all the time. He still has a very long way to go as he isn't by far 100% yet. He requires outpatient therapy 3x a wk as well as follow up appointments which are located in Columbia, 25 miles away. His little sister Mariana has therapy 2x a wk in Jeff City, 25 miles the opposite direction.
Lori and Billy both work full time to try to pay the bills. Lori is still struggling to keep her job. They work alternate shifts, days off, and somehow 5 days a week they will have to get one of their children to therapy. The cost of gas alone will be hard to do but they are determined to make it work. Someone has to be with Ashton 24 hrs a day so sleep will be appreciated whenever possible.
Ashton still cannot have a lot of stimulation so visits must be kept to minimum for his sake. They definitely do not want to have to return to the hospital. Please contact Lori or Billy before stopping by to make sure the timing is good. Lori says, "I'm not really sure how Ashton feels about his haircut just yet." When he had surgery, they shaved the area where the incision was to be and left the rest. He cannot get his hair cut until the incision heals due to the risk of infection. Of course, "Mom" is worried about her boy's feelings.
They really appreciate the support and prayers that they have received from family and friends. Somehow, one day, all the pieces will fall into place and this will all be a memory. Please continue to pray for Ashton and his family as they grow stronger. Share this page as all donations will be appreciated and helpful to get through this.
Thank God, Ashton is doing good! All of the tubes are out as he pulled the last one on his own! He has moved to rehab and is expected to continue making improvements. Thanks for your prayers and donations!
Please continue to pray for this family in their time of need! Share this page and donate if you can. Ashton was perfectly fine one minute and the next, he wasn't.
This could happen to any child, no mistakes were made and there wasn't an accident. It's kind of scary to think of what can happen.
The Dr's attempted to take the breathing tube out on Friday, it didn't go so well so they had to put in a new one in. But, they were able to take the drain tube out of his head on Saturday because his cranial pressure is stable. Now they just have to wait for the swelling in his airways to go down so they can remove the second breathing tube successfully. His temperature has been down Saturday and Sunday.
Right now they are battling his swollen airway, if the swelling doesn't go down they will have to put in a trach. They can remove the tube when he's awake but he is sedated due to his high anxiety. He is so scared that they had to sedate him to replace the new tube. They won't know until tomorrow after the ENT consult if he has to have a trach or not.
Yes, Lori and Billy have been explaining to him what is going on but he's been so confused from the meds, they aren't sure how much he's actually understanding. He's very shaky, anxious and nervous so the Dr's have had to give him a lot of meds to keep him pretty sedated and calm.
Yay!!! The Dr's discontinued the meds that keep Ashton in a coma. He's moving his arms and legs! He's coughing a lot while trying to clear his lungs! He's not awake yet but he is responding appropriately! He reaches for the tube when they suction him, he vomited earlier but he's better now since he did! They took another ct of his head today and said it looks great and they are still going to watch his cranial pressure, but not as close. His blood pressure is up a bit so they are watching it too but overall they say he's moving in the right direction. Thank God!
Lori and Billy want to tell everyone, "Thank you so much and they want to make sure everyone knows how much they appreciate their prayers and their donations as they are going to come in very handy."
Ashton had a temp early today and his pressure on his brain was up a little bit but the Dr's said as he wakes up this will happen. They are being more aggressive about turning and repositioning him so he doesn't get pneumonia. He is better now though, his pressure isn't too bad and temp is down. It's just a whole body process as his body starts to wake up things are going to change back and forth. We all panic every-time but the Dr's are saying he still looks good. They are just worried about pneumonia now so they have to frequently turn him and adjust the ventilator settings a bit. Keep the prayers coming Please!
5-13-14 Praise God! The Dr's were able to decrease Ashton's meds that keep him in a coma. He is tolerating this so far and the pressure on his brain is stable. Lori is still by his side waiting for the day that he wakes up. Praying that he will be able to be awake this weekend! We will continue to share updates as he gets well. Thank you so much for your support during this trial!
Last night (Saturday) Ashton's cranial pressure was good. This morning (Sunday) it jumped up so they had to increase his sedation again. His meds are now as high as they can go. If the pressure jumps again, they will have to bring it down by draining the fluid or giving him meds to reduce the swelling. So far the pressure has been at a good level since the med increase. Please keep praying for total healing for Ashton!
On Tuesday May 6th at 4am, Ashton who is only 10 years old woke up screaming and said his head hurt really bad. He was limp, his Dad, Billy had to carry him to the bathroom. He couldn't sit up and he couldn't make it back from the bathroom so Billy and his Mom, Lori carried him to bed. He was unresponsive so Lori called 911. He had a hemmoragic stroke and seizure activity in the ambulance. Ashton was taken to Women's and Children's Hospital in Columbia, MO. They intubated him, sent him to get a ct scan and a chest X-ray. Lori and Billy had to wait in picu for results. When the Dr came in, he said that Ashton had bleeding on his brain and they weren't sure why. But, they had to remove the fluid that was causing pressure on his brain. So, they placed a drain tube in to remove the extra fluid, then they checked again and saw an avm. They needed to do an angiogram and Ashton would require surgery so he was immediately transferred to Missouri University. They blocked off all the blood vessels with glue and he went straight into surgery. He was in surgery about 4hrs where they had to open his brain and take out the avm. Billy, Lori, and Ashton spent the night in the MU ICU. They did another ct scan (no blood noted and brain had returned to the middle of the skull), another angiogram showed that there weren't any more avm's found. They spent the night and were transferd back to Women's and Children's. They are continuously having trouble controlling his intracranial pressure. Even with sedation, he was still responding to stimuli so they had to darken the room, stay quiet and cut visits short. They placed a feeding tube in Wednesday and Friday they placed him in a drug induced coma to help control his intracranial pressure. The pressure was low last night then it jumped up again this morning. They increased sedation to help with his brain stimuli, again turned lights down, decreased visits and had to be very quiet. Ashton is resting now and it's just a waiting game. He cannot come off sedation until his icp numbers are low for a day or so. They won't know what kind of damage was done from the initial bleed until he wakes up. They told them that children are very resilient and that all of this is usual with this type of injury. He will have good days and bad days. The usual recovery time from the sugery is 6wks to 3 months. Lori says that she can still hold his hand but he just can't have a lot of commotion in his room. She has not left his side, sleeping at the foot of his bed and resting when possible. Lori was working in a Nursing Home but she will more than likely no longer have a job. Since she has not been employed there for a year as of yet, they will not hold her position. Billy is back to work as he cannot afford to miss work and they have a daughter at home that requires their time also. This young family truly needs us to support them by offering our prayers and donating funds if possible. It is hard for them to ask for any kind of help but the bills still have to be paid and due to this tragedy they are down to one income for an unknown amount of time. Please pray for Lori especially as she spends Mother's Day at the hospital, holding Ashton's hand and pray for Billy to have the strength to hold his family together. Most of all please pray for total healing for Ashton.
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