We're almost there. I can't believe how hard this is. There is so much involved in making these arrangements. I've never had to do this before. I'm only 42 and Sean was only 48. I shouldn't be having to make these arrangements yet. Please help in any way you can!
Sean's memorial service will be held on Saturday, July 26, 2014 at the central assembly of God in angleton, Texas at 7 pm. All are welcome and we would love to hear you share some fond memories with Sean.
Thanks again for anything and everything you have done and will do to help.
I come to you this evening a broken woman. My wonderful husband, Sean passed away this morning at 11:15am. Needless to say we had no life insurance because no one will cover someone with that many health issues. Plus all the medical bills that had drained our savings ad infinitum. His cremation and memorial service will cost $2500.00. They won't even cremated him until we pay in FULL. But at least we don't have to raise $20,000.00 for postransplant medications anymore and he can run. He can hold our beloved grandson Travis in his arms again and his legs don't hurt anymore. That means more to me than anything. Thank you SO much.
What a day today has been already. I was on the phone again with Sean's prescription case manager and even talked to the hospital about prescription help. We are stuck paying cash for his meds now until the $4500 donut hole is met. The hospital social workers said that we cannot qualify for free or reduced meds until AFTER the transplants. Frustrating to say the least. My husband is waiting to die or get a phone call to save his life, just not fair but we've given it to God and believe things will be sorted out soon. I can't believe what a patient man I married.
Yesterday was a rough day to say the least. I contacted Sean's Medicare prescription person and she said we will remain in a donut hole until we pay another $4500 out of pocket. The post transplant meds will still be $3500 or more because they ARE NOT covered.
God did bless us yesterday when my daughter was talking to a coworker who happened to use the same insulin Sean did and had a couple of extra pens. She was generous to donate them to us, such a blessing.
The need now is only getting greater so I ask again that this be passed around and shared as much as possible. We go to Sean's doctor tomorrow and unless we can somehow cover the donut hole, it's possible he will have to be admitted to receive all of his meds that are quickly running out.
Some good news is that Sean was able to drop 6 lbs of excess fluid overnight, so he's back in transplant range. He has to maintain a weight of 218 or below and is usually 200-205 on any given day.
PLEASE WATCH the Fox News coverage as it shows our needs and has an interview with Sean's heart transplant doctor. We even learned something new that we didn't know. The prognosis isn't good.
PLEASE SHARE Fox news Houston. MyFoxHouston http://t.co/PkixFa0NWA. I hope this works. We still need many prayers and thoughts, plus hopefully this
will be shared many, many times. God Bless you all for the support.
Sean finally had his story covered by the news media last night on Fox news Houston. MyFoxHouston http://t.co/PkixFa0NWA. I hope this works. We still need many prayers and thoughts, plus hopefully this
will be shared many times. He is doing good today but has retained more fluid overnight. He's to double his fluid pills for the weekend and see what happens. God Bless you all for the support.
Sorry, there was a typo in the address.
Sean finally had his story covered by the news media last night on Fox news Houston. MyFoxHouston http;//t.co/PkixFa0NWA. I hope this works. We still need many prayers and thoughts, plus hopefully this will be shared many times. He is doing good today but has retained more fluid overnight. He's to double his fluid pills for the weekend and see what happens. God Bless you all for the support.
Sean lost a few pounds in excess fluid overnight but the horrible cramping is back, this time in his hips and legs. He doesn't sleep at night, or can't I should say and the last couple of days breathing has been very hard. He's in a lot of pain so please, pass this page around and pray. We are relying on God's continued blessings for donations because we believe, trust and know it will be done. God Bless all of you, our supporters, family and friends.
We hope everyone had a fun and safe 4th of July. Sean has been getting some really intense dizzy spells the last couple of days and has become more exhausted. He's always tired, can't drink enough water, which is causing fluid retention, and a call to the doc in the morning is necessary. He's also been very depressed and not joking or smiling as much as he normally does despite all of his worries.
The news media has called and canceled a couple of interviews but say they will call in a few days. Thank you again for the help y'all are giving. This is the worst time of the month for us. Please keep passing this along and praying if you do.
