(William James Burkes)In Memory of Baby William – Request for Assistance in
Amanda Lowe and her fiancé, J.D Burkes, learned seven months
ago that they were expecting twins. Shortly after the start of the pregnancy,
Amanda started experiencing complications with the pregnancy. It was determined
that she suffered from a rare disorder known as “Twin to Twin Transfusion
Syndrome”. In the past few days, the baby doctors referred to as “B”, named
William James Burkes, has passed away. While the doctors attempted to perform a procedure
called, “Intrauterine Fetal Blood Transfusion”, they were unable to follow
through with the procedure.
Today, the baby identified as “A”, named Franklin Dale Burkes,
is struggling for his life while the parents must plan for the funeral.
However, due to recent expenses, the amount that they have is short of what
they require. This fundraiser is to collect funds to handle the expenses
associated with the funeral of baby William Burkes. On this page, you will
receive a brief synopsis of the events that have transpired concerning the
parents and twins in which this fundraiser has been created to assist.
(Amanda and her fiance, J.D)
On Wednesday, June 5th
, Amanda and her fiancé, JD
traveled to the hospital to have their unborn twins checked out as the
diagnosis of twin to twin transfusion syndrome had been previously given to the
couple. Each week, the couple had to travel out of town in order for Amanda and
the babies to be monitored. This day was much like many other days. However,
neither were aware that they were about to be given devastating news that would
forever change their lives.
As the doctors examined Amanda and made an attempt to
examine the unborn twins that she had been carrying for nearly 28 weeks, they
realized that “Baby B”, who the couple had named “William”, did not have a heartbeat.
The baby identified as “Baby A”, named Franklin, continued to show a heartbeat. Due to the fact that early delivery could pose complications, the doctors
worked diligently to determine what course of action should be taken next.
On Thursday, June 6th
, the doctors informed the
couple that they would be performing a procedure referred to as an “Intrauterine
Fetal Blood Transfusion” on the living twin, Franklin. However, after several
hours in the operating room and numerous attempts to complete the transfusion,
the operating doctors determined that they would be unable to perform the procedure
due to the risks involved for both the mother and little baby Franklin.
on Friday, June 7th
, the hospital ordered several tests as Amanda
started experiences complications that concerned them – such as a high heart
rate. These tests included an EKG, a chest x-ray and an ultrasound of the
heart. Not only did the medical professionals want to monitor her condition,
but they were also trying to determine if she could successfully undergo an
emergency caesarean section to deliver both William and Franklin. On the
evening of June 7th
, she was wheeled to the operating room to
deliver the babies, and baby "B", William James Burkes, was pronounced dead immediately after the delivery.
(Baby William)Twin to Twin Transfusion Syndrome Explained
Twin to twin transfusion syndrome (TTTS) is a medical
condition that occurs when the blood passes in an unequal manner between twins
that have been identified as “Identical”, and share a placenta. When a placenta
is shared, the twins are identified as being “Monochorionic”. In the placenta
that is shared between the babies, there are blood vessels present that connect
the supply of blood to each of the two babies. This permits the blood to easily
flow between the children.
In very rare instances, the flow of blood becomes
unbalanced. When this happens, it is diagnosed as “Twin-Twin Transfusion
Syndrome”, or “TTTS”, for short. The smallest twin is then identified as the “Donor”
and initiates the process of pumping blood to the larger baby. The larger baby
is known as the “Recipient”. This leaves the smaller baby with the issue of
receiving too little blood, and the larger baby receiving too much blood.
Many complications may develop in twin to twin transfusion
syndrome. First, the baby that is receiving too much blood will start to
produce exceptionally large amounts of urine. As a result, the bladder may
become too large. Furthermore, too much amniotic fluid may develop, and
prenatal heart failure could occur. For the smaller twin, the baby may not be
able to produce enough urine. When this happens, the amniotic fluid levels may
become too low. Additionally, the abnormal blood flow that is occurring between
the babies could result in one or both to experience nutritional deficiencies.
As a result, growth may occur too rapidly in one baby, and the other baby may
not experience the growth that is required.
According to the organization known
as, “The Twin to Twin Transfusion Syndrome Foundation”, the placenta is the
single biological structure of the body that has the capability of causing
injury and/or death to more than one individual at a time. The complications
that this rare disorder may cause the twins to experience lifelong
complications, or could result in death before delivery, or immediately after delivery,
and in this instance, one baby has already passed away – sacrificing himself so
that his twin brother may stand a chance for survival.
(Cameron Encouraging His Mommy, Amanda)
The purpose and intent of this fundraiser is to assist in
the funeral expenses for baby William. Amanda, her fiancé, JD, and her family
have dealt with a tremendous amount of devastation and scares associated with
the pregnancy for the past seven months. They have also experienced a large
amount of medical expenses and expenses associated with traveling back and forth
to specialists each week. One of the most challenging issues for parents is the
death of a child. Actually, it is the absolute worse experience that a parent
I am kindly asking that each of you make a donation that you are
comfortable with, at this time. Let’s help take one of the burdens off the
shoulders of this family. While this is only one burden that they face, it may
be one of the most challenging. Let’s honor William by donating to ensure that
he receives the closure that we all deserve at the end of our lives. Making a
contribution today – regardless of how small or how large – will make a large,
positive impact on the lives of those that are suffering in this family
tomorrow. Thank you so very much for your consideration and donations at this very challenging time.