Hello to everyone!!! Well, here I am one month post my double lung transplant! Praise the Lord!! :) This s huge!! I feel so very Blessed to be where I am right now. The Lord has been so good to me.
I pray for all of you who are currently waiting to get that wonderful call and I pray your wait will not be much longer. I also pray for those working at getting on the waiting list that things go smoothly for you and that soon you too will be waiting by your phone for that very important call. What a Blessing that day will be. It is coming. Do not give up hope God will provide for you when the time is right. He knows when that time is.
It has been an amazing journey. I prayed before that I would get my new lungs before I had to go in for my next 6 minute walk. What is so funny and a blessing is that I got the call for my new lungs on the 19th of August and the did the surgery on the 20th of August. My next appointment for the 6 minute walk was that Friday the 23rd. LOL Made it just before it got there. Awesome! The Lord answers all kinds of prayers! :)
I am doing really well from what the doctors have been telling me. I am taking walks every day, going to rehab three times a week, to clinic once a week for labs and spiro. I have cooked my own breakfast and I can not remember when the last time I cooked anything was. It feels so good. Now I do have a considerable amount of pain I am dealing with still but I do realize that will pass in time. Lord willing, sooner than later. :) The nausea I have been dealing with has been really bad but now that they have given me some phenergan and we have stopped three of the meds temporarily, I have been doing much better today (Saturday Sept. 21st). I ate breakfast and had a salad for lunch and have not been nauseated. Praise the Lord!!! :)
We are in an apartment here in Dallas for the next few months. Probably get to go back home to Abilene,Tx in December sometime. Finances are really , really hard right now and I pray that we are able to get some help. I don't mind asking that is there is anyone that is Blessed enough to be able to help, I would appreciate anything you could afford to help out with. Paying for two households as my youngest son is back home at our house and going to school and so we have two places to pay for to live plus the approximate $600 a month for my monthly medications and that is after insurance has paid their part. It is really a strain. I plan to work on some sort of fund raisers once I get back home. Not sure what will come of it as I am a very quiet person and really have only a few friends literally , it makes it harder to get a fund raiser going. Most of my friends are online. :) I pray this does not offend anyone that I am asking but I am being real. I have a need and if I don't ask, then no one knows I need the help. I know there are so very many of you that know exactly what I mean. So, if you an help, it would be greatly appreciated. If you can not, that is ok. We all can not afford to do this I know. If you can not help, I would love your prayers.
For those of you who wanted to know, I am including my current mailing address for while I am in Dallas.
1310 N. Cockrell Hill Rd Apt. 715
Dallas, Texas 75211
That is all for now. I will update again probably next month. Thank you again to all of you who have supported me financially and those that have supported me with your prayers and well wishes. I am so grateful to you all. God Bless you !!! Love and Hugs (((HUGS)))
Hi everyone this is Nikki, Cheri's daughter in law! I just wanted to update everyone that August 19th 2013 at 8:52 pm Cheri got her third call to receive her lungs and arrived at UT Southwestern in Dallas, TX at 11:10 pm. Cheri received her lungs around 10:23 am on August 20, 2013. Thanks for everyone's prayers and donations! Join the Breath of Life Facebook Group to keep up with updates and pictures! Blessings to you all! www..facebook.com/groups/SupportingCheri/
Hi everyone, Well the second call came on May the 7th at about 6:50pm. Just like before we were all just doing our normal routine things for the day and then even though I have a special ringer on my phone to alert me that the call is from the hospital, I got a regular tone ring and so I answered it as I saw the familiar 214 area code. My husband was right there by me watching TV with and everyone else were other parts of the room.
As I listened to the lady, Teresa, on the other end of the line, she starts to tell me that they may have possible lungs for me. Then proceeded to ask me several routine questions about my current health, when did I last eat and other questions. She then tells me that they need me to go ahead and get on the road and to get there as quickly as safely possible as there was a shorted window of time to work with. . I told her fine and thank you and we will be on our way. Dallas is where my transplant hospital is located and takes about 3 hours to drive with good traffic. Last time we took the Care Flight plane but it took so long to wait for them to get ready,,get a plane to Abilene and then to our destination in Dallas that we chose to drive as we could get there faster we had leaned.