First, Thank you for all of your thoughtful and much needed prayers and donations.We were finally in a position to buy our 4 and 5 yo grandsons some underwear and t-shirts, that fit! We have had 3 news channels seem interested is getting my story and our family's struggle out there. I'm supposed to get the chance to talk about losing our car, which was to be paid off on the 15th of this month, All of the costs associated with meds before and after transplant surgery and the cost of eating a healthy diet. Please pray as it's a new month with new bills, needs etc...
Last night was not a good one as Sean started experiencing severe muscle cramps. His heart is just not strong enough to help pump the fluid out of his body. If he tries to stay hydrated he gains too much fluid, if he doesn't drink enough he dehydrates. This is a daily, complicated situation which often puts him in a fetal position from the cramps and pain. He describes it as the worst, most painful "charlie horse" EVER. Today is not so bad except for his legs now and the delicate battle of drinking enough, but not too much water. It usually takes extra potassium pills and a couple of days to calm down. I am so helpless when he's going through the pain and all I can do is try and talk to him calmly to help settle him down.
Thank you for all of your help and continued prayers. With all of the pain he still insisted on attending our church yesterday. God is good and may God Bless you all!
Sean gets messages all the time about whether his story is true and is he really sick. He thought it would be a good idea to repost his ailments again for new visitors and for those with questions. Below is a list.
Please pray as it has been 6 months since Sean was "officially" listed on the transplant lists. Please pass this along and ANY prayers, donations or just well wishes will help.
Hole in heart, Heart valve pulmonary stenosis, Congestive Heart Failure(CHF), Hardening of the arteries, Irregular heartbeat, Type II diabetes, Sleep apnea, Cirrhosis of the liver caused by the heart meds over his lifetime, Ventricular Tachycardia (rapid heartbeat), Transposition of the Great Vessels, Mitral Regurgitation, Tricuspid Regurgitation, Peripheral Neuropathy, Vitamin D deficiency, Abnormal
Thyroid, Congenital Heart Disease, Chest Pains, Portal Vein Pressure in liver, Liver Encephalopathy, and Abnormal accumulation of abdomen fluid. Thank you for taking the time to read this and for passing along Sean's story.
Hello from stormy Angleton, TX,
Sean's meds kicked in last night and he was able to lose about 4 lbs of fluid weight although it still is pooled around his lungs. He's worried about another hospital stay thinking it would be his last. No matter what I tell him, me or anybody else has ever walked in his shoes. He prays and has faith but is scared none the less. Sean has had 1 huge celebrity back him and believe in him because we're not asking for frivolous things, only necessary things for him to try and live as long as possible. Yes, Sean does tweet a lot because he can contribute no matter where he is like bed or couch. Yet he never feels like he's doing enough. Thank you for all of you that continue to support him and pass his story along. There has been a few doubters that tweeted Sean and he responds with a simple photo of his list of issues and hospitals phone number. They usually end up apologizing.
God Bless you all and thank you in advance for the continued prayers an support.
Good Monday evening. We didn't have to see Sean's heart doc today because his b.p.'s over the weekend had been 90's/50's. The heat however is zapping any energy he would have and he struggles to breathe in this hot air. Sean joked today that Summer was almost over, ha ha. He is gaining some fluid weight trying to stay hydrated but that only means a hospital stay in the very near future. How he stays strong through all of our struggles with no vehicle, not being able to go to a park because of the heat or even financially just amazes me. Again, I am a very lucky woman, and if he was gone tomorrow, I can truly say this was the happiest time of my life.....EVER! The world needs more Sean's. Please pass this along and pray that God continues to touch hearts into helping or praying.
PLEASE PRAY. Sean woke up fine this morning and then his blood pressure plummeted to 60/40. He's very dizzy and weak. The doctors want me to watch him closely and check his b.p. often until Monday, barring an emergency of course. Monday, they will make a decision to admit him or not depending on how the weekend goes. PLEASE pass this on and God Bless you all that are following Sean's Journey.
No real updates except for the heat. Sean's heart has been beating way different lately and as soon as he gets overheated it acts crazier. It's a real catch 22 with him because he needs water to stay hydrated but at the same time takes numerous fluid pills to remove the excess from his body. Most of the fluid usually pools up by his lungs making it even harder to breathe. I just don't know what to do. Luckily I married a man with such a great sense of humor, who somehow can smile throughout all of our trials we're in now, the daily pain and sometimes depression. I am truly a lucky woman as are the people that know him well. He doesn't deserve this.
