My wonderful husband, Zachary Izon, was born into eternal life last night (2/2/2015). He fought this horrible disease with courage & grace. He will be forever missed.
His medical & care expenses were extensive and any amount you can contribute will help.
Thank you to everyone who has already contributed.
Things have changed once again. Zac sleeps a lot and is often confused as to what is going on around him. There are times when he is coherent but will then forget what day it is and repeats what he just said. I tell him it's ok he doesn't have to remember anything he's retired
Ok. Here we go...the power chair lift did not work for Zac's wheel chair. I took the day off, sat there in the parking lot in one of their wheel chairs they were fixing for 8 hours (on a 2 hour install mind you) and finally they said we'll finish tomorrow it's too dark. After 8 days and a lot of drama they called to say they had to take it all out and order something else which will take a week to get. When it comes in it will only take 2 hours to get it all in. I gave him my teacher look when he said 2 hours.
So have my van. No lift. Back to square one. AHHHHHH!
Yesterday we attended the ALS WALK here in Honolulu! Zac was so amazed that so many people came out to support the ALS Community in Hawaii. All of the money raised yesterday STAYS in HAWAII!!! They are: THE ALSA GOLDEN WEST CHAPTER serving California and now Hawaii.
They are working tirelessly to establish a clinic here. That means Zac won't have to go to several doctors appointments scheduled at different times. The doctors will all be present and see him one at a time on the same day and at the same place!!!!!
Our good friend Marian Boquet walked for us since my knee needs replacing (just found out on Wednesday). We also ran into a lot of other old friends and Zac made a new friend! Check out the pictures!
Oh and Charmaine and Dianne came over and cleaned the whole house. And yesterday when we got home Maureen (Zac's sister) and Leilani (her daughter our niece) came and did the laundry and help de-clutter.
Until next time......we thank you all for your continued support and love!
We'll we were able to attend Zac's parents 64th wedding Anniversary! Zac was thrilled but it did exhaust him! So good to see so many family and friends there.
Now how do we thank you all enough?! Because of your generous donations we will have the lift installed on the van this Wednesday! It's called a Joey so you can look online. I will be able to put the power chair in the van without hurting myself again.
We still need to shop for the generator but again we can only do these things because of your help. We will also be able to purchase new door handles for the rest of the doors and new faucets so Zac can use them easier. You are also helping us pay for the rising costs of his medical bills as tube feeding requires that some meds be liquid. Can you believe because it is in liquid form it costs 3 times as much?!!! Crazy! There have been a lot of new things we now need medically to care for Zac.
We will also be purchasing a monitoring system since Zac has fallen 3 times now and we were not aware until he either told us or we walked in to see him on the floor. He still wants to do things for himself but there is a risk.
His ALS is kicking his butt as it robs more and more from him. He is having to rest more and just shifting in bed takes his breath away. I don't know how he copes. He is in so much pain it's horrible to watch. We quickly get his pain meds in so he can be comfortable.
On another note I have hurt my left knee so Nick has come to the rescue taking care of both of us. My sister Becky has been invaluable as she takes on the huge list of to dos from the mainland while I'm at work.
Again, thank you for all that you do to help Zac have a more comfortable time dealing with ALS. It also helps me help him!!!!!!
We continue to be amazed and so grateful for all the donations coming our way to help with all the burdensome expenses hitting us each day in Zac's care.
Last week we learned how to nourish Zac through a feeding tube (PEG line) & how to clean & position all the equipment. It's so complicated! And it's very clear we're going to need financial, emotional, AND physical help!!! Zac will be in the hospital March 31st to have the PEG line surgically inserted. We will keep you posted on his progress.
We also learned it will cost us $300 to $400 a month for Zac's liquid diet. And, of course, the medical insurance will not cover this cost.
Your donations are desperately needed. By sending Zac's story to all your friends, relatives & acquaintances with a note of support from you, you are giving the gift of your time and support to us. Please continue to help.
Our mini Staycation at the Aulani was wonderful and bitter sweet. Zac is really weak now and it took our sons strength to lift him out of his wheelchair. He is so small now that the water actually took his breath away and our sons got him out as fast as they could. Several towels later and his rescue inhaler got him back. We stuck to the hot tubs after that.
Aulani is wonderful because they are handicap accessible everywhere. They have chair lifts into the water features everywhere. The staff was amazing and even Goofy came out of the water right over to Zac and our newest grand baby Kalani to say hi.
