Day 43....it's been an adjustment since we got home, one that we are still trying to work on. Mack does not have a lot of energy or stamina so play time for him is just sitting outside and getting fresh air. He is on a lot of medication which consumes our days. He is still battling a lot of nausea as well, so getting medicine down him can be a chore at times. He has started to eat again but not enough to keep up his weight so today they have started him on a medicine called megace to stimulate his appetite....prayers it works! He's also getting a blood transfusion today, which the dr said it was common to still need transfusions after transplant. Hopefully this will perk him up some and give him a little more energy. Thank you for all the constant prayers. We still have a long way to go but we are so pleased with his outcome thus far. Please pray for Mack to gain more strength and energy and for his spirit to come back to our silly Mack and for him to remain healthy! Thank you!
Mack is 3 weeks out from his bone marrow transplant and is doing relatively well. His counts are starting to come up, he is slowly weaning off of his pain medication and he is transitioning from iv medication to oral medication, ones that he will be on at home. Our biggest hurdle is going to be getting Mack to eat again. He's going on 4 weeks of not having any food in his stomach. He's still having a lot of nausea so his desire to eat is not there.
Mack has been in the hospital since December, he's starting to think of it like home. We are trying to encourage him and get him excited about going home, with the hopes that he will miss home and his friends and he will try to eat more. Big Mack and Laura have also been out of work since December in order to be with Mack, however, their paid time off has run out, therefore they are no longer receiving any income. Please pray for Mack that God will continue to heal Mack and make his little belly feel better so he can start to eat again and that He will provide for the family. We praise God daily for his eternal love for our family and his continued healing of Mack...thank you so much for your support and prayers!
Day 14....it's exactly 2 weeks from Mack's bone marrow transplant. Overall he is doing ok, he's still on some pain medicine that we are weaning slowly. Unfortunately he is still not eating, but hoping that will come back when he recovers more. He has good days and bad days, the bad days are hard but he gets through it like he always does. Mack has his highs and lows too, he can get angry and sad at the same time, it's frustrating for him because he can't explain what he's feeling sometimes. We pray so hard for God to completely heal Mack and to wrap his hands around him keeping him safe and comfortable. This has been such a long exhausting road even getting Mack to transplant now we have a longer road to get him home. Please pray for Mack to start eating again and for Scout's marrow to take over and do what it needs to do to cure Mack from this hideous disease. Thank you so much for your support!
Day 4....I have never seen my poor child this miserable before. What I would give to see him smile one time. I wish I could take it all away for him. The pain and suffering that all these children go through because of this hideous disease is pain staking. It changes who you are and who your children are. I know that God has his plans already made out for Mack and Scout and I know that they are going to be grand. We just have to remember to be patient and to trust in Him because He will lead us out of the darkness. Please pray for macks pain and nausea to subside....thank you.
Today is the last day of chemo for Mack, then he will rest tomorrow and Wednesday is transplant day! Mack has handled this well but he is starting to get tired. Please keep mack and scout in your prayers as we go through transplant. Scout will go to the operating room early Wednesday morning and her marrow will infuse into Mack around noon. Thank you for your prayers!
Thanks so much for the continuing love, support, and prayers. As many of you know, Mack's bone marrow transplant has been delayed yet once again due to cancer cells still looming around in his body. His is having another month long stint of chemotherapy in the hospital again. We have a long journey ahead of us!
In 2009 at just 19 months old, Mack was diagnosed with a rare form of leukemia called mixed lineage leukemia. He went through 3 years of intense chemotherapy and achieved remission in January of 2013. Mack was enjoying being a normal child
he even started kindergarten this school year. During a routine checkup Mack's doctors saw something suspicious in his lab work. The next day November 13, 2013 it was found that Mack had relapsed. Mack will now need a bone marrow transplant, his sister Scout will be his donor. Please pray for Mack that this will be the cure so he can live a full and happy life.
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