Thank you all for praying and please continue to pass this site around. God Bless you all!
We were able to make Sean's doctors appointment today and all is the same :( we just wait. Sean wanted me to give a list of his problems to help people understand more about what is wrong.
Hole in heart, Heart valve pulmonary stenosis, Congestive Heart Failure(CHF), Hardening of the arteries, Irregular heartbeat, Type II diabetes, Sleep apnea, Cirrhosis of the liver caused by the heart meds over his lifetime, Ventricular Tachycardia (rapid heartbeat), Transposition of the Great Vessels, Mitral Regurgitation, Tricuspid Regurgitation, Peripheral Neuropathy, Vitamin D deficiency, Abnormal Thyroid, Congenital Heart Disease, Chest Pains, Portal Vein Pressure in liver, Liver Encephalopathy, and Abnormal accumulation of abdomen fluid. Thank you for taking the time to read this and for passing along Sean's story.
I will try again to update this weekend on Sean, but for now he is hot and miserable. Sean is still waiting for his HUMILOG (fast acting insulin) and we were able to find some for $270. Now we trust in God and wait. He will provide. Sean has only been without it for 3 days, but seems to be doing ok because he still has his 24 hour insulin. Have a good weekend.
Wow, were we dealt a big blow last night. We found out that Sean's Medicare prescription part D has reached it's doughnut hole already this year on his medications, last year it was December. So, the insulin we were expecting to only pay $160 for has gone up to $720.00 PER MONTH. Just for insulin which is not even his other 8 pills he takes a day, and sometimes twice. We are trusting God to bless us and take care of Sean like he has for 48 years now. PLEASE pass this along to as many people that you can and prayers are greatly appreciated too.
God is good!
Sean is having a good day today despite trying to be in the heat for a few minutes. Another doctor appt on Monday that we have yet to borrow a vehicle for, but I'm working on that. Losing our car has hit our home bad, like it would most . I'm sure God has a plan for that too because we trust and believe that we will be pulled through this rough patch by him and of course you.
Good is good,
Same story, different day, HEAT HEAT HEAT and more HEAT!!!! We are hoping the doctor can get a sample or two of Sean's insulin until we can afford to get it. Hopefully they will. Otherwise, we are holding the abdomen fluid at bay, but this combined with the heat makes it even harder for him to breathe.I am so blessed that Sean takes all of this and can still laugh, he's trying so hard. God is good and God Bless you all today and always.
It's a perfect day here in Angleton, TX but, 88 degrees already at almost 11 am. Sean is not doing well in the heat but GOD did bless us by your donations to pay the electric bill before it was turned off. Thank you to my Lord and to you all. Sean has major issues with the heat and being able to breathe, plus he gets so winded just by walking five feet from the bed to the restroom. GOD willing we can get a/c for the bedroom. There are just so many things to worry about,he's getting so tired.
GOD Bless you and please pass this along to as many as possible.
Today seems to be a little better for Sean as he's able to breathe somewhat better and take his weenie dog Doug outside. Doug is really helping Sean emotionally and doesn't leave his side. I don't know what the weekend will bring as he is due to check in with his transplant doc by telephone on Monday. Sean does not due well in the heat so summer will be miserable for him. I love him so much that I wish I could take his pain away. He truly is one of a kind. GOD Bless you all and have a great weekend!! Will try and post again Sat or Sun.
Sean has been so depressed since yesterday's doctors appt to remove fluid from his abdomen. There was none because it has already started seeping into his tissues, so we were sent home. Wasted gas and parking fees! Money is not coming easily but I'm sure GOD will bless us again by the 16th, when we have to go back. For now he rests in bed and waits. God Bless You All!!
Still waiting for abdomen to be drained of about 1 gallon or more of fluid, hopefully by Wednesday. This makes me weaker and it's harder to breath. GOD has blessed us with a car to borrow and parking fees. It's been a month since we lost our car and we trust in GOD that he will provide one for us soon. We are making it day by day but we are trusting The Lord to provide. GOD Bless You all!
