Forgot! One EXCELLENT thing - I went to my new clinic today for the first time (I was so Ill and in pain I requested a same-day and got it!). I had the kindest doctor - she actually APOLOGIZED that I have had to suffer for so long, gave me nausea medication and pain medication. She also promised me that they will stay with me until they find out what is going on - and fixed it! I am so relieved!
Hello, and thanks for all you have done! We will be losing our phone and internet on Monday (they need $1,000), so I will be here less often. Thanks to another dear friend we will at least have cellular service (if you want the number, let me know). Verizon says as soon as we catch up they will restore everything - phone, TV, internet and cell...
It's been a long time since I last posted, mostly because we lost our phone/internet for a bit.
Trying to get on top. I am still without a doctor, and have ongoing problems health wise. Chris has been trying very hard to get work with limited success - summer is a low time for piano tuning. I have trouble with my gallbladder and kidneys, and I pray that I can find a doctor soon.
To add, we were driving without insurance, and I had an accident. The ironic twist is that we were on our way to a job that would have finally made it possible to get insurance. Our utilities are also in bad shape...I just hang onto God and hope that somehow things will work out.
Sorry I am so sporadic in posting updates - we are so inundated with trying to dig ourselves out from under that I forget to post.
Thanks to all of you angels, we are doing better on the rent front - only $271 to go for June, and that is better than it has been in months. We still are trying to keep our electricity on...$500 now. There has just been so little work. I am still pretty weak, low stamina and such, but hopefully improving slowly - if I can keep from getting infections!
We owe a tremendous amount to Verizon, but I must say they are a compassionate company! We have about $2000 to pay them, but they are working with us. We have been trying to get caught up, and they know that. I sure wish we could get them paid, but at least they are kind and working with us. I recommend Verizon to everyone.
We owe everyone, just everyone - the optometrist, the dentist - I'm still without a doctor. I can't find anyone who is willing to take on another patient. My original doctor, Stephen Ross, is trying to get his medical group to allow me back in, but they are unwilling. I have to keep going to the ER just to get treatment, and they are getting really tired of seeing me....
There are angels afoot, and you all are those angels. Thanks for your help in the past - we hope to one day not need the help.
With all of your help, we were in sight of finally getting our noses above the water line...then Chris got the pneumonia. If we could somehow get caught up on the other big things - our phone bill (which is tremendous due to our not being able to pay for many months) and our electrical bill. It is so very hard, because I can do so little. I want to be able to say positive things, so I will say that you are all so wonderful to us, and we really do appreciate all that you have done. Thank you.
Sorry I haven't been keeping you all updated...we want to thank everyone for all of your help. We keep having exciting times...Chris is doing much better, thank God. I was in the ER last night. I have a kidney infection, and in addition I have a growth on my right kidney that needs attention. I'm still trying to find a doctor. It's a struggle. We lost two weeks of jobs because of Chris' pneumonia, but we are trying very hard to get caught up. I continue to feel ill, but maybe will get a doctor soon...I sure hope so. We do appreciate all you have done for us. I pray for the day when we will finally get caught up. We have bright spots - we have all of you, and we have our dear little cat, Ben...
Will the wonders never cease? Just brought Chris home from the ER at about 11:30 tonight. He has pneumonia. Luckily for us it was light and he was able to come home. More times that keep life exciting!
Things have been so intense that I completely forgot to continue with my history...anyway, since March 2012 I have been hospitalized (I think) about 4 more times. I had 3 kidney infections requiring hospitalizations, and a more recent (December 30 - January 8) one where a simple abscess became infected with a super virus named MRSA. Most recently I have lost my doctor of over 30 years when I was moved from regular MediCal to managed care. I am struggling with things a bit because I have not yet found a doctor willing to take me on as a patient. That, along with struggles to pay our phone, gas and electricity means we are still barely keeping our noses above water. So many people have helped us, and we feel so badly that we are still not making it - but at least until Saturday we are caught up with rent!
When I got home from the hospital I was out for quite a while. I still had the nephrostomy bag, but otherwise seemed to be okay. In October of that year I began to feel ill and ended up in Harbor UCLA for the weekend. They removed the bag and sewed up the opening. I was good until November 12th, when I collapsed and was once again taken to Santa Monica UCLA. I think it was there for about three weeks or so I ended up with bacterial pneumonia caused by MRSA. I also had a raging infection in behind where they had sewn up the port for the nephrostomy bag. I don't know how long that lasted, but I know it was at least a couple of weeks.
Home again after Thanksgiving, I was until sometime in January. I don't remember the circumstances, but I do know that my final hospital stay in that spring was in February-March.
I promised I would tell you all more, and I am:
I went home from the hospital March 14, 2011. When I went back for my followup appointment they discovered that I had an infection in the surgical site. They hospitalized me immediately and I was there for 12 days, discharged on April 20, 2011.
On May 8 I was walking to the kitchen table to breakfast when I collapsed. I was unable to get up so Chris called 911. I was taken to Santa Monica UCLA Medical Center and was once again hospitalized. A very good doctor discovered that I had Stevens-Johnson Syndrome, which was an extreme allergic reaction to antibiotics, among other things. I was really Ill. It took about 5 weeks to come out of that. I was scheduled to be released in mid-June when I had a bleed into my abdominal cavity, causing a large hematoma that blocked my right kidney, 2/3 of my bladder and my urethra. I had a procedure in which they put in a nephrostomy bag (to allow the kidney to drain) and two stents to keep my urethra open. I finally left the hospital on August 19, 20011.
Thank you all so much! This is a huge help.
Some people have suggested that I tell our whole story, to let you know what contributed to our current predicament:
Back in August 2010 I had a fall over my guitar case. I hit the wall and broke my arm in two places. I wanted to go to my own doctor, but Chris wanted their doctor because he thought he might be cheaper...so I want to the doctor who I was referred to by the hospital didn't really care and basically ignored me for three months. Finally my nagging got through and Chris took me to my doctor. He referred me to Harbor UCLA, who told me it was too late for surgery...finally, in March 2011, I was seen by the head of the orthopedic department, Dr Zinnar. He discovered that my arm wasn't healed and I was in surgery within 6 days.
Dr Zinnar discovered that the reason the bones didn't heal was because my radial nerve was wrapped around the ends of the bone.
At any rate, the surgery was successful...
more later. I promise.
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