Help to treat Dmitry
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Our family lives in Moscow, Russia. My elder son Dmitry is now 8 years old. He has a face and neck arteriovenous malformation. I created this page to raise money for his treatment.
In August 2011, when Dmitry just turned 6, after an ordinary viral infection we detected a small red mark under his left eye. Then it started to grow, and new lesions appeared on his left cheek, neck, near his nose, then on the upper and lower lip, nasal mucosa, gums and palate. First my son was misdiagnosed with a port wine stain, but after having the MRI we got the final diagnosis: diffuse face and neck arteriovenous malformation (AVM), type IIIa stage 1.This is a rare and dangerous vascular anomaly. Arteriovenous malformations may dramatically grow, especially during adolescence or as a result of a trauma or wrong treatment. Their natural course is progression from stage 1 to stage 4, causing pain, severe arterial bleedings, tissue necrosis and heart failure. Treatment of complex AVM is a life-long challenge, especially in face area; it includes transarterial embolization, sclerotherapy, surgical excision, laser procedures and medications. There are only few doctors in the world that have significant experience with AVMs, and it's crucially important to find such a doctor who won't make fatal mistakes during treatment. In Russia we couldn't find such a doctor, so we had to searh abroad.Dr Gresham Richter from Arkansas Children's Hospital is one of the topnotch world experts in face and neck vascular anomalies. He saw my son's case during an International Symposium held in the USA in April 2013 and offered his help. The hospital calculated the cost estimate for the first visit (diagnistics and treatment) - it amounts to 28600 USD. It's very much money for our family, especially if to consider that in the coming months we'll need to come to the clinic multiple times and obviously pay for that again and again.
Dr Richter is very optimistic about future treatment, but we need to start it as soon as possible. Today his AVM isn't growing so fast, but it started bleeding, and it scares me very much. Once he had a spontaneous bleeding from the affected lip, another time his cheek spurted blood again for no reason. I could stop the bleed by applying pressure, but I'm afraid that the next bleeding could be more extensive. We cannot wait anymore.
I'm begging you to help us. Dmitry is such a good boy, very smart, kind and handsome. He loves reading books, does well at school, and adores his younger brother. Despite his defect he makes friend very easy and takes part in every activity on playgrounds. He deserves the best treatment with the best doctor, otherwise his face may be disfigured, more complications may arise, and we'll lose our chance for cure.We've already raised 10850 USD. Now we only need 17750 USD to start the treatment. Please, help us collect it!
In August 2011, when Dmitry just turned 6, after an ordinary viral infection we detected a small red mark under his left eye. Then it started to grow, and new lesions appeared on his left cheek, neck, near his nose, then on the upper and lower lip, nasal mucosa, gums and palate. First my son was misdiagnosed with a port wine stain, but after having the MRI we got the final diagnosis: diffuse face and neck arteriovenous malformation (AVM), type IIIa stage 1.This is a rare and dangerous vascular anomaly. Arteriovenous malformations may dramatically grow, especially during adolescence or as a result of a trauma or wrong treatment. Their natural course is progression from stage 1 to stage 4, causing pain, severe arterial bleedings, tissue necrosis and heart failure. Treatment of complex AVM is a life-long challenge, especially in face area; it includes transarterial embolization, sclerotherapy, surgical excision, laser procedures and medications. There are only few doctors in the world that have significant experience with AVMs, and it's crucially important to find such a doctor who won't make fatal mistakes during treatment. In Russia we couldn't find such a doctor, so we had to searh abroad.Dr Gresham Richter from Arkansas Children's Hospital is one of the topnotch world experts in face and neck vascular anomalies. He saw my son's case during an International Symposium held in the USA in April 2013 and offered his help. The hospital calculated the cost estimate for the first visit (diagnistics and treatment) - it amounts to 28600 USD. It's very much money for our family, especially if to consider that in the coming months we'll need to come to the clinic multiple times and obviously pay for that again and again.
Dr Richter is very optimistic about future treatment, but we need to start it as soon as possible. Today his AVM isn't growing so fast, but it started bleeding, and it scares me very much. Once he had a spontaneous bleeding from the affected lip, another time his cheek spurted blood again for no reason. I could stop the bleed by applying pressure, but I'm afraid that the next bleeding could be more extensive. We cannot wait anymore.
I'm begging you to help us. Dmitry is such a good boy, very smart, kind and handsome. He loves reading books, does well at school, and adores his younger brother. Despite his defect he makes friend very easy and takes part in every activity on playgrounds. He deserves the best treatment with the best doctor, otherwise his face may be disfigured, more complications may arise, and we'll lose our chance for cure.We've already raised 10850 USD. Now we only need 17750 USD to start the treatment. Please, help us collect it!
Organizer
Svetlana Ulyakhina
Organizer
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