Georgia & Sean
Thank you for taking the time to read my updates. Sean is still retaining fluid and gained 3 pounds overnight. Now is the time when we hear from his doctor on a daily basis to see if he needs to be admitted to get the fluid drained. As you can imagine, it makes breathing much harder. Financially it's getting much harder as he needs something most everyday. Losing the car is hurting us more than ever but somehow God finds a way for us. Now, we wait by the phone for that transplant call. Please continue praying and sharing.
Happy Friday evening. I had an appointment with my heart transplant doc on Monday and we adjusted some meds but the fluid retention is still in my abdomen. I need to call them Tuesday to see where the weight is and possibly be admitted to remove it.
We are having such a hard time but appreciate the time you take to read this page and of course, the financial help. Please continue to share this page and say many prayers. Thank you again and Have a safe and happy Memorial Day. Thank you for your service!!!
Sean sees his heart transplant doctor tomorrow to see whether he has to have his belly tapped again. He looks to be retaining about 2 liters or more which also puts pressure on his lungs making it harder to breath. For the last few days, breathing has been difficult. The reason he needs a heart and liver transplant is because his heart flows backwards, therefore since birth, it hasn't been able to keep the liver pumping fluid out correctly, plus, all his meds for the last 48 years aided in both organs failing. We really need help, and or shares of this page.
Thank you all again!
Sean is down today from 269 pounds to 202 this morning from fluid overload. He has to take a lot of diuretics a day to try and maintain and stay below 218 for his transplants. I'm afraid he's building up again because his belly is a little bigger. Once it's in the belly, it's too late for his meds to work. That might mean another week or two hospital stay if he's admitted. Our situation won't permit me to see him due to travel costs and such. I hope you can find it in your hearts to at least pass this story along. Sean knows God has a plan and wanted to make sure you know he appreciates everything.
Good afternoon. Sean has been in better spirits lately despite losing his car just 3 months shy of it getting paid off. He's leaning on God more and starting to accept how the rest of his life is unfolding. I've been able to work a couple of hours here and there but it barely covers the basics. Please pass this along. Sean's next doctors appointment is Monday and not sure yet how I will get him there. Thank you for ALL your help!
Happy Saturday! Took Sean out to get some sun but he tires so fast, it was short lived. He's getting out of the bedroom some but EVERYTHING is tougher for him. He's asked me to thank everyone that has helped with donations, good thoughts and prayers. Please keep passing this along so more people will see his story and possibly help. Sean needs so much now that each day is a struggle financially.
Last night was a bad night with chest pains and breathing with panic attacks thrown in because Sean doesn't already have enough issues. Waiting on Dr to call back but if it's an admission we're not prepared financially. Because of the enzymes the liver produces, he has mad more memory loss and confusion. There are truly days he has no clue as to what he is doing, has done or how to act next. He prays everyday that more kind people help out or pray just as hard. Please share Sean's story and need. Thank you.
This is Sean again. God has given me enough energy today to get out and find a computer to use so I can update everyone. I'm not a Summer fan because the heat and humidity keeps me indoors all summer so I can breath. Things are very bad right now but not bad enough to live in the hospital as my heart and liver fight hard to help my pancreas. Please help by a small donation, passing this page along or even with a prayer. I've done everything I can with my personal items. Please read and help.
Sean has had a few days of pancreas problems but has been able to avoid the hospital. His heart gets weaker everyday but we have to just wait for the transplant call, nothing but wait. Sean and our family are greatly appreciative of all donations, GOD bless you all. Please pass this website around to as many people as you know. Thank you Georgia
Good afternoon, Sean again. I had worked since I was 14 and now I'm heading to 49 in October if it's in Gods plan. In September I was forced to leave my part time job by my heart transplant doctor. Though it was only part-time it helped tremendously and we "got by" but just got by. Georgia quit her job because I need someone to take care of most of my needs now. Needing a liver was caused by the medications over the years and my congenital heart disease. Daily, I take 20 different pills a day plus 4 insulin shots. In my life I have never asked for anything from anyone, but I have to now and it's the hardest thing ever. Please read and at least pass this along. If you pray, please say one for my family and I.
Thank you in advance at least for passing this along.
