Hello everyone! The first DaVinci Machine should be delivered this week according to Brieyana's Mother. How exciting!!! I will post any pictures or another video once it's delivered. Thank you for everyone's continued support and donations! We're at 60.25 % of our goal. I know we can do it! Let's hit our goal so we can get that second DaVinci Machine for Brieyana! Thank you everybody!
Thank you to Brieyana's mother for supplying this video and again thank you to everybody who has donated and shared Brieyana's story! I spoke with Brieyana's mother and she has placed the order for the 1st DaVinci Machine!! One correction I need to make from my last post is the first machine is going to her school, not her home. When we hit our next goal, that machine will go to her home. Let's keep the momentum going. I know we can do it. Thank you everyone for all your continued support!
Thank you, thank you, thank you! Because of your support and donations we have reached our first goal and hitting $3,000 to get Brieyana one of her two DaVinci Machines! Thank you so much! Now, lets work on getting the next $3,000 to hit our final goal and get Brieyana her other DaVinci Machine for school!
Hello all! Just wanted to update everyone...after speaking with Brieyana's mother, we have raised the goal to $6,000. The reason for this is that if the district were to contribute than they would have a right to keeping that machine. If Brieyana and her family were to move out of the district (which there is a possibility of that occurring), they would need to leave behind the machine. By upping the goal to the full $6,000 this would ensure that Brieyana would own both machines and would be able to take the machine to whatever school district they move too. Thank you for all the continued support and sharing this page and spreading the word about Brieyana!
We are at 32% of our goal! Thank you to everyone who's donated, shared our page and taken the time to check it out. It means a lot to all of us! Please feel free to continue sharing this link with family and friends. Thank you!
Hi Everyone, My name is Brieyana or Sissy for short, I would like to tell you about myself. I was born Dec. 29, 2004, with Cloudy Corneas, Bilateral cleft lip and palate, and short stature. I weighed 5lbs, 9oz. and 16 inches long. I spent a few days in the NICU and then got to go home (Endicott, NY) with my mommy, daddy, and sister Kayla. Kayla was 3 years old and born just like me but she didn't have cloudy corneas. My parents took my sister and I to see a genetics doctor is Rochester, NY. He told my parents that my sister and I have a rare syndrome called Peter's Anomaly Plus. Fewer than 70 people in the world have this syndrome! I'm a pretty special girl:) It's a hereditary syndrome my parents didn't they carried. The Doctor then referred my parents to see another wonderful Doctor. He was a first fellowship trained corneal surgeon in the United States and also was from Strong Memorial from Rochester, NY. He had great hopes of giving me sight! I was 7 weeks old when I went in for my first cornea transplant on my right eye. It went well and I had to go back to Rochester a few times where they always made me take a nap for a couple hours so they could check the healing, clean my prosthesis, and check for glaucoma. My parents put all kinds of drops and gue in my eyes to keep them clean and moist everyday. We went back for another follow up and the doctor saw some signs the transplant needed to be replaced so I had my second transplant within a month. Then it happened again so I had a third transplant, well when that one was rejected too, they had found my retina had become unattached, and glaucoma was present. That was the day I became legally blind. I was 1 years old. I am thankful I have some sight in my left eye though, cause I love colors! Blue and Green are my favorites! When I was 15 months old I went in for my first cleft lip and palate repair, my sister got her's done too! Also had ear tubes put in to help with those awful ear aches we would get. I started school early at the age of 3. I liked school but I didn't have to read then. Now I'm 8 years old in second grade and I am learning to read more but it's very hard to read the words I can't see at a distance, I have to hold what i'm reading right up to my left eye. I do wear glasses and they are a little help. Until today, when I went in a room my mom, teacher, aid, special education director and gentlemen siting by a machine that looks like a wide, but skinny computer. I got to try this machine and guess what?! I could see and my chair was 2-3 feet away from the table! I've never been able to see from that far! It was clear and I read a short story to everyone!!! I was so proud of myself and so was my mom and everyone else there! The machine I'm speaking of even has a cool name! It's called the Davinci! If you would like to see this life changing machine go check out www.EnhancedVision.com and type in Davinci.
I updated the overall goal to $4,500 so Brieyana will be able to have a machine at home and also that would be half the cost of another one if the district is willing to go at least 1/2 for one for her classroom. Thank you for all your support so far!
My friends daughter Brieyana, who lives in Endicott, NY, has an extremely rare medical condition called Peter's Anomoly Plus and is legally blind in her right eye and has limited vision in her left eye. She has huge struggles due to this! She wants nothing more than to interact just like all the other kids do. Her mother attended a meeting at Maine Memorial to see a demonstration of a new piece of equipment that will help give Brieyana the ability to read, see things from a distance and so much more. Her mother was skeptical because she's had meetings before but nothing ever came out of them. Everything changed though when Brieyana had the opportunity to try it out and was able to read from a distance. Brieyana was overcome with joy and enthusiasm from the experience. This machine is called The DaVinci. It has an auto focus 3 in 1 camera, 24" high resolution HD LCD, text to speech, magnification up to 77x, a true mirror image can be utilized as a display for a computer or Ipad and so much more! Children have been reported to go up 2 grade levels in 3 months. The sad news is Brieyana's school district is not in full support due to the $3,000 price tag per machine. Please donate to help give Brieyana the ability to see what all of us are able to see and to also help out an amazing Mother who has been faced with so much adversity but never gives up!
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