Benefit for Shauna Jones-Demkowitch

 
Raised: $10,900.00
Goal: $25,000.00
 
 
 

Created by

Sarah Marie Jones

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Shauna Jones - Demkowitch (wife of Anthony Demkowitch) is expecting her third child and is in her fifth month of pregnancy. Her baby was recently diagnosed with Spina Bifida Myelomening... more

 
 
 
 
 
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Updated posted by Sarah Marie Jones 2 months ago


Today was our first ultrasound and doctors appointment since hospital discharge-9 days ago. I couldn't wait to get out of bed, have a change of scenery, and get some fresh air! Most importantly, we couldn't wait to see how my healing and recovery were going and the results of surgery,so far, for this little warrior inside of me!

After all the fear and anxiety over fetal surgery, I can finally realize the relief and pure comfort of knowing we made the right decision for our family. All of the sacrifices,for myself,but also for my entire family. Todays appointment was AMAZING!! Tony had a smile from ear to ear and tears of joy filled my eyes as I heard the incredible and miraculous news. It is so difficult with having a surgery such as this and also having a diagnosis of spina bifida. There is such a wide range of "unknowns" and so much is unpredictable. Any good or positive news is a celebration! Each appointment can vary from visit to visit. The goal is to get me and baby to 37 weeks without complication. For today, I will live for today and be thankful for this moment....

Baby Boy is developing wonderfully and is right where he should be for 24 weeks and a few days gestation. At this point, full movement of legs and feet. No signs of clubbed feet. The ventricles in his brain have not increased. They are still measuring the same size that they were since our initial consultation appointment and MRI at CHOP just over 1 month ago-which were 10/11. The best news was that they could see his cerebellum has started to become more "rounded". Which is great and promising news 12 days post op. He is a very active boy and they had a hard time even capturing an image for me to take home because he wouldn't "stay still". My little champ already!!

As for me, my amniotic fluid is at great volume and my membranes and hysterotomy site (incision on uterus) look excellent. All is healing beautifully at this point. I will continue to pray for these results at each weekly visit!

I am required to stay in hotel room on strict bed rest for the next few weeks. It has been difficult for me, but with news like today, it has ALL been worth it! My parents left for NY today after selflessly nursing and waiting on me for these past 9 days. I will enjoy my husband and children this week who pleasantly surprised me for valentines day. And my siblings that will come and visit with my niece and nephews, so I can lounge and take in all of their craziness and enjoy the laughter around me. My in laws are in NY still, helping with all of our "home" duties when Tony can't be there. Just like the crisp,fresh air that I inhaled this morning, It's the simple things.
I find myself giving thanks to God for all the things that cost nothing and are worth everything. Each day I am realizing this more and more....

Thank you to ALL my loving family and friends. My incredible community and the generosity of complete strangers. My "new found" FS mom friends, who I feel like I have known forever and there is a definite purpose to our situations and why we have crossed paths in this life. You are all amazing and inspirational!

Generous in LOVE, SUPPORT and PRAYER! I am forever thankful. My family is forever thankful.

Most importantly, Thank You God and the power of prayer!!

God of all blessings,
source of all life,
giver of all grace:

We thank you for the gift of life:
for the breath
that sustains life,
for the food of this earth
that nurtures life,
for the love of family and friends
without which there would be no life.

We thank you for the mystery of creation:
for the beauty
that the eye can see,
for the joy
that the ear may hear,
for the unknown
that we cannot behold filling the universe with wonder,
for the expanse of space
that draws us beyond the definitions of our selves.

We thank you for setting us in communities:
for families
who nurture our becoming,
for friends
who love us by choice,
for companions at work,
who share our burdens and daily tasks,
for strangers
who welcome us into their midst,
for people from other lands
who call us to grow in understanding,
for children
who lighten our moments with delight,
for the unborn,
who offer us hope for the future.

We thank you for this day:
for life
and one more day to love,
for opportunity
and one more day to work for justice and peace,
for neighbors
and one more person to love
and by whom be loved,
for your grace
and one more experience of your presence,
for your promise:
to be with us,
to be our God,
and to give salvation.

For these, and all blessings,
we give you thanks, eternal, loving God,
through Jesus Christ we pray.
Amen.

 

 
 

Updated posted by Sarah Marie Jones 2 months ago


I was discharged from CHOP today (2/9/14) around 12:15pm. Finally settled and resting in our hotel. Will definitely be updating all soon, but for now I am trying to rest and recover. The doctors and staff, although very pleased with our recovery so far, gave strict bed rest orders. I am not use to this extreme pain and all these narcotics/prescription medications. Hoping I can get a clear head and body will recover a bit more soon so I can express myself to you all. I am sincerely thankful, grateful and blessed! But until then Tony and I wanted to get this quick post out.......

 

 
 

Updated posted by Sarah Marie Jones 2 months ago

Update: Shauna & baby "D" underwent surgery 2/5/14 and everything went very well! Shauna will be in recovery at the hospital for a minimum of 4 days and will follow up with bed rest in a hotel in Philadelphia, until an opening comes about at the Ronald McDonald House in PA. She intends to be in touch once she is out of recovery, and wishes to thank everyone in the meantime for the wonderful kindness and outpouring of generosity. Sending lots of love on behalf of the Demkowitch Family XOXO

 
 
 
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Created by Sarah Marie Jones on January 27, 2014



Shauna Jones - Demkowitch (wife of Anthony Demkowitch) is expecting her third child and is in her fifth month of pregnancy. Her baby was recently diagnosed with Spina Bifida Myelomeningocele, causing an unfused portion of the spinal column to allow the spinal cord to protrude through an opening in the lower back. Following extensive testing at The Children's Hospital of Philadelphia (CHOP), it was determined that Shauna and baby Demkowitch were eligible to undergo prenatal Spina Bifida surgery. The new... landmark fetal surgery is performed in order to greatly reduce the need to divert fluid from the brain, improve mobility, and increase the chances for independently walking.

Following the surgery, performed between 22 to 23 weeks gestation, Shauna will be required to be on strict bed rest, within 20 miles of CHOP, until the date of her delivery in Philadelphia. A family member is required to be with her at all times, to monitor and provide care. This benefit will be conducted to assist in providing the family funding to offset the costs of the surgery and to facilitate the best potential for quality of life for the Demkowitch baby.
 
 
 
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Recent Donations (126)

$10,900 raised by 126 people in 2 months.

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Anonymous

1 month ago

 

$100.00

Don Pierno

1 month ago

 
 

$100.00

Jamie & Shelly 12 Bennett

1 month ago

 
 

Thinking of you guys and God Bless.

 

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Christen & Todd Smith

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$50.00

Anonymous

1 month ago

 

$25.00

Gail Pye

1 month ago

 
 

Best wishes and prayers to all of you.

 

$150.00

Anonymous

1 month ago

 

$50.00

Bill & Sondra Roemer

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$100.00

Keelan & Courtney Lewis

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$100.00

Alicia & Paul Giovannone

1 month ago

 
 

Best wishes for you and your family.

 

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