Thank you for the continued support and prayers. I've neglected to update this site because we hit a bit of a rough patch. As you can imagine, this has been an emotional roller coaster ride for the family and most of all, for Kevin. Just before Thanksgiving he had a set-back and wasn't able to eat or talk. Spirits were very low for both Kevin and the family. I didn't want to update the site with negative news during the holiday season.
Thankfully, this low point has passed and Kevin is talking again and has been cleared to eat. His parents and the rest of the family seem to be doing better emotionally as well. He will most likely remain at Children's through January. I've attached a photo from earlier today.
Happy Thanksgiving everyone. I've been on a much needed vacation and have been offline. Kevin had a setback today. We thought he was finally able to eat and drink but he aspirated some food and is back to a feeding tube until he can be re-evaluated. We are thankful for the progress he's made. Perhaps we were all pushing him too far and too fast.
More good news. today we got the news that he passed his swallowing tests and will be able to eat normal food. This is all such great news. This has been a positive and uplifting week. Thank you all for everything. Here is a link to Kevin on Komo 4 News tonight.
Kevin is now in Children's Hospital ICU and what an upgrade!! It is a beautiful facility and a very warm and generous place. The nurses are much gentler and kinder and everything looks brand new. Kevin and Aurea have been approved for housing through the Ronald McDonald House so they will be able to be close by. There is a bed in Kevin's room where they can stay if they need to.
But I have even better news to report...KEVIN SPOKE THIS MORNING!!! Yes, he talked briefly to his grandfather over the phone. We are beyond thrilled. He is also able to swallow on his own which means he may be able to eat normally. Miracles do happen. Thank you all so much for the positive thoughts and prayers.
I've attached a photo of Kevin in his new room with some of his neighbors from Star Wars. : )
Such great news today. Kevin was able to breathe on his own for one hour. The doctors are switching him to a portable ventilator and will slowly increase the amount of time he spends breathing on his own. We are hopeful that he will continue to make progress. Thank you for the positive energy and prayers. I think they are working.
Kevin finally got his "fade" haircut (thank you Kami from Gary Manuel Salon!). We hope that surgeries are behind him, for now, and we can focus on healing and the future.
Kevin and the family have a long road ahead of them and a new reality to face. They will need financial and spiritual support for a long time to come. Please continue to send your good thoughts and prayers and share Kevin's story and this link with those you think might be interested.
Kevin had a tracheotomy today so he at least has the breathing tube out of his mouth. He has another surgery last Wednesday to place titanium rods in the front of his spine to help stabilize his neck. I think he has one more surgery and then we can focus on his recovery. Harborview still hasn't given us a date when he will be moved to Children's Hospital. We are looking forward to that day.
Tomorrow, my wonderful hairdresser from Gray Manuel salon will visit Kevin and give him the "fade" haircut he has been asking for. I will ask Kevin if I can post photos or a video.
Kevin finally had his surgery today. He got out a couple of hours ago. I don't know how he did because I was in a meeting at work and couldn't get away. I should have more information tomorrow. I do know that he is feeling very down. If you would like to send him a card, drawing, or message of good will
Kevin's surgery was postponed until tomorrow. So more waiting. We will all be so glad when surgery and Harborview are behind us and we can focus on Kevin's recovery at Children's Hospital. Please continue to send your prayers and good thoughts.
Kevin (KJ) is finally scheduled for additional surgery on his neck on Tuesday. The strain is really beginning to take a toll on the family. His mother and father are completely exhausted. Despite having the hotel nearby, KJ wants them close at all times. He is trapped in his paralysis and can only communicate by mouthing words around his respirator. It breaks my heart every time I see him. I've attached a photo of him before the accident. It is a couple of years old but shows him at a PowWow.
With your donations I was able to buy him a top of the line ipod touch, headphones and $100 itunes card. His cousin will load it with his favorite songs. I also bought him some new movies that he can watch on the hospital's portable DVD player. Anything to help him pass the time. ICU is not the most comfortable place to be. We will be glad when his surgeries are behind him and we move to Children's. Kevin and the family wanted me to thank you all again for the donations. It is so comforting to know that we have a little cushion of money to help Kevin, his father and mother, grandfather and siblings get through this.
I will write again after the surgery on Tuesday. My best to all of you. I'm off to bed now. I'm exhausted.
We continue to wait for Kevin's infection to clear so surgery can go forward. Kevin is starting to get depressed and frustrated. He is still breathing through the ventilator through his mouth and he hates it. Once the infection clears, they will do a tracheotomy and do additional surgery on his spine. He will be in Harborview's ICU for weeks.
Please continue to send your prayers and good thoughts. I know it is a blessing that he is awake and aware but it is incredibly sad to watch him struggle, unable to move, speak, or breathe on his own.
Good news, the parents were finally given a temporary apartment near the hospital for the next 7 days. They've been sleeping in the ICU waiting room and taking turns sleeping and sitting with Kevin. His grandfather, siblings, aunts, cousins, and other members of the Muckleshoot Tribe also visit daily.
I will try to update this site every couple of days. We remain hopeful.
Bad news today from the doctors at Harborview. Kevin's spine was severed at C4 which means he definitely will never walk again and it is likely he may never breath or eat on his own. He has also developed an infection at the wound site and they can't do any surgery until that clears up. He will most likely be at Harborview for weeks.
We are trying to wrap our heads around this devastating news. We also learned that the parents do not qualify for an apartment near the hospital through medicaid because they do not live far enough away. We will know more after the surgery. Thank you for all the support and please continue to send your good thoughts and prayers.
Thank you! We are overwhelmed with your generosity. This is a sad and difficult time for us but your warmth and thoughtfulness is giving us the strength we need to carry on. This will be a long and difficult road. Kevin has more surgery on Monday. I will update this site after we learn more from the
Thank you! I am so touched by everyone's generosity. I have to go to bed now. It has been a tough week. I will be back online tomorrow. God bless everyone. Keep up the prayers. We've already seen their power.
For those following Kevin's progress, it looks like he will have to have a tracheotomy in the next day or two in order to him breath and aid in his feeding. Our need prayers and good thoughts continues. The families have a set up crowd funding website to collect money to help with immediate expenses that are mounting. Help if you can.
On Friday, October 18, my grand nephew, Kevin Wayne, Jr. was injured in a freak accident that left him paralyzed from the neck down and breathing with the help of a ventilator. October 24th was his 17th birthday. His parents are by his side 24/7 and both have had to leave their jobs. My niece and her partner, the mother and father, need financial assistance to get through this immediate crisis until a longer-term funding source can be established. Friends and family are exhausting their own resources to pay for gas, parking, food, etc. Any and all financial help is welcome.
I've increased the funding request because it is clear this will be a very long and costly journey for Kevin and his family. Donations can also be made at Banner Bank, The Kevin Wayne Family Fund.
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