Updated posted by Susan Halaburda 3 days ago
Last week's MRI showed improvement on his Brian...
Last week's MRI showed improvement on his Brian and spinal column! ! But the lumbar puncture showed there are still cancer cells in his spinal fluid. So next weds is his next chemo admission. :( the chemo has been so rough on his little body! He's had multiple platelet infusions. He's tired, weak and has had the worst cold. But he's still positive and happy for the most part. He was feeling particularly bad this week with joint pains. He asked, "am I ever going to get better? I'm tired of being sick." How do you answer that? I told him of course he will. He misses school, having friends, seeing his cousins, life. He's always busy, playing, always imaginary things. Building machines, having his own store, video games, play dough. Such a trooper, so mature and wise for his age! It's such a pleasure just watching him! So please keep us in your prayers once again this next week. We have to knock these bad cells out!
Thank you all so much for your donations! I haven't had the time to thank each one of you, but we appreciate the help! I hope you know that and understand. My job has been less than understanding. They are looking for ways to get rid of me now. I don't blame them. But I am bitter of their lack of compassion. What would they do if they were in our shoes?
Updated posted by Susan Halaburda 1 month ago
So today we were sent home! We were so excited...
So today we were sent home! We were so excited about it, but didn't realize he had to have nine meds drawn up twice a day, or the negative emotions he'd feel. There's no time to clean up, or time for us, it's a round the clock job! How am I supposed to return to work and expect Mark to get thru this alone?So many decisions to be made, so little experience in doing so.
Updated posted by Susan Halaburda 1 month ago
This is an update I'd never thought I'd be...
This is an update I'd never thought I'd be making. On January second, Lucas had his first seizure. We rushed him to the hospital where they intubated him and rushed him to children's in the middle of the snow storm. The next day he had an MRI of his brain which showed his cancer was back. All thru his brain and down his spinal column. A few cells had become chemo resistant and banned together to encase his brain and spine.
The prognosis has dropped from 70 percent to 30. We're still here in the hospital. They've FINALLY been able to control his seizures for the most part. He's eating on his own. But he still cannot speak. He tries, but he cannot make his brain put the words together.
The Dr wants to try two sessions of chemo three weeks apart and then another MRI to see if there's been any progress. If not, it will be comfort measures only. We were half way thru chemo! He was doing great! Such an awful set back.I just don't understand.
Please keep him in your prayers, maybe someone will listen and not take our son from us. I'll try to post when I can.
Created by Susan Halaburda on April 20, 2013
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Our family is praying for your little boy as well as. your family! Our son Collin has Mrs. Danko and he sends his love and well wishes to Lucas as well! HUGS!
posted by Allysia Doan 1 month ago
My daughter and other dancers representing Dakota high school dance team are stopping up for the benefit before their nationals dinner. Where can they get the flyer? It's my understanding they need to bring a flyer
posted by Jimmy Hazzard 1 month ago
I had the chance to work with Lucas this year in a small group setting as well as one on one. He is such a wonderful, hard-working little boy, I miss seeing his smile here!! I am praying for you buddy and will keep you and your family in my prayers. Stay strong!
posted by Gina Rinaldo-Baggallay 10 months ago
I am so sorry to hear this news about Lucas. I also have a 6 year old at Ojibwa and I can't imagine what your family must be going through. Please know we will keep Lucas in our thoughts and prayers!
posted by Dottie Furman 10 months ago
So sorry to hear this! My son is a kinder at you so a school. I can't even imagine! Prayers to you and yours. I am a fireman in Detroit and would love to give Lucas a tour, let him squirt a fire house, sound the air horns, the whole 9 yards. Ease contact me at firstname.lastname@example.org if Lucas would enjoy this. God be with Lucas and your family.
posted by Jerry Apel 10 months ago
Lucas is in my kindergarten class. We all miss him dearly and wish for a speedy recovery!
posted by Gina Munaco 10 months ago
Prayers being sent for Lucas and his family. God be with you all.
posted by Barbara Beatty 10 months ago
Lucas is my son Mark's only child and is dearly loved by our whole family. This photo was taken only two weeks before his tumor was discovered. He just turned 6 years old and was a kindergartener. He has gone through a lot in the last 2 weeks and has a tough road ahead of him. We are fervently praying that his cancer has not spread and for the hand of God to reach down and cure him. I love you so much Luke
posted by Karen LaFave 10 months ago
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