Hi Everyone, My name is Brieyana or Sissy for short, I would like to tell you about myself. I was born Dec. 29, 2004, with Cloudy Corneas, Bilateral cleft lip and palate, and short stature. I weighed 5lbs, 9oz. and 16 inches long. I spent a few days in the NICU and then got to go home (Endicott, NY) with my mommy, daddy, and sister Kayla. Kayla was 3 years old and born just like me but she didn't have cloudy corneas. My parents took my sister and I to see a genetics doctor is Rochester, NY. He told my parents that my sister and I have a rare syndrome called Peter's Anomaly Plus. Fewer than 70 people in the world have this syndrome! I'm a pretty special girl:) It's a hereditary syndrome my parents didn't they carried. The Doctor then referred my parents to see another wonderful Doctor. He was a first fellowship trained corneal surgeon in the United States and also was from Strong Memorial from Rochester, NY. He had great hopes of giving me sight! I was 7 weeks old when I went in for my first cornea transplant on my right eye. It went well and I had to go back to Rochester a few times where they always made me take a nap for a couple hours so they could check the healing, clean my prosthesis, and check for glaucoma. My parents put all kinds of drops and gue in my eyes to keep them clean and moist everyday. We went back for another follow up and the doctor saw some signs the transplant needed to be replaced so I had my second transplant within a month. Then it happened again so I had a third transplant, well when that one was rejected too, they had found my retina had become unattached, and glaucoma was present. That was the day I became legally blind. I was 1 years old. I am thankful I have some sight in my left eye though, cause I love colors! Blue and Green are my favorites! When I was 15 months old I went in for my first cleft lip and palate repair, my sister got her's done too! Also had ear tubes put in to help with those awful ear aches we would get. I started school early at the age of 3. I liked school but I didn't have to read then. Now I'm 8 years old in second grade and I am learning to read more but it's very hard to read the words I can't see at a distance, I have to hold what i'm reading right up to my left eye. I do wear glasses and they are a little help. Until today, when I went in a room my mom, teacher, aid, special education director and gentlemen siting by a machine that looks like a wide, but skinny computer. I got to try this machine and guess what?! I could see and my chair was 2-3 feet away from the table! I've never been able to see from that far! It was clear and I read a short story to everyone!!! I was so proud of myself and so was my mom and everyone else there! The machine I'm speaking of even has a cool name! It's called the Davinci! If you would like to see this life changing machine go check out www.EnhancedVision.com
and type in Davinci.