So I turned to my husband and said "Ok, lets go" and he said "Where?" I said "To the hospital, they want us to get on the road now". He was surprised. He heard nothing I was saying on the phone and so he yelled to everyone to get ready, we got the call. It was great!!! Made a few phone calls, got the bags in the car and got gas in the tank and off we went.
We ended up making to Dallas in about 2 1/2 hours. My oldest son drove with the flashers on. HaHa! So, we get there, and since it was at night had to check in through the ER. Got that done and then they had us sit and wait till the had someone to escort us to where we needed to go which ended up being the 7th floor. Room 745. After arriving there, nurses were immediately there to start getting me ready,. Shower, urine,blood draws, x-ray, AKG, medication check,check vital signs ask a lot of questions , -put on ID bracelets, talk to the doctor on the phone and some sort of antibiotic breathing treatment and took a pepcid capsule. Ha Ha The surgery was scheduled for 12:00 am (midnight).
A little after 12:00 I said my I love yous to everyone in my family and the wheeled me off to the operating room. I was so glad to see the nurse that was going to be in the operating room was the same one that was there from my first dry run. I liked her. After they got me in the operating room they put on the stylish hair net and ran the IV and the other IV thing that they put in your artery. That really hurt!!! . I was all ready again, just waiting for the word so they could put me to sleep. After awhile the phone rings and the nurse waves for one of the male attendants there to answer the phone,. As I almost am holding my breath, I see him make a motion with his hand to the nurse and it was not a good one. She had that look on her face as she came slowly walking towards me once again. She tells me it was canceled again. The longs once again were not good. They had fluid in them so they could not be used. It was sad, and I hated that I had to leave there once again with these old , sick lungs but I am handling is so much better than the first time.
After a short wait we all piled back into the car and headed back home once again to wait for yet another call. Praying the third time will be THE CALL. They say third times a charm. :)
Well, it has been a little over a month and no new news. I will be going to a follow up appointment and do my 6 minute walk and another PFT, on the 24th of May. I will update everyone after that. Wish me well in walking the 150 miters they want me to walk. I am praying I can do it this time. I am having more troubles sleeping at night and guess it is related to waiting for that next call though I don't sit around thinking about it. I pray though that it comes soon. The waiting seems so much harder now. I am getting really tired out too. LOL Thank the good Lord he has brought me to the awesome COPD and Transplant sites through FB. They are helping me get through the days. Take care everyone and God Bless you all!!!
Still just waiting for another call about the transplant. We are not having any luck getting support though and so we are making another plea to everyone. We really need help financially to cover our trips to Dallas to see the doctors and for our lodging while there. Also we will be needing to stay in Dallas for at least 3 months after the transplant and this is going to be a hardship for us as we both are disabled and have limited income. Insurance does not cover this and we are left to raise the funds on our own. Any amount would be helpful. If we get $10 or $20 Dollars from each person, that alone would add up quickly. Please spread the news. Thank you everyone!!! God Bless
Hi everyone! Well, on April 1,2013 (Monday) I got the call to come to the UT Southwestern Hospital in Dallas,TX for my new lungs. How exciting. Well, after waiting on the operating table for what seemed like a lifetime, we got the news that the donor lungs had an abscess so they could not use them for me after all.
So, this was my first what they call , a dry run. It was very hard to accept at first but now I am thinking with my head instead of my emotions. I do realize that God has this under control and it just wasn't my time yet. These ones were just not meant to be.I will be praying and waiting for the right lungs for me and the right ones will be healthy and pink! :) We are in need of some help with the financial side of this journey at this time. After the right lungs become available, my family and I will have to be staying in Dallas away from our homes in Abilene,TX and having to pay for living arrangements for us all, gas for the transportation and meals. My husband and I also still have to pay for the upkeep at our home in Abilene while I am gone as I will have my 16 year old Son and one of his older brothers staying there so he can stay in school . This is putting a heavy burden on us as insurance does not cover any of that and my husband and I are both disabled. We would appreciate any help.
