medical needs that ins.will not cover

two years ago as most of you know my husband lost his job and we were forced to move. we moved from ga. to pa. where the kids drs. were because there are few specialists who treat mitochondrial disease which is what me and my two children have. my husband had the perfect job and once again he was layed off due to sales being down in the company etc. and he was the last one hired. He applied for unemployment and was turned down so now he has to appeal and that could take another 6 weeks. we had perfect health insurance until recent when i was forced to go on medicare and most recently katy will be in less than a month put on Medicare . As alot of you know medicare does not pay much of anything and you have to purchase seperate plans etc. i did just that Now i have an 850.00 deductible to get my power wheelchair which i am in desperate need of because I can barely walk at times anymore , 50.00 specialist co- pays , which 90 percent of my drs are specialists, expensive drug copays and worst of all they no longer cover my supplements that i have to have for mitochondrial disease.Unfortunate there's not much i can do about that but try to fight it. i can only imagine what this is fixing to be like for katy!She is deficient with a lot of her supplements and they will still deny it so welcome to medicare.It's aweful and while i understand that many of us have this same issue and we are far from the only ones going through this my husband once again no longer has a job and he is only going to be making less than half of what he made on unemployment which means it's almost impossible to live. If he doesn't find a job soon we will loose our house and everything because  we are exhausting all avenues, have cut most of our bills, and he has resumes everywhere. I have strong faith that he will find something but it takes a while to get back on our feet and we have to have our med supplies,meanwhile we need temporary help. i need help paying my deductible so i can get my wheelchair, all of my feeding supplies aren't covered, katy also has meds that are not covered because once they hit adult age they have an 8 prescription limit. Katy's on 22 meds and we have been fighting this for months with no success. i as well am 80 percent deaf in one ear and 60 in the other after my recent stroke and i need hearing aids that they will not cover for me as well. these are not the standard hearing aids. i have to at least put 1,000 down for them to even make payments with me. i am not looking for 100 percent help from anyone. we are getting some taxes back this year but very little! we almost broke even but what little we do get back i have to use to help pay some of this. please any little amount will help. even if it's 5.00. no amount is ever to small. if you cannot help in any way financial i totally understand that as well but if you cannot could you please help spread my website for me? thank you so much for everyone's support just by the positive words and prayers we get daily on our trio page! it means so much to us when we have a child that's critical ill. i wish words could explain and once again please if you can't help please spread this for us. Thanks and love from ( the butler trio)