Hello, it's me Sean this time. Thank you to those who have donated what they could. This week we've been the hardest hit so far. I had to cancel a Dr's appointment for my diabetes because of the copay, gas and not being able to afford my insulin, $45 dollars each for long and fast acting. If it wasn't for Georgia staying home with me I would die.
Please, revisit your hearts as my need for help gets more crucial each day
Sean's depression is getting worse with the panic attacks more frequent. In his last Echocardiogram, last month, his heart is more severely weakened than last year. This will be repeated in a few months. In past posts I have really had to open up about our personal lives to show how hard it gets day after day. I don't know what to say anymore but it hurts to see the love of my life get sicker with nothing more I can do. He can't be left alone very long anymore because of the dizzy spells, confusion and worsening depression. PLEASE find it in your hearts to read all the posts and AT LEAST pass this along. He is losing everything he has worked so hard for.
Today's update is a harder one to post. Things are getting much harder with trying to support our car only having $3000 to pay after six years of hard work and sacrifice. Giving it up now will mean Sean will have to come off the transplant list and not get to his doctors appointments. I'm trying so hard to help as much as I can, including picking up aluminum cans from the side of the highway. He is my best friend but his depression over this is making him sicker and it's literally hurting my heart. The "wishlist" he made was actually some bucket list items and yes he knows they are unattainable but wanted to try. Sean is not a selfish man and just wants to see his grand kids grow up. PLEASE HELP IN ANY WAY.
Update: Sean is doing ok so far and hasn't been back to the hospital yet. His streak was 5 of 6 weeks admitted to St. Luke's in Houston. He thinks about the money so much that it just makes him sick and have panic attacks daily now. I can make sure there's enough food by visiting churches and pantries but most of the items are loaded in salt and he can't eat them. I do my best when I can but no matter what he smiles and loves me for trying my hardest. Fruits and vegetables are so expensive as well as less PROCESSED meats. Luckily I have a man who loves leftovers so I can make a big sodium free soup and he'll eat it everyday if he has too.
Please pray as often as you can, both for Sean's health and the finances we need to get to his next Dr's appt, prescriptions and all he needs to stay alive until he gets his heart and liver or GOD decides his place in Heaven is ready.
Thank you all so much for reading and hopefully passing this along.
Sean has some leaky valves but nothing that warrants a repair. So....we r shooting for Saturday for him to come home. Good thing cuz I'm out of parking money. I'll still be posting updates from home. I do hope he gets to come home soon. I miss him so much. His whole family misses him terribly. He did lose 4 lbs. overnight. Yay!
I FINALLY found the perfect man. He tells me how beautiful I am every day, and tells me mushy, romantic stuff you only read in books or see in movies. He wants nothing more than to live so he can love me and our family. Please keep praying for us!
So.....it looks like Sean's gonna be in the hospital for another two weeks this time. They're going to do another echocardiogram today to see if there is anything wrong with his valves. The doctor says he's running out of ideas.
When they send my honey home he'll be getting a bolus of iv diuretics three times a week and a diuretic booster three times a week. I love him so much. Please keep praying.
Well, we have an expected release date of Friday. Sean was only home for a week and then right back in the hospital for two weeks. The fluid is coming off slowly. He has built a resistance to the oral diuretics. I'm just grateful that the iv diuretics are still working. I'm back up at the hospital with him for a couple of days. Please repost Sean's link. We really need all the help we can get. Thanks so much.
Day 6 in the hospital. At least Kat brought the grandkids to brighten his day. Kortnee and Ryan came by too. Thanks y'all. U really made his day. He feels like people forget about him sometimes so thank you so much.!
As you already know, my husband, Sean, needs a heart and liver transplant desperately. He is 48 years old, and is honestly the best man I've ever known. He was born with a congenital heart defect that couldn't be fixed as a child. We chose to marry September 29, 2013 because Sean's bucket list was to be married to his best friend before he passed. We desperately need help with parking fees, gas, hospital bills, doctor bills, etc. I have had to quit my job to take care of Sean, which only makes the financial burdens worse. He is able to do some things but needs me for everthing else like cooking all his meals, helping him shower and dress. I love this man with all my heart. Please try to find it in your heart to help us in ANY way. He's always in pain and having panic attacks. I just want him to be happy for as long as possible. Our children and 5 grandchildren need their PawPaw. Thank you for reading.
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