Prayers go out to the lung donors family as I know the loss of their loved one is heavy on their hearts.
Hi all. Well it has been only two months since I got listed but I still believe that God is going to speed up my wait time. It sure would be a great ChrisTmas gift. A fresh start in life. It sounds so good. I want to wish everyone a very Blessed & Merry CHRISTmas!!!! Thanks everyone and please keep up the prayers. :)
Hi everyone. Guess what. They finally called me. I am on the lung transplant waiting list. After all those tests and all that time, finally I made it. Thanks for all the prayers and we will still be praying that the wait will not be too long before I get the call that they have a donor for me.
Sunday we leave for Dallas again for a pre-transplant class. It will last about 2 and a half hours and they say any questions we have can be anwered at that class. I am sure there will be plenty of questions. LOL Trying to get cleared to start the hospital Pulmonary Rehab here in Abilene that will last for 6 weeks. Still waiting. God Bless Anyone that is reading this or keeping an eye on here. Please, if there is anyone out there that can afford to make a donation, won't you please do so. It is really easy for you to do. Thank you again. Bye for now from Cheri.
We had a fund raiser yard sale and it went well. Now we need to see if we can figure out how to get someone to sponsor you for some other fund raising as I am no where near my goal. Yes insurance covers most of the medical but you are still left with food,lodging,gas for your driving back and forth from Abilene to Dallas. There will be plenty more of those and it does not come cheap. Plus I have heard that there are medical things that the insurance may not cover.
Things are going well as far as the progress towards getting put on the waiting list. My goodness but do they have SO many tests and things you have to do before and keep up with even after you are on the list and waiting. My last lung function was now 15% which really does not matter that much more at this end stage anyway. I just like to know all I can about my condition. I see nobody is interested in helping me out by funding me as so far it has only been my family. Maybe people don't think I really need it since I have insurance but what they don't know is I am having to pay for my own transportation to and from Dallas and back home to Abilene, pay for gasoline, lodging for me and the family that takes me and meals and I expect there will be plenty of things we will have to pay for that the insurance does not cover. Please, won't someone that can afford to, make a donation and help me get that new pair of lungs so I can have a new Breath of Life.. until next time, live ,love, laugh and pray.
Just found out I have a new appointment and it will be July 20 th at the UT Southwestern in Dallas. I am about to finish my home physical. The next step will be Hendrick Hospital Pulmonary Rehab that
I will attend for about 6 weeks.
Well, the situation with the hospital in SanAntonio did not work out. They did not want to do the surgery. But the Lord always has our backs, next thing we know, my neurologist said the cavernoma in my brain is not dangerous and there was no reason for them to have turned me away just because of that. My Doctor Trammel got in touch with a very good neurologist in Dallas who saw the scan and he sent a letter to the hospital in Dallas,Tx and stated he gives me the all clear. I loved hearing that. The new hospital we are working with is UT Southwestern Hospital. Rated one of the best , actually number One, for the success rate where a transplant patient was still doing well after One year after the surgery. I don't have the 5 year rate but I believe it was pretty good too. I will write some more tomorrow. Night everyone.
I am raising money for the new lungs that we have been praying to God for. I am now in the End Stage of my lung disease with 14% lung function and though 3 of my children are grown up,I still have a 16 year old Son with me that I pray this lung transplant will allow me to still be here to see through his adult life.
The money collected will go towards transportation to and from numerous appointments to Dallas,TX and for gasoline to drive back and forth,for lodging,food, any medical expenses that are not a covered service under our insurance, co-pays for medications,temporary living during the several months after transplant, ect. I am listed at UT Southwestern in Dallas, Texas which is about a three hour drive from where I live. The donations raised by the previous sale have been exhausted from all the travel, to appointments and related expenses and breathing medicine co-pays, ect. We could really use your help.
Supporters can also help by saying a prayer for me. We are praying believing that God is going to give me new lungs and also that he will keep me well enough to make it to the lung transplant. Your prayers would be appreciated.
After hearing the good news today that you received your lungs, my heart was filled with love and joy. I am so glad we got a chance to talk to each other. You will be hearing from me soon. Love ya Tanya Ewig
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