Zac and I sat and watched the sunset as Kalani slept in my arms while the rest of the kids played on the beach. It is so hard to watch my husband drift away right in front of me. He too was disappointed that once again his ALS has taken away another thing, swimming.
Zac loved playing with all 3 of our grand kids. They snuggled in bed and watched, you guessed it, the Disney Chanel. We got to see the full moon rise right over the upgraded ocean view room Disney gave us.
It was amazing! And we watched their starlight show from our lanai.
I thank each and everyone one of you for helping us pull this off. This stay was on us so your funds have gone to help Zac make these wonderful memories!
And now I ask a little more.....
If you can please continue to post Zac's story every day. Lets see if we can keep the message alive and active, lets go "viral"!!!!
ALS Lou Gherig's Disease is fatal but also financially draining. Next up for Zac, surgery to insert the feeding tube. We do have medical right now but the copayment will be over a thousand dollars.
I know some people may read all of this and say " then you shouldn't have taken a vacation at the Aulani. My answer to that is, when you have a fatal disease and you lose the ability to do even the simplest things in life, how could we not help Zac fulfill a bucket list wish.
Thank you all for your continued support! Keep the story going!
Thanks to all those helping Zac. We are headed off to the Aulani here on Oahu soon. This will be the last time he will be able to go into the water with his grand kids and our sons. Once the feeding tube goes in he can no longer be submerged in water (no tub baths either). He is so looking forward to this. I'll post pictures to keep everyone updated.
This is for my husband ZACHARY IZON. Zac was diagnosed with ALS, LOUGHERIG'S Disease on May 10, 2012 (also known as (Motor Neuron disease in some countries). For more information on ALS please visit: alsa.org.
This horrible disease is fatal. After diagnosis patients typically live from 3-5 years. ALS causes all of the muscles in Zac's body to die. This includes the diaphragm which controls his breathing. He currently has a Bipa ( a non-invasive ventilator) machine which cost us $2,200. Thank God for family because they have been helping us financially when they can. Zac's insurance does not cover any durable goods he may need.
I have watched my husband go from a vibrant active man who loved playing all sorts of musical instruments to a man who no longer has the use of his arms and hands. His legs are slowly going too. A man who loved singing who now has unreconizable speech, can no longer write legibly, nor dress himself or prepare any food for himself each day. Because of ALS, Zac will soon have a feeding tub (PEG) surgecially inserted because he asparates when eating or drinking. This has lead to pneumonia, which has led to several hospitalizations.
Through all of this, Zac continues to go to work, all-be-it very part time, in order to continue to help provide for our family. His doctors are in awe of his stamina. When he can no longer work Social Security will pay him less than half of what he makes now. Medicare will cost us $107 a month and drug coverage will be another cost. Just one of his medicines costs $1299.00 a month and he takes several medications including breathing treatments four times a day. I believe he continues to work because of our living expenses. Our living expenses will not decrease but our income will. I currently work two jobs and am Zac's primary caregiver when I get home. All of these costs and whatever else is to come our way adds up quickly.
When Zac was first diagnosed it was important to do as much as he could before his condition worsened. So we used our retirement funds and my whole-life insurance policy for trips that Zac had on his bucket list. We visited the Air Museum in Washington, D.C., (he has always loved air planes), Senator Daniel Inoye's office (two months before he passed), and a long time friend in Washington State (his first band members). We have been to the Disney Aulani on Oahu thanks to family (they have a time share) and we will go one more time before the PEG goes in. Zac (with the help of our sons) wants to get in the water one last time with the grand kids. Family is so important to Zac and spending whatever time he has doing what he can is what keeps his spirits up.
As you can see the financial cost of ALS are astronomical and financially devastating. There are previous hospitalization bills we are currently trying to pay, the purchase of a Van to pay for because Zac could no longer get down into his car. Lovingly one of our sons took over the car and the payments to help us out. Now we have to purchase a trailor to transport his electric wheelchair and have that installed. And the expenses keep coming.
My hope as you read Zac'sstory is that you can find it in your heart to help us deal with the continuing financial burden of ALS, LOUGHERIG'S Disease.
We thank you in advance for any/all help you send our way and please feel free to share Zac's story with whoever you can.
Sincerely, Mrs. Michelle Kantorowski Izon Wife of 35 years with more to come I hope!
P.S. please read the updates which is where I will keep everyone posted on what is happening
Campaign Not Ready
There's an issue with this Campaign Organizer's account.
Our team has contacted them with the solution, it's a simple fix!
Please ask them to sign in to GoFundMe and check their account.